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Being Glutnened

JBaby

By JBaby
in Coping with Celiac Disease

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JBaby Enthusiast
JBaby
Posted

When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

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Salax Contributor
Salax
Posted

3 days for me. I feel ya. :( Hang in there. It will pass.

nutralady2001 Newbie
nutralady2001
Posted

I'm on my third day atm.

I haven't been glutened for months even when out but got glutened by c/c when out on Monday night.......it's been really miserable. The D has passed but still stomach cramps and pains so another quiet day but might be able to manage some pottering around the house catching up on things like washing

caligirl2001 Newbie
caligirl2001
Posted

At least 3 days, sometimes closer to a week. Hope you are better soon!

JBaby Enthusiast
JBaby
Posted
  • Author
When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

Glad I am not alone. I am feeling better. Went to bed at 7:30 last night, slept it off. Slept 11 hours. Mild headache but better than yesterday.

JBaby

ravenwoodglass Mentor
ravenwoodglass
Posted

My symptoms have a definate progression. The gut issues resolve with in about 3 days but for full resolution of all the other issues takes about 3 weeks.

mysecretcurse Contributor
mysecretcurse
Posted

I react to gluten in a variety of unpleasant ways.

Gut reaction (bloating, gas, pain, constipation): about 2 days

Mental reaction (depression, anxiety, irritability): 2-3 days

Skin reaction (the WORST by far, I get big red extremely painful cystic acne/Dh(?) on my face and scalp)2-3 WEEKS and sometimes a month to go away completely. That is why I am always devstated when I get glutened, the skin reaction is bad and it leaves scars. :(

My worst reaction ever was one time I ate a lot of gluten by mistake (stupid, stupid me!). I had just started eating meat again after being veggie for 3 years and I ate a plateful of tyson chicken strips and rice. Being that I was a vegetarian before I had just assumed all non-breaded meat was gluten free. I had no idea, and God did I pay for it. I thought I was just dying or something until a day later my mom ran in and said that she found out the chicken I ate had wheat in it.

It was terrible, very bad mental issues, I couldn't even think my brain felt like mush, also it did something to my thyroid or something with my circulation, because my entire body felt like ice and I would just shiver and shiver. I had to take hot baths all throughout the day to try and stay warm. Also I broke out in the painful rash all over, it sucked. That time it took a month to go away and I will never be so careless ever ever again!

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emcmaster Collaborator
emcmaster
Posted

It depends how often I've been glutened recently. If it's been a while and I've healed from the last time, it might only last a week and after that I'll feel completely fine. If it hasn't been a while, it's about a week of really bad symptoms and then I'll have a couple bad days a week for the next several weeks before it runs its course.

loco-ladi Contributor
loco-ladi
Posted

Chalk me out of commision for a week most times, I cant even concider going to work for at least 3 days.

rubyred Apprentice
rubyred
Posted

For me it's usually at least 2 days, sometimes up to 4 or 5 depending on how much I eat. Usually, I only get glutened from CC issues so it mostly only lasts a couple days. For me, the worst is the horrible gas and D. Sometimes the gas happens within a couple hours but sometimes it doesn't show up until the next day. Then every time I eat anything, my stomach rumbles and feels unsettled and I have to rush to the bathroom (usually at least 5-6 times by lunchtime). Also, I get depressed/irritable. Sometimes I bloat and get stomach pain. Sometimes I get really tired.

Does anyone else find that their reactions tend to be slightly different each time? I don't mean reaction time, but actual symptoms that come?

samcarter Contributor
samcarter
Posted

For me it seems to depend on how much I ate. I had some Rice Dream frozen dessert that, after I ate it, I realized had barley malt sweetener in it. Within a few hours I had a nasty, horrible sinus headache. I hadn't had any dairy that day, so I know that wasn't it. The headache lasted all night and this morning was gone. Since the barley malt was only an ingredient int he carob chips in the ice cream, it probably wasn't a whole lot.

But I may wake up tomorrow with horrible constipation, so who knows.

If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two.

mysecretcurse Contributor
mysecretcurse
Posted
If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two

Dang. I think if I ate a piece of bread I'd honestly probably die.

emcmaster Collaborator
emcmaster
Posted
Dang. I think if I ate a piece of bread I'd honestly probably die.

What I find perplexing is that if I actually eat a piece of bread, my reaction is only slightly more severe than if I get glutened through CC. Strange.

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
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      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
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    • marion wheaton
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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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