Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Get My Mother Tested?


jasonD2

Recommended Posts

jasonD2 Experienced

I'm convinced my mother has gluten problems but she refuses to get tested for Celiac and whenever i bring it up she yells at me and says "oh please enough already!" she has had IBS and diverticulosis for most of her life and during the past few years has had trouble loosing weight (she needs to drop 10-15 lbs), her teeth are very sensitive and always break (not sure if thats a symptom) and shes experiencing some hair loss (again, not sure if that's a result of gluten). all of her other blood tests have been ok and she goes for annual colonoscopies. her mother and grandmother both died from stomach cancer, but of course they also had poor diets and never went to Doctors.

Anyway, my mother has some Dr appointments coming up cause she wants to get things checked out and I really want her to at least get the celiac blood panel. Im at the point where I want to literally threaten to not to talk to her until she does this because nothing else will convince her. She has no idea how this is stressing me out and the fact that i cant even have a normal conversation with her about it is driving me nuts.

Any suggestions? I had another idea to actually email or call her gastroenterologist and explain all of my issues and how there might be a genetic correlation.

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

I think if you are that concerned and she is that uncooperative, then you should speak to her dr. Call and ask to speak to the nurse the day before her appointment. Say when your mother is scheduled for her appointment and in a very short sentence or two sum up your fears about her. Say you would like to speak to her dr about her condition and just give him a heads up about some family history and symptoms she may not be telling him about. You'll either get a call back from the dr later or the nurse may give you an e-mail so you can correspond. The nurse will probably tell you they cannot disclose her private info to you. Just reassure her that you do not need any info, you simply want to inform the dr about your mother's symptoms that could lead him to diagnose. The dr cannot probably diagnose her because she is not revealing the extent of her family history and her personal symptoms. ( This may not be true but if they think it is, they will probably talk to you,) Stress that you only want her to get well and you don't need to know the details on their end.

If your mother thinks the celiac panel is all the dr's idea, she will probably go along. But be prepared that the gastro may not be open to celiac, some are really on board and others less so. Know that if the dr won't go along, then you will have to back off. That's hard to do with a loved one but you may be in that spot.

I wish you good luck and keep us informed. Maybe there are other alternatives.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,051
    • Most Online (within 30 mins)
      7,748

    levizagepro
    Newest Member
    levizagepro
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
×
×
  • Create New...