Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scope Coming Up Really Nervous


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

I have to have the colonoscopy that they couldn't complete a few years ago due to inadaquate anesthesia and a twisted colon. Not something I can put off any longer as my 'lumpy gut' has traveled and although I have no digestive symptoms things are getting uncomfortable. Anyway my last experience was horrible. I had a reaction to the prep and the twilight drug they gave me didn't work. The whole thing was a nightmare.

This time there will be an anesthesiologist there and they are putting me completely out.

My questions are these:

I plan on going on a liquid diet for 3 days before hand, the doctor only said 1 but I think the prep will be easier if I have less solid food in my gut. I am not worried about getting hungrey, I almost never do, but I am wondering if anyone knows of a gluten and soy free meal replacement? I am not a big juice drinker but if I have to I will go with just juice and broth but the first 2 days I'd like to have a protein source.

Also has anyone ever taken Moviprep? This doctor said it requires less liquid to be drunk and will be easier on my system than the GoLightly and Dulcolax combo the other doctor gave me. A nurse suggested I put a packet of Crystal Light in it, does anyone know if that is gluten free?

One last off topic note- this new GI doctor seems really knowledgable about celiac. He is the only doctor I have ever talked to who would admit that the testing leaves much to be desired and stated that he reccommends a trial on the diet for people even if blood and biopsy are negative if they have celiac related symptoms. He also said he diagnoses a lot of celiacs. My last Gi stated he almost never saw any. Boy am I glad I switched to this doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor

Hi!

I don't know anything about the prep part because I've never had a colonoscopy before...however I think the 3 day liquid diet is a good idea, makes sense!

Crystal Light, to my most recent knowledge, is gluten free. It's a Kraft brand and they will clearly state ingredients so you should be okay with that...it IS yummy stuff! :)

Good luck with your scope!! :)

GFinDC Veteran

Hi Ravenwood,

I never done did that colonscopy thing, but my sister did not long ago. She seemed to think it was not too big a deal. She did both the endo and colon the same day. My sister isn't a member on the board though.

Here is recent thread about the juice that might help.

Preparing My Self For Movi-prep..... Poop Juice...

https://www.celiac.com/gluten-free/index.php?showtopic=57647

I hope it goes well for you. Sis said she just had a little soreness in the throat afterwards.

nutralady2001 Newbie

I've had both scopes done, can't help you with prep as am in Australia and can't remember the names

The whole thing though wasn't as "scary" as I thought it would be, neither the preparation nor the actual procedures. One minute I was awake in the room they were doing the scopes in, the next I was waking up back in recovery LOL

Lisa Mentor

Smart Water from Glaceau it really good. It's vapor distilled water plus electrolytes which might be helpful.

I wish you well and hope that things go smoothly. Mine was a breeze, but the prep was BLA.

TrillumHunter Enthusiast

The Special K20 protein water is gluten-free. Maybe you could try that?

The prep is very unpleasant. I think the liquid diet is a great idea beforehand. If you can stand it, you might go low residue the week before as well. Also, my dr said once what's coming out looks the same as what went in, you can stop. As far as the procedure, it's one of those things that SHOULDN'T be complicated.

Best wishes for your good health!

ravenwoodglass Mentor

Thanks for the replies. I'll get some of the waters that were mentioned and give them a try. This will be my third scope. The first was a breeze, the second was a nightmare. I do so hope that this one goes as smoothly as the first one. I noticed when I got the records from the doctor that did the first two that he failed to include the dulcolax in the records, although I have the original prep papers that said I had to take it. I am hoping the reaction I had was to the dulcolax, pretty sure it was as I wan't sick for weeks after the first one.

I am off to look for info on low residue foods and at this point I am really thankful for the alprazolam, I don't think I could even consider this without it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Puddy Explorer

The actual test itself was no problem for me. I was out like a light. But I did have a pretty scary reaction to the prep the night before. I thought my husband was going to have to take me to the emergency room. I had to take Miralax and Dulcolax. When I told the doctor the next day she said some of her other patients had a bad reaction to the Dulcolax. Since then, my friend had her colonoscopy with the same doctor I used and said that they had switched over to the MoviePrep Same thing with my sister and her doctor. She used the Dulcolax method the first time and the 2nd time, they had her take MoviePrep. I'm sure you'll be fine now that you don't have to take the Dulcolax. Good Luck!

JNBunnie1 Community Regular

I only have one suggestion. If you're going to be on a liquid diet for that long, I would purchase some whey protein and use that, not any premade shakes. Much more 'food-like' than most of that other stuff. Oh, and you may want to buy some desitin, because with all the liquid your 'output' will be very acidic, and you'll want something.... soothing.

If it makes you feel any better, I was awake for my colonoscopy. The nurses thought I was hilarious. Seriously lovely drugs.....

kerds Newbie
I only have one suggestion. If you're going to be on a liquid diet for that long, I would purchase some whey protein and use that, not any premade shakes. Much more 'food-like' than most of that other stuff. Oh, and you may want to buy some desitin, because with all the liquid your 'output' will be very acidic, and you'll want something.... soothing.

If it makes you feel any better, I was awake for my colonoscopy. The nurses thought I was hilarious. Seriously lovely drugs.....

Are you a young person? Have you done without solid food that long and not gotten weak? maybe my concerns are coming from my last colonoscopy prep weakness. Of course I had been having much BIG D!! Just concerned for you. Rots o Ruck...kerds

ravenwoodglass Mentor

Thanks for the replies. I ended up just eating very lightly and low residue foods rather than a full fast. Although the Moviprep was expensive I do not seem to have had any nasty reactions to it, well other than what it is supposed to do. :D I had the procedure today and they used an anesthesiologist and put me out this time. The hardest part was waiting for the procedure to be done, they had an emergency with the person right before me so it wasn't anything that could be prevented but by the time they get the IV line in and your on the gurney time just seems to drag. I am glad I stopped putting it off as they did find and remove a polyp (which is at the lab of course) and the longer those things are growing the higher chance of developing colon cancer.

Puddy Explorer

Glad everything went well and you don't have to worry about that anymore!

Lisa Mentor

Also glad everything went well. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    2. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,276
    • Most Online (within 30 mins)
      7,748

    Sandra Hawn
    Newest Member
    Sandra Hawn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.