Celiac Celebrity

[celiac3270]

Found this on another Yahoo support group (SillyYaks). We have a "celebrity" celiac...the person in The Incredibles (pretty good movie for animation, by the way).

I read it at IMDB.com after watching on the Conan rerun tonight. 

sara Vowell (violet in the incredibles) has celiac.  She is also an

author, and does alot of public radio stuff too. I just thought I

would share. 

Heather in Tampa

[KaitiUSA]

Thanks for sharing celiac3270

[stef-the-kicking-cuty]

Wow, awesome. Good to know, there are some famos people out there with celiac.

Hugs, Stef

[celiac3270]

Yep--and Rich Gannon (NFL quarterback) has a celiac daughter...Danielle, who made the chocolate cake mix

[KaitiUSA]

celiac3270-wow I didn't know that...I learn something new every day.I think if we had celebrities promoting celiac then more people would start to be aware. I wish we could get on a popular show like dr phil or oprah or something.

[angel-jd1]

I have read a few articles on her, and looks like she kinda gives us some bad press. She put down the "Living Without" magazine

I'm not so sure she is the person to "spear head" our campaign! ha

-Jessica

[gf4life]

I found this about what she said on a radio show.

Open Original Shared Link

Sarah Vowell was very well spoken and mentioned how many magazines have upbeat titles but the one she reads has a depressing title "Living Without" though she wasn't being negative just frank about her feelings dealing with living Without wheat. She wondered why the publishers didn't just call the magazine "Loser". She read headlines of many articles I have read and remember myself in Living Without. She appreciates the magazine for discussing these issues non clinically and dealing with the many issues many of us with food allegries encounter. She also discusses her friends reactions when dining out together. It was short but I felt great to know that many people would be listening to this program and get a little understanding of what we deal with daily. And for me it was nice to know others feel the same as myself dealing with this new lifestyle.

We just got the Incedibles DVD the other day, and of course my kids have to watch all of the extra stuff, too. They had a little interview with Sarah Vowell, and I would have to say that she is a very cynical and sarcastic person(quite a lot like Violet in the movie!), and that might have come acrossed as being negative, when in fact she was making a sarcastic joke about the name of the magazine. I have a subscription to Living Without and when people come over to my house and see it they always have to pick it up, because the name sort of makes them wonder what it is about.

But two articles I read in regards to this both mention her "wheat allergy", and not Celiac. So she might just be allergic to wheat, or she might just be trying to avoid the long explanation of the disease! Who knows.

God bless,

Mariann

[phakephur]

Did any of you hear the This American Life broadcast mentioned in the article? Toward the end Sarah Vowell describes the upbeat endings to some of the articles in Living Without. Like the story about a "gluten allergic" boy whose family goes out for pizza once a week until the child is diagnosed.

"They thought pizza night was history until the mother finally figured out that she could bring gluten free dough to the pizzeria."

Do any of you take dough to a pizza joint and hand it over to the staff? That sounds like eating the insides out of the toast points to me.

You can listen to the broadcast via streaming media at Open Original Shared Link

04 archive, episode 256. Sarah Vowell's piece starts 17:30 min into the show.

Sarah

[skbird]

Wow, I think Sarah Vowell is hilarious. I saw her on the Daily Show (Comedy Central) a while back and couldn't stop laughing. Her sarcastic delivery at times is really good.

It's nice to hear of a "famous" person who has either celiac disease or wheat/gluten allergy. Thanks for the info.

Stephanie

[celiac3270]

Haha...that's kind of funny...in a sarcastic way.

I can't figure it out--She says that she has a "wheat allergy", but then says "nobody wants to hear about a disease, the treatment of which consists of carrying a fruit cup everywhere..." or something like that. She mentions "gluten free" and "wheat sensitivity". I'm not sure whether she's celiac or wheat-allergic. Then she mentions "wheat gluten"...it's confusing. It is a very grim view of eating gluten-free...around 21 1/2 minutes she mentions eating a banana instead of toast for breakfast and a friend saying "why don't you ask for something else just as bland like...a casette tape." It's grim...probably not the person we want representing all us celiacs...but a rather humorous view to something serious.

[Rikki Tikki]

I ws just wondering the other day how many actresses have celiac. It crossed my mind because so many of them are so thin?

[dreamhouses]

Yep, definitely a likelihood for actresses. I read about a model, recently, who had finally figured out why she was so skinny, which made her a sought after model, but was bad for her health because she had celiac. I might have read that in Living Without. I wish people could learn that super thin is not necessarily healthy for women for so many reasons.

Personally I think Living Without is a good name for the magazine. I'm happy to be "living without". I think we are so much more in touch with our bodies, and doing the right things for our health than the general population. It's just another way to reach a balance in our health that most people will never know. Most of that stuff we've eliminated isn't very good for anyone! Valerie

[Thomas]

Part of the entertainment business, especially for women is to be extremely thin. I seriously don't think actresses have a choice in their weight, if they want roles they have to be a certain size... I think more of them have unhealthy eating habits, rather than celiac. . . Though I do agree that being super thin is not healthy, or something we as movie / tv watchers should necessitate.

Smith

[Rikki Tikki]

I suppose part of the reason I wondered is the high rate of people that have celiac and the low number of people that are diagnosed with it. It just seems like people in hollywood may also have it.

[Guest ajlauer]

I ws just wondering the other day how many actresses have celiac. It crossed my mind because so many of them are so thin?

I've recently wondered how many gymnasts have celiac. I used to think it was odd that they were so tiny. Before I learned that my daughter had issues, I figured she was just born to be a gymnast. *laugh* Now I'm worried that if we go gluten-free, and she gains weight, I'll have to quit dreaming about her being an olympic gymnast! Oh well, too expensive anyways!

[Guest ajlauer]

Yep--and Rich Gannon (NFL quarterback) has a celiac daughter...Danielle, who made the chocolate cake mix

ahhhh!!!! I just read that today!!!!! Can't believe I missed this post (darn headaches!!!) I went to a local store today that has an aisle of gluten-free stuff. It was *so* nice to see I didn't have to buy these things off the net and pay $100,000 for shipping!! Anyhow, I read the package of ... whatever it was... that mentioned Gannon's daughter!!! Rich Gannon is such a hottie!! MMmmMMm! He gives women a reason to watch football!!!!! Does he have celiac disease? Or is it Danielle's mom? Anybody know?

And if Danielle happens to be a member of these boards.... I do apologize if my "kind" words about your father have made you ill!

[celiac3270]

I think Rich Gannon's daughter has celiac disease. You probably saw Danielle's Chocolate Cake Mix (From the Gluten Free Pantry)?

[Guest ajlauer]

Yep! That was it! And since I don't like... Kid Rock, or whoever it was that his buddy died of celiacs..... Danielle is my personal poster child for celiac disease. Hehehe. OF course, I don't know what she looks like... So I'll just keep picturing her father in his football uniform!

[Guest BellyTimber]

I read recently girls with coeliac disease are being "treated" with psychiatric drugs on the grounds they have got anorexia nervosa.

In 2005.

Sorry I can't give the web address.

[stef-the-kicking-cuty]

I've recently wondered how many gymnasts have celiac. I used to think it was odd that they were so tiny.

And my mother-in-law said, that she thinks, that a lot of the gymnastic kids get bone and/or back problems later, because of gymnastics. But bone problems are also known as being related to celiac disease. So I think much more of them actually have celiac disease maybe. I think, that gymnastics is the culprit, that can't be quite true. I teach kids in gymnastics myself and I have never had any kid with bone or back problems, because of gymnastics. And my teacher retires soon. She taught kids in gymnastics all her life and she never had kids with bone problems either. If they get bone problems they actually might have celiac disease as well. I think celiac disease is much more common than we think anyhow... My guess would be like 1:30 or so.

[mommida]

I think that is why it was so hard to get diagnosed. I was a competitive figure skater. They think you are just hiding an eating disorder.

I've seen figure skaters break bones just skating, not falling down or crashing into the boards. Bone deformities of the feet, legs that look the rickets, diminished brain function, and emotional meltdowns. Individuals with celiac disease have the body type that gymnastics and figure skating professionals look for. No hips, no boobs, tiny bone structure that as an adult would be under 5'4", no extra body fat.

L.

[stef-the-kicking-cuty]

Same with me here. For years I was fighting - 50 kg. Everybody thought, I look so skinny because of this.