Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Get Canker Sores Or Chapped Lips?


PeachBlossoms

Recommended Posts

whiterabbit Newbie

Hi everyone :-)

I'm a newbie and it's so wonderful to have stumbled across such a great website with a whole wealth of information and people whom share at least some of your mixed bag of emotions we all have from this roller coaster that life throws our way at times. I hope to make some great friendships along the way. :-)

I'm really interested to hear about people with celiac disease who also suffer from chronic canker sores. Back in 2006 I was referred by my dentist to visit a Peridontist because my gums were always red and I suffered from mouth ulcers numerous times and the dentist just wanted to be safe than sorry. The Peridontist put me on a strong dose of antibiotics for 10 days hoping that the infection I had would clear up but no, my gums were still a red colour. I then had a biopsy done and it was discovered that I had oral lichen planus. Now this isn't a common disease and there is also a lichen planus which comes out on your skin like your arms or legs etc.

I was referred to a specialist in Melbourne - btw, I'm a kiwi, whom I see - he comes out for a couple of days every month to ChCh and I see him depending on our my condition is doing between once a month or every six months. I just thought, gee, what rotten luck! As we all do. :-)

Then late 2007 I had a positive blood test for celiac disease and what I am wondering is, whether anyone else out there might have oral lichen planus but it simply isn't being picked up. I'm wondering too whether the onset of mouth ulcers was perhaps the first sign of celiac except I had no way of knowing, I didn't even know about the condition until quite recent. I have asked my specialist if there is a correlation between celiacs and oral lichen planus but he simply says, the old standard answer 'there is no medical evidence to suggest that there is' but it just seems funny that hey, I've been suffering from mouth ulcers for years and then later on down the track, discover they are in fact oral lichen planus and on top, I get celiac disease as well.

By the way, I have also been referred to a rheumatologist twice because I have such high inflammation in my blood suspecting lupus but that so far has been ruled out. I know with lupus you also get lots of canker sores. It would seem that many of these types of illnesses you get many of the same symptons but it just depends on which way the wind is going to blow for you.

I just wanted to share this information with people because like me, I had never heard of it until I was diagnosed with it and maybe there is someone out there two whom might benefit by knowing about such a condition exists.

Cheers,

Whiterabbit :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Accuracy of testing concerns

    2. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    3. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    4. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
    • trents
      Welcome to celiac.com, @Teaganwhowantsanexpltion! Joint pain is a well-established symptom of celiac disease. But joint pain may also be caused by other medical problems such as rheumatoid arthritis, chronic fatigue syndrome, etc. Make sure you share these concerns with your physician so that he or she can initiate testing or make referrals to specialists. As someone with celiac disease it is very important that you be consistent with the gluten free diet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.