Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results

Peach

Recommended Posts

Peach Newbie
Peach
Posted

Hello - I've been having digestive issues for at least 20 years and get bloated after eating even a small meal or snack. By the end of the day I look 6 months pregnant and feel very uncomfortable... This is all on and off until last december when I began having diarrhea after evey meal and then all day everyday sometimes 10-15 times per day. Had a colonoscopy april 3rd, all clear no problems and the blood test for celiac in negative, however I had muscle testing done to see if it was food allergies and he said that it is celiac... I ate gluten free for a week and felt better, ate a piece of pizza and spent the eveing in the bathroom.

Can anyone tell me how accurate the blood test is, should I get other tests? The GI Dr. said that it is very accurate and won't do an endoscope, says it is IBS and wants a test to see how fast my transit time is which is like a matter of hours from mouth to, well you know... and GI Dr. says that I will have to be on lomotal for the rest of my life for the diarrhea... I don't like the sound of that. Should I go with the muscle testers diagnosis and just go gluten free?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted
Hello - I've been having digestive issues for at least 20 years and get bloated after eating even a small meal or snack. By the end of the day I look 6 months pregnant and feel very uncomfortable... This is all on and off until last december when I began having diarrhea after evey meal and then all day everyday sometimes 10-15 times per day. Had a colonoscopy april 3rd, all clear no problems and the blood test for celiac in negative, however I had muscle testing done to see if it was food allergies and he said that it is celiac... I ate gluten free for a week and felt better, ate a piece of pizza and spent the eveing in the bathroom.

Can anyone tell me how accurate the blood test is, should I get other tests? The GI Dr. said that it is very accurate and won't do an endoscope, says it is IBS and wants a test to see how fast my transit time is which is like a matter of hours from mouth to, well you know... and GI Dr. says that I will have to be on lomotal for the rest of my life for the diarrhea... I don't like the sound of that. Should I go with the muscle testers diagnosis and just go gluten free?

Peach.....any doctor that says you will have to be on medication for diarrhea for the rest of your life ought to have his medical license suspended! :huh:

Also, you cannot diagnose celiac disease through a colonoscopy but it's always the first thing they want to do. I am surprised he has refused the endo with all your symptoms and dietary response but that is typical, I'm afraid.

The blood tests.....while they can be extremely accurate for some (myself included), many, many people will test negative even with flaming Celiac Disease going on. However, if you have flaming symptoms and the tests are negative, that is still cause for suspicion for celiac disease/GS. Don't let them sell you that song and dance about IBS because IBS is not a diagnosis of anything. It just means you have a bowel problem and they haven't figured it out yet. I would advise another doctor if it really is important to you that you have a diagnosis from the medical profession. But seeing as they do such a bad job of it, do you think a longer dietary trial would be sufficient to convince you there's a problem with gluten?

Peach Newbie
Peach
Posted
  • Author
Peach.....any doctor that says you will have to be on medication for diarrhea for the rest of your life ought to have his medical license suspended! :huh:

Also, you cannot diagnose celiac disease through a colonoscopy but it's always the first thing they want to do. I am surprised he has refused the endo with all your symptoms and dietary response but that is typical, I'm afraid.

The blood tests.....while they can be extremely accurate for some (myself included), many, many people will test negative even with flaming Celiac Disease going on. However, if you have flaming symptoms and the tests are negative, that is still cause for suspicion for celiac disease/GS. Don't let them sell you that song and dance about IBS because IBS is not a diagnosis of anything. It just means you have a bowel problem and they haven't figured it out yet. I would advise another doctor if it really is important to you that you have a diagnosis from the medical profession. But seeing as they do such a bad job of it, do you think a longer dietary trial would be sufficient to convince you there's a problem with gluten?

Peach Newbie
Peach
Posted
  • Author

Gemini - That's funny that the first person to talk to me is Gemini, cuz I'm a Gemini!!! - Thank you for responding to my post... now I just need to learn how to go gluten free for life... easy for a week, but now it's time to get to work on what to eat, how to make it etc... this site has been such a help already... - Peach

ravenwoodglass Mentor
ravenwoodglass
Posted
Gemini - That's funny that the first person to talk to me is Gemini, cuz I'm a Gemini!!! - Thank you for responding to my post... now I just need to learn how to go gluten free for life... easy for a week, but now it's time to get to work on what to eat, how to make it etc... this site has been such a help already... - Peach

You have certainly found the right place to learn about gluten free living, welcome. I agree totally with Gemini. I am also one of the unfortunate ones who don't show up in blood work. That fact delayed my diagnosis by many years. Go ahead and give the diet a good shot, you have nothing to lose but your pain.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,028
    • Most Online (within 30 mins)
      7,748
    Jeannerie
    Newest Member
    Jeannerie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Suze046
      Alcohol

      By Suze046 · Posted

      Yeah I think my body is definitely telling me to lay off the alcohol I just don’t seem to agree with it right now but that might be because my gut is still trying to heal. 
    • Gwen myers
      Be sure to check out Celiac.com's Support Groups Listing

      By Gwen myers · Posted

      We are a couple with celiac trying to find a concierge doctor in Palm Beach Gardens/West Palm/ Jupiter area that has knowledge of celiac .  Help!
    • Mettedkny
      Searching for the source - anyone have problems with Crunchmaster crackers?

      By Mettedkny · Posted

      Thank you so much for your validation. I completely agree with you that the crackers COULD be the culprit even with very small trace amounts (less than 20ppm) and accumulating over time - I am at the point where I am about to request that my son gets retested to make sure that my "control subject" is still testing perfectly lol. I have a meeting with my celiac disease doc tomorrow and will run the crackers by him to see if he is willing to retest in a few weeks. I have not had any of them for the past 3 weeks so far, so fingers crossed, we can retest and hopefully find out if it is them. And no - I have been scouring EVERYTHING to make sure nothing else has changed. Only use gluten-free lip products and toothpaste so not there either (but very good suggestion). Thank you for validating me. I feel like many are just saying "you are not being gluten-free enough - but I do have a perfect 16 year track record that proves otherwise - so has to be something sneaky.
    • Mettedkny
      Searching for the source - anyone have problems with Crunchmaster crackers?

      By Mettedkny · Posted

      OMG thank you so much for validating me in my "craziness" of being on the hunt for the culprit in my case. "Unfortunately" I do not eat any of the foods you mention, but have stopped eating the crackers that are labeled certified gluten-free to see if they might be the problem. I did NOT know about chicken being injected with gluten liquid - that is horrible!  Hoping my doc will agree to retest after I have been off the crackers for a while. My biggest mystery is - why do I not have ANY symptoms of being cross contaminated or glutened? There is no damage (thank godness) to my villi, and normally I will get canker sores the moment something is even the slightest bit cross contaminated... the hunt continues and I will follow up once I find the answer. Glad you found yours! 
    • Winnie-Ther-Pooh
      Gluten found in Bob's Red Mill TVP using Elisa Technology test

      By Winnie-Ther-Pooh · Posted

      Fascinating, thanks! So Canada (at least in 2017) had changed the criteria for detection in oat products from 20 to 5ppm. If the regulation still stands in 2025 then that would mean that any product sold in Canada that contains oats and is claimed to be gluten-free must (theoretically) test less than 5ppm... 
×
×
  • Create New...