Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutnened

JBaby

By JBaby
in Coping with Celiac Disease

Recommended Posts

JBaby Enthusiast
JBaby
Posted

When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Salax Contributor
Salax
Posted

3 days for me. I feel ya. :( Hang in there. It will pass.

nutralady2001 Newbie
nutralady2001
Posted

I'm on my third day atm.

I haven't been glutened for months even when out but got glutened by c/c when out on Monday night.......it's been really miserable. The D has passed but still stomach cramps and pains so another quiet day but might be able to manage some pottering around the house catching up on things like washing

caligirl2001 Newbie
caligirl2001
Posted

At least 3 days, sometimes closer to a week. Hope you are better soon!

JBaby Enthusiast
JBaby
Posted
  • Author
When you have or had been glutenend accidently, how long did your symptoms last? I am going on past 24 hrs. Stilll nauseated, irritable. Belly hurt last night but it diminished. IIn credibly tired, went to work 2 hours late and lft and hour and half early. I am hungry but feel too sick to put anything inmy tummy.

JBaby

Glad I am not alone. I am feeling better. Went to bed at 7:30 last night, slept it off. Slept 11 hours. Mild headache but better than yesterday.

JBaby

ravenwoodglass Mentor
ravenwoodglass
Posted

My symptoms have a definate progression. The gut issues resolve with in about 3 days but for full resolution of all the other issues takes about 3 weeks.

mysecretcurse Contributor
mysecretcurse
Posted

I react to gluten in a variety of unpleasant ways.

Gut reaction (bloating, gas, pain, constipation): about 2 days

Mental reaction (depression, anxiety, irritability): 2-3 days

Skin reaction (the WORST by far, I get big red extremely painful cystic acne/Dh(?) on my face and scalp)2-3 WEEKS and sometimes a month to go away completely. That is why I am always devstated when I get glutened, the skin reaction is bad and it leaves scars. :(

My worst reaction ever was one time I ate a lot of gluten by mistake (stupid, stupid me!). I had just started eating meat again after being veggie for 3 years and I ate a plateful of tyson chicken strips and rice. Being that I was a vegetarian before I had just assumed all non-breaded meat was gluten free. I had no idea, and God did I pay for it. I thought I was just dying or something until a day later my mom ran in and said that she found out the chicken I ate had wheat in it.

It was terrible, very bad mental issues, I couldn't even think my brain felt like mush, also it did something to my thyroid or something with my circulation, because my entire body felt like ice and I would just shiver and shiver. I had to take hot baths all throughout the day to try and stay warm. Also I broke out in the painful rash all over, it sucked. That time it took a month to go away and I will never be so careless ever ever again!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


emcmaster Collaborator
emcmaster
Posted

It depends how often I've been glutened recently. If it's been a while and I've healed from the last time, it might only last a week and after that I'll feel completely fine. If it hasn't been a while, it's about a week of really bad symptoms and then I'll have a couple bad days a week for the next several weeks before it runs its course.

loco-ladi Contributor
loco-ladi
Posted

Chalk me out of commision for a week most times, I cant even concider going to work for at least 3 days.

rubyred Apprentice
rubyred
Posted

For me it's usually at least 2 days, sometimes up to 4 or 5 depending on how much I eat. Usually, I only get glutened from CC issues so it mostly only lasts a couple days. For me, the worst is the horrible gas and D. Sometimes the gas happens within a couple hours but sometimes it doesn't show up until the next day. Then every time I eat anything, my stomach rumbles and feels unsettled and I have to rush to the bathroom (usually at least 5-6 times by lunchtime). Also, I get depressed/irritable. Sometimes I bloat and get stomach pain. Sometimes I get really tired.

Does anyone else find that their reactions tend to be slightly different each time? I don't mean reaction time, but actual symptoms that come?

samcarter Contributor
samcarter
Posted

For me it seems to depend on how much I ate. I had some Rice Dream frozen dessert that, after I ate it, I realized had barley malt sweetener in it. Within a few hours I had a nasty, horrible sinus headache. I hadn't had any dairy that day, so I know that wasn't it. The headache lasted all night and this morning was gone. Since the barley malt was only an ingredient int he carob chips in the ice cream, it probably wasn't a whole lot.

But I may wake up tomorrow with horrible constipation, so who knows.

If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two.

mysecretcurse Contributor
mysecretcurse
Posted
If i ate a piece of bread, I'd be vomiting within an hour, and feeling horrible for a day or two

Dang. I think if I ate a piece of bread I'd honestly probably die.

emcmaster Collaborator
emcmaster
Posted
Dang. I think if I ate a piece of bread I'd honestly probably die.

What I find perplexing is that if I actually eat a piece of bread, my reaction is only slightly more severe than if I get glutened through CC. Strange.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

      Thanks to those who have replied. To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia. Generally feeling unwell. To Trents, We didn’t do any of the construction but did v...
    2. Kirita
      - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant b...
    3. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
    5. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,285
    • Most Online (within 30 mins)
      7,748
    Kenny Waites
    Newest Member
    Kenny Waites
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      Brain fog

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Feel like I’m starting over

      By trents · Posted

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.