Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My List Of Ailments Has Just Increased..again


jasonD2

Recommended Posts

jasonD2 Experienced

I am going to an oral pathologist next week because i think i have lichen planus. 2 weeks ago i had a bad stinging pain which i thought was just a canker sore, but it later turned into a much larger inflammation and it hasnt gotten better, even though the pain has subsided. If i am diagnosed with this now i have to worry about developing oral cancer because from what i hear its like chrohn's disease of the mouth. so here's my list:

1. IBS-C

2. Food sensitivities

3. gluten/lactose intolerance

4. weak bladder/prostate problems

5. anal fissure

6. anal fistula

7. hemmorhoid

8. Dry mouth

9. compressed disc in lower back

10. anxiety (because of all of the above)

Im only 34 years old and I now have to live with all of this. I'm falling apart and if im lucky maybe ill make it to 40 before a new ailment arises.

I feel so helpless and confused as to why i keep developing new problems. this isnt the life i wanted for myself

sorry for sounding like a wuss & thanx for allowing me to vent


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor

I hear you. It's okay, don't feel like a wuss.

I have a huge list of problems as well, and it seems like the only way I can keep them under control is by living the strictest life ever. SO many things bother me or make me sick it's ridiculous. I definitely feel your frustration. Just keep trying to heal, it's all we can do. *hug*

Mother of Jibril Enthusiast

Hi Jason,

Numbers 1, 2, 3, 4, and 8 could all be related to a mast cell problem. Have you ever heard of interstitial cystitis? It's when you constantly have to go (or at least feel like you need to go)... and it's caused by an overabundance of mast cells in your urinary system.

Open Original Shared Link

Numbers 5, 6, and 7 are probably caused by the constipation :( Have you ever seen a GI doctor? I had an endoscopy on Tuesday to check for "mastocytic enterocolitis"

Open Original Shared Link

This condition is often associated with diarrhea, but it can also go the other way into constipation (which is my problem). I thought for sure the gastroenterologist was going to say "IBS."

I can't say anything about the compressed disc ;) but maybe your other symptoms have something in common... and can be treated by the same means (like antihistamines). I was really surprised when I started taking antihistamines on a daily basis that my dry mouth, dry eyes, and abdominal pain actually improved... especially with the H2 antihistamine (Pepcid, Zantac, Tagamet, etc...). You might even want to contact Scot Lewey about it... his information is towards the bottom of the second link.

Raynee Rookie
I am going to an oral pathologist next week because i think i have lichen planus. 2 weeks ago i had a bad stinging pain which i thought was just a canker sore, but it later turned into a much larger inflammation and it hasnt gotten better, even though the pain has subsided. If i am diagnosed with this now i have to worry about developing oral cancer because from what i hear its like chrohn's disease of the mouth. so here's my list:

1. IBS-C

2. Food sensitivities

3. gluten/lactose intolerance

4. weak bladder/prostate problems

5. anal fissure

6. anal fistula

7. hemmorhoid

8. Dry mouth

9. compressed disc in lower back

10. anxiety (because of all of the above)

Im only 34 years old and I now have to live with all of this. I'm falling apart and if im lucky maybe ill make it to 40 before a new ailment arises.

I feel so helpless and confused as to why i keep developing new problems. this isnt the life i wanted for myself

sorry for sounding like a wuss & thanx for allowing me to vent

My sister and mother both had lichen planus a few years ago. It is usually a rash red and bumpy, very itchy, on the lower legs. It also affects the feet - peeling and redness. It normally resolves after it runs its course. You can get lichen planus affecting the mouth as well. Sometimes but not often it can be related to hepatitis. Neither had that and rash has been gone and never returned for a few years now. I hope that makes you feel a little better.

jasonD2 Experienced

Ive heard a few people mention that pepcid ac helps with a variety of symptoms - is that really true? can it help with constipation? seems like if you're inhibiting acid then you are further compromising your digestion

Mother of Jibril Enthusiast
Ive heard a few people mention that pepcid ac helps with a variety of symptoms - is that really true? can it help with constipation? seems like if you're inhibiting acid then you are further compromising your digestion

Just my personal experience here... I've been taking the maximum OTC dose every day for about two months (sometimes an extra 20mg in the afternoon).

Pepcid AC helps a lot with my abdominal pain. I can tell when the dose is wearing off. I can't really say that it helps the constipation, but it doesn't make it worse either! I was worried about that.

Histamine is what tells your stomach to produce acid, so the way Pepcid (and the other H2 blockers) work is by blocking the histamine receptors in your GI system. But... too much histamine can cause nasty side effects like abdominal pain, diarrhea, heartburn, and ulcers. WAY too much histamine can do even worse things like causing chronic hives (internally/externally) and anaphylaxis.

It might be worth a quick try. Generic Pepcid (famotidine) is really cheap. I noticed a difference within the first few days after I started taking it. BTW... I wouldn't go the "fiber" route :ph34r: (the pressure in your intestines might cause even more pain) but have you tried magnesium or vitamin C?

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748

    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.