Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Discrimination

KSUmarlow04

By KSUmarlow04
in Publications & Publicity

Recommended Posts

MissyJoy Rookie
MissyJoy
Posted

I for one am very proud of you! This is your own personal battle, but we are all rooting for you! And you are setting a good example for the rest of us. Thank you. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KSUmarlow04 Newbie
KSUmarlow04
Posted
  • Author

THANK YOU everyone for your support. I checked this website everyday because it gave me the courage to keep arguing.

Although I got my exemption, I have not gotten my refund yet. I will keep an eye on that and call in a few days if it doesnt show up. My mom and I are going to whole foods for a gluten free food shopping spree when I get my money back!

I also wanted to let everyone know that the University newspaper contacted me about doing an article on the difficulties I had with getting the exemption. They are calling me tomorrow morning (8/13) for a phone interview and my article is going to be in the first issue of the school year which I will post on here for everyone to see! I do not want this article to be bashing the school for what they put me through but rather an opportunity to raise awareness to the community at KSU. Although my school paper only reaches the 20,000 people who attend KSU, I still feel a sense of accomplishment and will have pride in the article.

Thanks again and I cant wait for everyone to read my article next week!

jerseyangel Proficient
jerseyangel
Posted

Wow--good going and congratulations!! :D I'm so glad they finally did the right thing.

Mskedi Newbie
Mskedi
Posted
FINAL UPDATE: I DID IT!!

Awesome! Hopefully you've set a precedent so that other people with Celiacs or allergies will not have to go through all the trouble you did.

I look forward to reading that article. :)

Takala Enthusiast
Takala
Posted

I also look forward to reading it. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

I am so glad this has turned out well for you. I was appalled at what they were trying to do to you. When my DD entered college in Mass in 2004 not only did they excempt her from the meal plan they even put her in senior housing so she would have her own kitchenette. Silly me thought all colleges would be as accomodating. You showed a lot of strength in fighting so hard for your rights, you should be proud of yourself for that. I hope your last semester goes well and I look forward to reading the article.

RESO Apprentice
RESO
Posted

I keep seeing these abbreviations, dd, ds, dh... I guess the second letter is daughter, son, husband? But what is this first d? darling? doofus? dear? deer? dainty? deliberate? disconcerting? :D Thanks if someone can explain.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ahorsesoul Enthusiast
Ahorsesoul
Posted

I am so proud of you for standing up for yourself. I think you will find that this will be a building block that will help you all your life! I hope the paper will let you share your story with this board.

RESO, the "d" can stand for all of those (or others) depending on how well you like the person that day. lol

usually stands for "darling" in my circle.

This site has a good listing for reference:

Open Original Shared Link

KSUmarlow04 Newbie
KSUmarlow04
Posted
  • Author

HERE IT IS!!

My article came out last night (8/18) and I have already gotten a phone call from another student who was denied an exemption and she is allergic to several things such as seafood and nuts.

Enjoy the article! I know I did!

Open Original Shared Link

Thank you again everyone!

JillianLindsay Enthusiast
JillianLindsay
Posted

Way to go! I enjoyed it :) I'm a senior psych student also.

Enjoy your gluten-free food this semester,

Jillian

HERE IT IS!!

My article came out last night (8/18) and I have already gotten a phone call from another student who was denied an exemption and she is allergic to several things such as seafood and nuts.

Enjoy the article! I know I did!

Open Original Shared Link

Thank you again everyone!

jerseyangel Proficient
jerseyangel
Posted

Very nice!!! :D

NicoleAJ Enthusiast
NicoleAJ
Posted

Well done! More must be done to make universities aware of the need for accommodating celiacs--even if that accommodation consists of an exemption from dining services. I'm really skeptical about their supposed understanding of cross contamination. Just because you can see them cook the food doesn't mean that there's nothing in it, the pans, the utensils, the cutting boards, etc that isn't gluten free. In the early days of my diagnosis, I would watch my mother-in-law cook something for me and then would get violently ill--seeing is not believing that it's completely free of gluten.

  • 5 months later...
KSUmarlow04 Newbie
KSUmarlow04
Posted
  • Author

Update: Well I graduated from KSU in December and I am going on to graduate school next month.

As for the meal plan, I dont think I made too big of an impression because the school is still not allowing exemptions. I had a lot of people call/email me and say they were having the same problem. One girl got an exemption last semester after a great deal of effort only to find out that she would have to put up the same fight this semester. They didnt exempt her again!

I was proud of myself until I found out that they were only giving me the exemption to shut me up. They really dont understand the disease, nor do that have any sympathy for the students.

Takala Enthusiast
Takala
Posted

Update: Well I graduated from KSU in December and I am going on to graduate school next month.

As for the meal plan, I dont think I made too big of an impression because the school is still not allowing exemptions. I had a lot of people call/email me and say they were having the same problem. One girl got an exemption last semester after a great deal of effort only to find out that she would have to put up the same fight this semester. They didnt exempt her again!

I was proud of myself until I found out that they were only giving me the exemption to shut me up. They really dont understand the disease, nor do that have any sympathy for the students.

___________

Congratulations on your graduation, and for at least setting a precedent so that other students know that they can beat down the doors of ignorance.

jerseyangel Proficient
jerseyangel
Posted

Update: Well I graduated from KSU in December and I am going on to graduate school next month.

Congratulations! :)

Thanks for the update--frustrating, though, that they still don't get it.

AKcollegestudent Apprentice
AKcollegestudent
Posted

I'm in the middle of something similar at my school--thanks for at least giving me an example to follow.

DownWithGluten Explorer
DownWithGluten
Posted

:blink: I sat here reading this thread and am just appalled/shocked at the ridiculousness of it. Forcing you to pay for something that can harm you when they are not willing to accommodate or pay for the medical bills. That's just terrible.

Good job for getting them to revoke your mandate, even if you don't feel it started a revolution or anything. You still made somewhat of a point, and stood up for yourself and didn't just allow them to get away with it for you. So, good job. I'll read your article later!

This thread makes me angry, though, for what they were trying to force. Jerks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.