Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can This Be Happening?

Lexi

By Lexi
in Related Issues & Disorders

Recommended Posts

Lexi Enthusiast
Lexi
Posted

I FEEL so CRAZY!! I have been to SO MANY doctors and none of them can figure out what is going on with me. My health has been one big Nightmare over the past year!! I hope someone can say they relate. I was diagnosed with Celiac Disease about 2 years ago now. I was also just recently diagnosed with Fibromyalgia, and candida. I have a lot of muscle pain and back pain, and a whole long list of other problems. Anyway, I finally got serious about treating the candida because I am so sick all of the time. I started taking Flucanazole and some really good probiotics. I also tried some activated charcoal. Anyway, ever since starting the Flucanazole, I have had the worst back and muscle pain of my life. My back spasms constantly, and the pain radiates up my spine and into my shoulders and neck. My lower back is so bad that I can barely walk. I have always had pain in these areas, but NEVER so BAD!! I am going crazy from the pain - even on really strong pain medicine. Does anyone think that this could possibly be from the medicine or die off symptoms, or is this a fluke? I have been unable to care for myself or my kids from 5 days now, and can take it no longer. I am going to stop the flucanazole tonight. The problem is that I feel like I am NEVER going to get rid of this yeast problem now. My gynecologist is the one who prescribed the medicine, and my family Doctor advised me not to take it because she said that this whole yeast thing is just in people's heads. She told me to quit worrying about yeast, and focus on my other medical problems. I couldn't believe she said that because I really did like her as my Doctor. I had also tried Candex and Yeast Cleanse with no results. I am going to a rhematologist on Thursday. Anyway, has anyone else ever had such a bad reaction to flucanazole? I am just praying that by stopping the medicine that I can get some pain relief. If not, I don't know what to do next.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nasalady Contributor
nasalady
Posted
I FEEL so CRAZY!! I have been to SO MANY doctors and none of them can figure out what is going on with me. My health has been one big Nightmare over the past year!! I hope someone can say they relate. I was diagnosed with Celiac Disease about 2 years ago now. I was also just recently diagnosed with Fibromyalgia, and candida. I have a lot of muscle pain and back pain, and a whole long list of other problems. Anyway, I finally got serious about treating the candida because I am so sick all of the time. I started taking Flucanazole and some really good probiotics. I also tried some activated charcoal. Anyway, ever since starting the Flucanazole, I have had the worst back and muscle pain of my life. My back spasms constantly, and the pain radiates up my spine and into my shoulders and neck. My lower back is so bad that I can barely walk. I have always had pain in these areas, but NEVER so BAD!! I am going crazy from the pain - even on really strong pain medicine. Does anyone think that this could possibly be from the medicine or die off symptoms, or is this a fluke? I have been unable to care for myself or my kids from 5 days now, and can take it no longer. I am going to stop the flucanazole tonight. The problem is that I feel like I am NEVER going to get rid of this yeast problem now. My gynecologist is the one who prescribed the medicine, and my family Doctor advised me not to take it because she said that this whole yeast thing is just in people's heads. She told me to quit worrying about yeast, and focus on my other medical problems. I couldn't believe she said that because I really did like her as my Doctor. I had also tried Candex and Yeast Cleanse with no results. I am going to a rhematologist on Thursday. Anyway, has anyone else ever had such a bad reaction to flucanazole? I am just praying that by stopping the medicine that I can get some pain relief. If not, I don't know what to do next.

Lexi, I'm so sorry that you're having these problems. I don't know if my experiences will help or not, but I too have fibromyalgia. The area in which the pain is worst is my back. I've been in a wheelchair for several months now because if I try to walk more than a few yards or stand more than a few minutes I end up with excruciating pain in my back. My son-in-law also has fibro, and his back is his worst spot too.

I keep hoping that the longer I am gluten free, the better I'll feel, and in many areas that's true, but as for my back pain, that's not getting better. Yet.

The back and neck pain you're experiencing is fairly typical for fibro, according to what I've heard. I don't know if it's related to your medication. Some meds can make it worse, I know. My fibro pain has, at times, become so incredibly bad that it actually hurts to breathe.

The side effects of flucanazole as listed on www.drugs.com are:

Common side effects: changes in taste; diarrhea; dizziness; headache; nausea; stomach pain; vomiting.

Uncommon/dangerous side effects: severe allergic reactions (rash; hives; itching; difficulty breathing; tightness in the chest; swelling of the mouth, face, lips, or tongue); dark urine; diarrhea; fever; hoarseness; irregular heartbeat; scaly, red skin over a large portion of the body; seizures; sore throat; swelling of your hands; unusual or severe stomach pain; unusual tiredness; yellowing of the eyes or skin.

So it doesn't sound as though the flucanazole is the problem, but you never know. Different people have different reactions.

I do understand....it took me many years and about 10 different doctors before I finally put all of the puzzle pieces together. I have seven different autoimmune diseases plus fibromyalgia. I'm dealing with it the best way I know how.

I hope you find some answers soon; you're in my thoughts and prayers....

JoAnn

YoloGx Rookie
YoloGx
Posted

I've had a tough time getting rid of the yeast too. Recently I went off all grains and fruit except for lemons (I sweeten them with stevia to make lemonade). It seems to be making a big difference. I have been using squash as an alternative to grains. I recently read something about the official Specific Carbohydrate Diet. It looks like it could help--they say its very good against both candida overgrowth and fibromyalgia as well as celiac and other auto immune conditions. Unfortunately I am allergic to some of its mainstays like fruit and nuts however...So I tread a middle ground between the specific carbohydrate diet and the paleo diet plus my own additions and subtractions.

As far as the flucanozole--by going off it you should be able to tell if its the drug getting you or not. It also just might be too strong for you at this time. Perhaps take half doses? I personally think natural is better but sometimes one doesn't have the patience for natural. I have had intense die off symptoms with anti yeast drugs myself. Whatever path I have taken with this, the first five days are the worst. It then seems to taper off...So maybe don't be premature in giving up your battle with this. Plus I highly suggest exercise as a way to counteract this, plus detox herbs I have suggested elsewhere on this forum. And lots of water. Saunas could help too...

Bea

Tigertail Newbie
Tigertail
Posted

Hi Lexi, I don't know if this will help you but it is worth a try. I have been having your exact same problems plus a long list of others, but as for your yeast you might want to go to a dermatologist. I have yeast problems really bad, so when I started taking some fungal medications for a fungal problem in my sinuses I just thought it was a worse yeast infection but it wasn't. I went to my dermatologist and found out that it was a "Fixed Drug Eruption" from the fungal medication. My body is just getting sick of all the medications and is now fighting back by causing me to break out with what resembles a horrible yeast infection but is not. It has now happened with other medications and as soon as I stop them it starts getting better. No other doctor, not even my gynecologist knew this, it was my dermatologist. Good luck and I hope you can get this taken care of because if you have this as bad as I think you do, then you are miserable. I know I was. Take care, Lacey

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    2. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    3. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    4. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    5. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748
    Heather8280
    Newest Member
    Heather8280
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.