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Will Celiac Ever Be A Trait And Not A Disease?

foodiegurl

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foodiegurl Collaborator
foodiegurl
Posted

I just hate that Celiac is a disease, it is so depressing. If so many people have it, 1 in 133, and many people are being diagnosed as kids, it seems it would be more of a genetic trait than a disease.

I just hate saying "I have celiac disease", and always drop off the disease part. I don't want to be thought of as sick, especially if I am someone who sticks to being gluten-free 100%.

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foodiegurl Collaborator
foodiegurl
Posted
  • Author

no one else feels the same way?? :unsure:

psawyer Proficient
psawyer
Posted

Weekends are quiet here, and Sundays more so.

I have heard of one person who refers to it as "the celiac difference."

I also know somebody who says that if you follow the gluten-free diet carefully, then you no longer have celiac disease--you are cured.

I guess that it is a matter of semantics and is open to discussion.

For those of us who know, it is a "choice" that enables us to lead a normal life.

hannahp57 Contributor
hannahp57
Posted

i totally agree.. i almost never say celiac disease if i dont have to. i leave it at "im gluten intolerant" usually

i think if it was ever a trait it would be like having a risk for heart disease..that's still a disease but noone is going to look at that like a trait either... either you're at risk (your family has a history of it) or you HAVE it... or you dont at all. i hope what i am saying makes sense...

lizard00 Enthusiast
lizard00
Posted

I hate it, too, to say I'm 'diseased'.

On the other hand, the word disease catches people's attention. People took me seriously to begin with, but you throw the word disease at them... it's not just some diet that you're doing to lose weight or for attention.

I'm not sure it would ever change. It's an autoimmune reaction to a normal food substance. So, in that respect, I don't know if the medical community would change it's terminology. But, maybe as awareness continues to grow, another term will be coined. It's like having 'the sugar(s)', instead of diabetes. (At least in the south anyway. NO ONE has diabetes here. They all have 'the sugar(s)' :lol: )

GFinDC Veteran
GFinDC
Posted

You could try saying "I have non-tropical sprue" instead. That is kind of exotic sounding terminolgy by comparison.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

NO ONE has diabetes here. They all have 'the sugars' :lol: )

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pele Rookie
pele
Posted

I absolutely agree with you. And I don't feel that celiac is a disease. I think of it as a natural reaction to poison. There are those who say that the whole disease thing is a precursor to medical "treatment' in the form of pills.

mushroom Proficient
mushroom
Posted

Well, I never refer to it as a disease; I just say I am a celiac (don't know that for sure, but prove I'me not!!!haha) and that's that. If someone questions, it is gluten intolerance that makes me sick.

lizard00 Enthusiast
lizard00
Posted
So we have "The Flours" :)

LOVE IT!!! :lol::lol:

ang1e0251 Contributor
ang1e0251
Posted

In a restaurant or potluck dinner, I say I have some very serious food allergies. That gets peoples' attention and they can understand it. With my family or someone who may have the same condition, I do say celiac disease because they already don't understand it. They need to hear the seriousness of the word "disease" to take my limitations seriously. My sister just blows me off. I think she's secretly afraid she has it. She doesn't take her diabetis very seriously, IMO, so why should she follow what I'm trying to tell her? My Mom kind of understands but just now in discussing a restsurant she said that I'm kind of picky about my food. I said "picky?" you say that like I have a choice. I know she wants to understand but it's so complex it's just kind of too much for her.

Sorry, this got off to a rant. That phone call bugged me.

cmom Contributor
cmom
Posted

Yeah, I have a MIL that continually says that I "won't" eat certain things, but never I "can't" like she thinks I'm trying to get attention. She gets aggravated when we take her somewhere and don't stop to eat. My DH has said several times that I can't just anywhere and she always says, "Well, she can eat green beans and corn....blah blah blah". And sometimes I do take chances, just to keep down the peace. She just doesn't get the whole cross-contamination thing. She also usually watches every bite of food I put in my mouth... :angry:

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    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

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      My only proof

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