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clnewberry1

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I am gluten intolerant - so far all tests for Celiac have come back negative. However I have been on a gluten free diet since Dec 08. I had antibody tests and biopsy.

I heard that some people can tolerate Spelt. I was going to try it. I wondered if I try it how long to wait for a reaction? Should I eat it just once and then not again - for how long?

Any advice would be appreciated.

Crystal

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When my allergist put me through the elimination diet he told me to eat the food 3 times a day for a week, unless a reaction happened sooner.

That said spelt is wheat and should not be eaten by someone who is gluten intolerant or celiac. Where did you hear it was okay for us to eat?


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Spelt is a form of wheat, and contains gluten as gliadin. While there may be some people with an allergy to wheat who can tolerate spelt, it is actually higher in gluten content than regular wheat, and so celiacs must avoid it completely.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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Hi Crystal

It doesn't matter if you are are full-blown celiac or gluten intolerant the outcome is the same. No wheat , rye or barley..spelt is part of the wheat family. Faro is also a no no.

If you have an allergy to wheat that is a whole different issue.

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I was mistaken. Where I read that said some people who are allergic or intolerant to wheat can sometimes tolerate Spelt. I think I was just excited to try something that would be like wheat. Yep I guess it won't be a go.

Thanks for the reply's

Crystal

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I was mistaken. Where I read that said some people who are allergic or intolerant to wheat can sometimes tolerate Spelt. I think I was just excited to try something that would be like wheat. Yep I guess it won't be a go.

Thanks for the reply's

Crystal

It's not that good anyway, it's a very heavy, blah grain, so you're not missing out.


If you're going through hell, keep going. ~Winston Churchill

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