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Do You Get Canker Sores Or Chapped Lips?


PeachBlossoms

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whiterabbit Newbie

Hi everyone :-)

I'm a newbie and it's so wonderful to have stumbled across such a great website with a whole wealth of information and people whom share at least some of your mixed bag of emotions we all have from this roller coaster that life throws our way at times. I hope to make some great friendships along the way. :-)

I'm really interested to hear about people with celiac disease who also suffer from chronic canker sores. Back in 2006 I was referred by my dentist to visit a Peridontist because my gums were always red and I suffered from mouth ulcers numerous times and the dentist just wanted to be safe than sorry. The Peridontist put me on a strong dose of antibiotics for 10 days hoping that the infection I had would clear up but no, my gums were still a red colour. I then had a biopsy done and it was discovered that I had oral lichen planus. Now this isn't a common disease and there is also a lichen planus which comes out on your skin like your arms or legs etc.

I was referred to a specialist in Melbourne - btw, I'm a kiwi, whom I see - he comes out for a couple of days every month to ChCh and I see him depending on our my condition is doing between once a month or every six months. I just thought, gee, what rotten luck! As we all do. :-)

Then late 2007 I had a positive blood test for celiac disease and what I am wondering is, whether anyone else out there might have oral lichen planus but it simply isn't being picked up. I'm wondering too whether the onset of mouth ulcers was perhaps the first sign of celiac except I had no way of knowing, I didn't even know about the condition until quite recent. I have asked my specialist if there is a correlation between celiacs and oral lichen planus but he simply says, the old standard answer 'there is no medical evidence to suggest that there is' but it just seems funny that hey, I've been suffering from mouth ulcers for years and then later on down the track, discover they are in fact oral lichen planus and on top, I get celiac disease as well.

By the way, I have also been referred to a rheumatologist twice because I have such high inflammation in my blood suspecting lupus but that so far has been ruled out. I know with lupus you also get lots of canker sores. It would seem that many of these types of illnesses you get many of the same symptons but it just depends on which way the wind is going to blow for you.

I just wanted to share this information with people because like me, I had never heard of it until I was diagnosed with it and maybe there is someone out there two whom might benefit by knowing about such a condition exists.

Cheers,

Whiterabbit :-)


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    • trents
      Of course, I thought about the OP not being consistent with the gluten-free diet and about cross reactivity. But you would think those things would show some damage in the biopsy, especially as severe as the symptoms seem to be. SIBO? Perhaps. But then we are probably leaving a celiac diagnosis and that is the question.
    • knitty kitty
      Processed meats and formed meats, like sausage, sandwich meats, chicken nuggets, contain "meat glue" to hold their shape.   This "meat glue" is produced by bacteria and called microbial transglutaminase.  It's the same structually as tissue transglutaminase that our bodies produce in response to gluten.  Microbial transglutaminase provokes the same autoimmune reaction in our bodies as if we had eaten gluten.   Microbial transglutaminase is also used in dairy products like yogurt.   Bacon is high in histamine.  Eating high histamine foods can cause continuing gastrointestinal symptoms.  A low histamine diet helps. Processed gluten free processed foods are not enriched with vitamins and minerals like gluten containing products are.   Deficiencies in Thiamine B1, Niacin B3, and  Vitamin C can also result in gastrointestinal symptoms.   Blood tests for B vitamins are not accurate because they don't measure the amount of a vitamin stored inside cells.  The blood is a transportation system delivering vitamins from the digestive tract around the body.  What's on a truck doesn't tell you that the warehouse is almost empty.   Supplementing with B vitamins is important! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/
    • knitty kitty
      How clean is her gluten free diet?  Is dairy included? Does she eat out?  SIBO?  Thiamine deficiency presenting as Gastrointestinal Beriberi?
    • knitty kitty
      There's more essential vitamins than B12 and Vitamin D!   Thiamine is B1.  Thiamine deficiency causes insomnia. Thiamine deficiency causes changes in brain function resulting in anxiety, insomnia, depression and dementia.  The brain uses more thiamine when stressed emotionally or physically.   Interesting Reading: Subclinical Thiamine deficiency causes anxiety, insomnia and depression... https://www.psychiatryredefined.org/running-on-empty-subclinical-thiamine-deficiency-is-common-and-causes-depression/#:~:text=Early signs of low thiamine,low appetite%2C and sleep disruption. Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Sleep and indolamine alterations induced by thiamine deficiency https://pubmed.ncbi.nlm.nih.gov/6182942/ Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/
    • trents
      But knitty kitty, if OP does have celiac disease, why aren't her symptoms in abatement after practicing the gluten free diet for four years? If the OP was a refractory celiac, you would think the biopsy wouldn't be clean. 
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