Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Get Canker Sores Or Chapped Lips?


PeachBlossoms

Recommended Posts

whiterabbit Newbie

Hi everyone :-)

I'm a newbie and it's so wonderful to have stumbled across such a great website with a whole wealth of information and people whom share at least some of your mixed bag of emotions we all have from this roller coaster that life throws our way at times. I hope to make some great friendships along the way. :-)

I'm really interested to hear about people with celiac disease who also suffer from chronic canker sores. Back in 2006 I was referred by my dentist to visit a Peridontist because my gums were always red and I suffered from mouth ulcers numerous times and the dentist just wanted to be safe than sorry. The Peridontist put me on a strong dose of antibiotics for 10 days hoping that the infection I had would clear up but no, my gums were still a red colour. I then had a biopsy done and it was discovered that I had oral lichen planus. Now this isn't a common disease and there is also a lichen planus which comes out on your skin like your arms or legs etc.

I was referred to a specialist in Melbourne - btw, I'm a kiwi, whom I see - he comes out for a couple of days every month to ChCh and I see him depending on our my condition is doing between once a month or every six months. I just thought, gee, what rotten luck! As we all do. :-)

Then late 2007 I had a positive blood test for celiac disease and what I am wondering is, whether anyone else out there might have oral lichen planus but it simply isn't being picked up. I'm wondering too whether the onset of mouth ulcers was perhaps the first sign of celiac except I had no way of knowing, I didn't even know about the condition until quite recent. I have asked my specialist if there is a correlation between celiacs and oral lichen planus but he simply says, the old standard answer 'there is no medical evidence to suggest that there is' but it just seems funny that hey, I've been suffering from mouth ulcers for years and then later on down the track, discover they are in fact oral lichen planus and on top, I get celiac disease as well.

By the way, I have also been referred to a rheumatologist twice because I have such high inflammation in my blood suspecting lupus but that so far has been ruled out. I know with lupus you also get lots of canker sores. It would seem that many of these types of illnesses you get many of the same symptons but it just depends on which way the wind is going to blow for you.

I just wanted to share this information with people because like me, I had never heard of it until I was diagnosed with it and maybe there is someone out there two whom might benefit by knowing about such a condition exists.

Cheers,

Whiterabbit :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Winter 2026 Issue
      3

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

    2. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      4

      Burning Sensation in the small intestine

    3. - cristiana replied to pilber309's topic in Related Issues & Disorders
      4

      Burning Sensation in the small intestine

    4. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      4

      Burning Sensation in the small intestine

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,875
    • Most Online (within 30 mins)
      7,748

    Ruth Margaret
    Newest Member
    Ruth Margaret
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • pilber309
      I will be doing in the new year. I had a thought that it might be Diverticulitis but I have no other symptoms related to that.
    • cristiana
      Have you mentioned it to your gastroenterologist?
    • pilber309
      Thanks for the reply. My burning sensation is bottom left side of my belly button so not directly below the sternum. My diet has been very austere for a while, I am eating in last few yrs what ive been eating now. No alcohol, 1 cup of coffee in the morning ,carnivore based , I have cut down on how much I eat as well lots of dairy Greek yog cheese etc, I am fitter than ever and don't have the symptoms I had pre diagnoses such has chronic fatigue ,migraines etc just this burning sensation.
    • trents
      Please understand that genetic (HLA) testing cannot be used to diagnose celiac disease since about 40% of the general population has the genetic potential to develop celiac disease while only about 1% actually do. It also takes some kind of stress event to "wake up" the genes such that the potential for it is transformed to active celiac disease. This stress event can be many things but often it is a viral infection. There are two genes, HLA-DQ2 and HLA-DQ8, that are responsible for the vast majority of active celiac disease cases. Having one or both of the genes doesn't equate to having celiac disease or even guaranteeing that you will develop it since, statistically, for most people, the genes remain dormant. But not having either one of them, despite experiencing distress from gluten consumption, essentially rules out celiac disease and points to NCGS. On the other hand, if you have cofactor evidence of celiac disease, such as anemia, having the genetic potential is a reinforcing piece of evidence.
    • cristiana
      Hello @pilber309 and welcome to the forum. (Nice to meet an almost-twin, I have nearly reached 14 years post diagnosis, too!) I suffer from burning pain in an area which you might be describing:   if you were looking at me, south of my ribs, between the sternum and belly button.  Is that the area you are talking about?  I get this pain when I am glutened, but also when I take strong antibiotics, or drink too much coffee or eat too much rich food.   I believe that it is a type of gastritis, which I treat with a very short dose of over the counter or prescription omeprazole, strong chamomile infusions, lots of water, and a reflux/gastritis diet.  There are many such diets available online to look at but in my case when it is playing up I avoid spicy food, strong coffee, citrus fruit, tomatoes, fatty meals etc, and I eat small but regular meals.  I don't actually enjoy alcohol but if you do happen to have gastritis, like me, it really can hurt if you have gastritis so should also be avoided. If you are taking iron supplements or NSAIDs such as aspirin, these can be very irritating to this area, too. I wonder if any of the above might apply to you? Cristiana  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.