Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do When Your Starving?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Planning doesnt come naturally maybe its because I am male or relatively young who knows.

But I think surely others are in this situation at some point too. For whatever reason there is no food for you to eat so!

- I drink lots of water, I mean 4 cups just for nothing

- I swear

-i think about some tasty stuff I will feast on to make up for this

Sorta happens say on a social night when food is going round on a saucer and everyone is nibbling and you just really dont feel like asking to read the ingredient at 1am at night or something so ou just go without!

So how do you deal with it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ranger Enthusiast

I don't go anywhere without some kind of food in my purse.

GlutenGalAZ Enthusiast

Could you bring something with you say a gluten free bar then just slip outside for a couple of minutes and eat it then go back in where everyone else is? I am just thinking this way in case you are a at a club or somewhere like that where you don't feel comfortable eating food you brought in front of others......

I would think if you are at a friends house and they know about your gluten free eating that it would be okay to eat in front of others... maybe make something and put it on a dish so its like you are just eating normally with everyone else.

When my husband and I go out of town for part of the day I bring a small cooler bag with some carrots, corn chips (mission brand), maybe a wraps (corn tortilla with something in it), etc this way if I get hungry I don't have to worry about fast food places or if I can find something. If he gets hungry he can just get whatever he wants errr ha.

Good luck =)

mamaw Community Regular

I think one of the sad things about this diet is that we all have to be responsible for ourselves.... If we don't take charge then why would we expect someone to do it for us.... if we are not willing to take charge of our health.

Suggestions would be to go to places you know can supply you something , eat before hand, take your own munchies...

This disease does take planning all the time so it does get to be a pain but once you decide you are truly going to starve to death , most find planning is better than starving to death. Believe me no one enjoys having to be planning every meal & snacks for their lifestyle for that day. BIG PAIN....

Why not carry a box of junk food in your car, that way you can grab & go ...

When we meet at friends houses I always take goodies for everyone to share & I know there will be something for me to snack that is safe. Now people just come out & ask me to bring their favorite gluten-free item!

Being a guy doesn't make a difference , everyone needs to take care of their personal health needs.Its not easy at first for eoither gender its a learning process.

good luck

mamaw

ang1e0251 Contributor

Kind of tougher on you guys cause we gals can get a lot in a purse! But all the suggestions are good. At the least I always carry a Lara bar with me. This would fit into your back pocket. Excusing yourself at a restaurant is no big deal, everybody does it whether to smoke or talk on a cell phone. At 1 am that food bar in your pocket can come in handy. And of course if you drive a snack bag in your car is a great idea!

It's time to organize yourself a bit and never let your self go hungry. That's letting the gluten win.

angieInCA Apprentice

I always have almonds in my purse.

mediaseth Newbie

I'm 34, gluten free maybe four months now, and still trying to work on that. My last all-night bender in NYC was the first one I couldn't drink beer on. That was hard enough. I've been getting into bourbons, but it's not the same as a good beer. We always eat dinner somewhere first, then hit up a diner around 4am. I have to order eggs without anything else when I used to get pierogies!

When I'm at a catered event, it's completely different. But, caterers who may not understand gluten-free do understand and fear allergies, so I try to explain it to them along those lines. I'm new at it, but I have no hesitation over trying to explain the condition to someone, even if it annoys them. :lol:

As far as bringing food goes, I hate carrying around lots of stuff. I think it comes from having a mother who would try to move an entire house's contents with us to a family day at the beach if it weren't for my father saying we don't need all that! :lol: I also was never a big fan of food in "bar" form before, like powerbars, granola bars, etc... but I may have to reconsider out of necessity. Maybe there's a food bar that can survive the conditions of my back pocket. :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Hummingbird4 Explorer

Carry a bag of trail mix (nuts, raisins, chocolate chips) with you. It works wonders when you are famished.

MDRB Explorer

I make sure I always eat before I go out, or carry a gluten free snack in my bag. But when I'm at some sort of social event and gluten filled good is being passed around, tempting me with its deliciousness, I try to focus on how horribly sick I would get if I ate any of it...gets rid of the appetite pretty quickly.

mediaseth Newbie

This is all great advice for people who carry bags and women with purses. I never got into the man-purse thing, though. :D

I don't mind carrying a bag around some of the time, but there are times when I'd absolutely hate it. The sort of solution I'm looking for is one in which I can pop into a place, like a convenience store or pizza shop, and grab a gluten-free option. I'll just keep dreaming. :) Actually, it's just about possible in NYC. Boston isn't too far behind, either. In my 'hood, just north of Boston, I'd have perfect options at all these Mexican and Latino places if I wasn't also vegetarian.

If you're at a house party, then bringing stuff with you is encouraged anyway. Just bring what you can eat. When I bring Redbridge beer everyone else wants to try it!! You can bring proper tortilla chips and not even stand out, too.

Nancym Enthusiast

I think you can find nuts easily at most convenience stores. You might want to check out various brands but probably most just salted nuts are ok. Lara bars are available at a lot of places now, but tend to be more common at health food stores. They're smallish, so you could fit them in a pocket easily.

There's lots of junk food that is supposed to be gluten free. But I don't do junk food, so I won't give you any advice on that.

msmini14 Enthusiast

Once you accept the fact that you have celiac I think you will be more comfortable in a public setting. I was the same way at first, I was very very shy I didnt want to feel like I was causing a scene or felt like people were staring at me.

My first real event was going to the Marine Corps Ball with my dh and I had to bring a cooler with my dinner in it. It was weird, asking for a plate, having people look at me. Now I am used to it, actually most people compliment my meals I bring or order.

Keep a cooler in your car with little snacks and such. For instance when I go to work I bring my cooler with an apple, peanut butter, strawberries, banana and my lunch which is left overs and some type of veggie. Dont be shy, we need to spread the word about celiac.

I have seen another post from you, I really hope your friends begin to understand that you must be gluten free. Some will learn, others never will. Again it will get better when you get more comfortable with the situation. ;)

JNBunnie1 Community Regular

Portable food- 'organic food bar'. Seriously, best food bar I ever ate, especially the chocoalte flavor. Way tastier than Lara bars, and I love those, so that's saying something. They also have like 14 grams of protein per bar, so it's REAL food, and are kinda squishy so so what if they get more squished in your pocket.

amber Explorer
Planning doesnt come naturally maybe its because I am male or relatively young who knows.

But I think surely others are in this situation at some point too. For whatever reason there is no food for you to eat so!

- I drink lots of water, I mean 4 cups just for nothing

- I swear

-i think about some tasty stuff I will feast on to make up for this

Sorta happens say on a social night when food is going round on a saucer and everyone is nibbling and you just really dont feel like asking to read the ingredient at 1am at night or something so ou just go without!

So how do you deal with it?

Hi,

I am from Melbourne also and I would highly recommend that you join the Victorian Coeliac Society. They will offer you support when you nned it and plenty of information. THey recently held a 'generation Y' night which was a huge success. They had about 100 young people attend and listen to some guest speakers (athletes etc.) talk about how they manage on a gluten free diet. If you join the society you can be part of these events.

Please contact the coeliac society by phone or pop into their centre (Mt. Waverley). The website is Open Original Shared Link.

As far as socialising goes I know it must be a hassle. Do you know what take-away foods are okay to eat.

Here are just a few:

Nandos (Check their menu for gluten-free options).

McDonalds : fries, hash browns, shakes. (check their website)

Ali Baba (some have gluten free wraps)

Taco Bills (gluten free menu)

Lord of the Fries (Flinders street station - they have gluten-free burgers and fries)

Muffin Break (always have gluten-free muffins available)

Grill'd Gourmet burger chain (gluten-free burgers available)

Crust Pizza (gluten-free pizza available)

Pizza Capers (Malvern,Beaumaris)

If you are going to a party just bring along a packet of chips and other things you know are gluten-free. Nuts, corn chips, dips, salsa etc. If there are plain chips they are usually gluten-free, same with corn chips. When they are flavoured they are often not.

Do you know how to read labels. Do you know that the law states in Australia that if there is an allergy causing ingredient is must be listed. So if wheat is present it must by law be on the label. For example if it says Maltodextrin (wheat) you can't have it. If it says Maltodextrin and nothing after it it is okay.

Good luck.

amber Explorer

One more thing. You must visit the Gluten Free Food Show which is on this year 3-4th October. There are hundreds of stands of gluten free food to sample, lots of information about gluten-free diet etc. You will see thousands of people just like you. The first year 10,000 visited in one day. Now it is on over 2 days so it is not so crowded and well worth a visit.

Open Original Shared Link

one more mile Contributor
at 1am at night

So how do you deal with it?

Generally I make bad decisions after midnight so I would either figure it out earlier in the day or be sick or resentful the day after. Or go to bed at midnight. lol.

Those who fail to plan, plan to fail. ( I forget who said that but I think it was a male general )

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    3. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    5. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.