Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened At A Wedding?


Billygean

Recommended Posts

Billygean Apprentice

Hi all

I've been gluten-free for almost a year. I reintroduced dairy successfully in about December 08 and I've been feeling pretty well lately. I suffered with quite bad chronic fatigue prior to giving up gluten.

I went to a wedding on Saturday. I felt fine on Sunday but possibly didn't get enough sleep, although my body hasn't rebelled this much in a long time.

Basically today I can't do anything, when I do anything I get dizzy and sweat and my whole body feels heavy, same old Chronic Fatigue story. No diarrhea yet, but my stomach's been off, lots of wind etc but that isn't uncommon for me.

The people at the wedding knew about coeliacs and CC, and assured me it had all been cooked separately. They made me a separate soup, and fruit salad for dessert. The main was Chicken stuffed with sun dried tomatoes and mozarella in a white wine sauce. Other people's sauce contained wheat flour but mine was cooked without it, and separately.

I can't think where I could have been glutened from but unless I have a flu coming I'm stumped as I've been feeling really good. I am new to being 'glutened'. I did a challenge in Nov 08 and it went very badly, I felt like this basically but with added diarrhea. I do still have blip days but not had one like this for ages, so while I don't want to blame the gluten in case I've overdone it etc, I'm stumped really. Could it have been the meal?

BG


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hannahp57 Contributor

It could have been the meal or it could be a bug. i would give it a day or two. if you're better tomorrow then it probably was gluten because i have never had symptoms from being glutened last more than two days.

What did you eat on sunday?

I t could be that even though they were careful it could be slight cross contamination. This is just a thought but i react to MSG even though it is on the safe list some people cannot tolerate it. If i eat something with MSG in it i get the fatigue, slight gas or a kind of heart burn feeling. The fatigue is the worst though. And since it is considered safe some part of your gluten free meal could have that particular ingredient.

Billygean Apprentice

On Sunday I ate gluten-free bread that I took myself to the hotel, with cheese and onion at my dad's house which is not gluten-free but i used a fresh knife and put my toast on some new foil under the grille. Then we had steak, potatoes and salad and the only dressing I had were mayo and ketchup, which are both certified gluten free.

YoloGx Rookie

It could have been CC from someone having touched gluten before preparing your dish--or after in setting it down. etc. unfortunately. Or even the plate or cookware having old baked in gluten... For all that, sundried tomatoes could be suspect in that regard...

Bea

ang1e0251 Contributor

Did your white wine sauce have dairy? Lots of sauces do. And the other poster is right, crumbs are around the kitchen and CC can happen easily, even off the server.

You said you had ketchup and mayo. Were those your containers or could someone have used them before you?

JNBunnie1 Community Regular
It could have been the meal or it could be a bug. i would give it a day or two. if you're better tomorrow then it probably was gluten because i have never had symptoms from being glutened last more than two days.

I personally have a reaction that lasts longer than two weeks, so that may not be a good gauge.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,690
    • Most Online (within 30 mins)
      7,748

    Aless25
    Newest Member
    Aless25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.