Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue


Nancy Kotlowski

Recommended Posts

Nancy Kotlowski Apprentice

I have a real quick question. Do any of you or did any of you suffer from issues with fatigue? My husband has Celiac and for the past 5 years it has gotten worse. He sleeps alot. He has been glutten free for 1 month and it seems to be worse then before the gluten-free eating. Has anyone else noticed that? Any advise?

Thanks and have a great day!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



digmom1014 Enthusiast

I think the 1st 3 months are the hardest. You are getting used to what you can and can't have. My experienced was feeling less tired at about 6 months.

Ariauna Apprentice

It has been 3 months for me after spending at least 3 years killing myself and I still find myself needing an afternoon nap a few times a week. It is getting better but of course when I have an accident with gluten it sets me back for about a week. I have been doing good though only 2 glutens in 3 months so I am getting there lol.

Good luck to you and your husband, just be patient and continue to support him through the beginning months I think you will be happy when you get to the other side!! :)

OptimisticMom42 Apprentice

I've been gluten free since March, so about four months. Until the last couple weeks it felt like I really needed those healing naps on my days off and I was in bed at 9pm. Now I'm working 10 hour days and staying up until about 11pm. I'm still not planning fun things to do on my days off or jumping right into my chores like I need to but I'm awake.

angieInCA Apprentice

Debilitating Fatigue took control of my life for years before my diagnosis. It also took several months before I even started to feel close to normal. About 3 months ago I started getting bi-weekly B-12 injections which has helped tremendously. I also take 1mg of folicate acid daily and a daily dose of SAM-E.

Also, remember that he is dealing with a life changing diagnosis and he may go through a period of depression which can cause you to shut down and want to sleep. I know I went through a period of mourning which is very normal.

Nancy Kotlowski Apprentice
Debilitating Fatigue took control of my life for years before my diagnosis. It also took several months before I even started to feel close to normal. About 3 months ago I started getting bi-weekly B-12 injections which has helped tremendously. I also take 1mg of folicate acid daily and a daily dose of SAM-E.

Also, remember that he is dealing with a life changing diagnosis and he may go through a period of depression which can cause you to shut down and want to sleep. I know I went through a period of mourning which is very normal.

Thank you all for you great advise. I cannot imagine having to give up stuff like people on a gluten-free diet. Kudos to you all!!

lovegrov Collaborator

It took about 10 months for me to get back to normal. If your husband remains strictly gluten-free, the fatigue will go away.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

B-12 also helped me a lot. I take a pill that dissolves under my tongue. I believe the brand is Nature Made and it states gluten free on the bottle.

Billygean Apprentice

Fatigue was my only real symptom, I didn't sit up for 6 months after a bout of mono, I was so debilitated. It took about 3 months of gluten free to get back to anywhere near 'normal' and even now, a year after gluten free, I still sleep for ten hours every night and nap sometimes too! it does get better though, a baby step every day

BG

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.