Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats The Deal With Drs?

crimsontopper

By crimsontopper
in Doctors

Recommended Posts

crimsontopper Rookie
crimsontopper
Posted

i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

You were one of the lucky ones, first of all to know about celiac, and secondly to have a doctor willingly test you for it. Count yourself as fortunate :) .

OptimisticMom42 Apprentice
OptimisticMom42
Posted

It was easy for us also. There are three of us in our house and we didn't have and problem getting the dr's to dx us.

Jestgar Rising Star
Jestgar
Posted

I had no problem getting tested, and even though it was neg (anti gliadin only was run) my doc feels that the improvement in my health is proof enough.

ENF Enthusiast
ENF
Posted

It seems that various states have different rules for allowing insurance companies to deny coverage for testing and other procedures. My state is pretty good in this regard, and I can usaually get whatever tests I want.

G-freegal12 Contributor
G-freegal12
Posted

They are all so under educated it's crazy. :angry: I am gonna be a doctor so I can be educated and fix people :D ....why did everyone start screaming and running away when I said I wanted to be a doctor...? :P

GarBear Newbie
GarBear
Posted
i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.

Ugh! i went to my (mediocre) doctor yesterday to ask him for the lab slip to get tested for celiac (I've been gluten-free for three months now), and anyway... he was SO RUDE about it! I was really upset! He had originally told me that i had irritable bowel (which in my opinion is a total cop-out diagnosis and it just means that they have no idea what's wrong with you). It seemed like he was offended that i didn't agree at all with his original diagnosis.

Anyway... i've been rambling.. Took my blood tests this morning (anxiously waiting for the results! haha)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Ugh! i went to my (mediocre) doctor yesterday to ask him for the lab slip to get tested for celiac (I've been gluten-free for three months now), and anyway... he was SO RUDE about it! I was really upset! He had originally told me that i had irritable bowel (which in my opinion is a total cop-out diagnosis and it just means that they have no idea what's wrong with you). It seemed like he was offended that i didn't agree at all with his original diagnosis.

Anyway... i've been rambling.. Took my blood tests this morning (anxiously waiting for the results! haha)

IF you have been gluten-free for 3 months chances are the test will be negative. You need to be consuming gluten for the tests to be positive. If you need a doctors diagnosis you need to go back on gluten. If the challenge makes you very ill IMHO you have your answer no matter what the test results.

jkr Apprentice
jkr
Posted
i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.

Yes, I had to have two endoscopies to prove it to the GI. When I first told him last year I thought I had celiac, he said to me "but you don't diarrhea." After the first endoscopy I told him I wanted the blood tests, then he took me seriouisly when they were very abnormal. Then he took the biopies for the second one. I know a lot of people would have switched doctors but I didn't want to go to another doctor and start over.

Good luck.

ang1e0251 Contributor
ang1e0251
Posted

You're lucky because you had a clue to your illness. Those of us that are clueless go to our dr's with these seemingly random symptoms expecting our dr to put it all together. Many dr's are just undereducated about celiac disease and don't see the pattern. So we are stuck spinning our wheels while test after test is run with no results. Oh if I only could have had the knowledge to ask for a celiac panel....

GarBear Newbie
GarBear
Posted
IF you have been gluten-free for 3 months chances are the test will be negative. You need to be consuming gluten for the tests to be positive. If you need a doctors diagnosis you need to go back on gluten. If the challenge makes you very ill IMHO you have your answer no matter what the test results.

Interesting.. Well thanks for the info =)

ann72601 Apprentice
ann72601
Posted
i am new to the forum. i am currently exhibiting many of the symptoms most posters talk about. during my reading i have come across one thing that seems to be consistant throughout diagnosis and that is that drs easily dismiss celiac. why is this? i asked my dr to prefrom the test and after asking why they agreed easily.

It seems that if you are a woman, it's harder to be heard. If you're an uninsured woman, it's even harder. If you are alone........bring someone with you :lol:

Li'l Buck Newbie
Li'l Buck
Posted

At 40, my lifetime GP retired. My new doctor checked my history and had me tested almost immediately. I think he has celiac disease and so has a vested interest in learning about the disease. What kills me are the Drs in emergency (presumably they are supposed to have the most current medical info?) and paramedics who know nothing about it.

I think that most Doctors get their information (post medical school and perhaps even during) from the drug companies and since they don't have a drug to patent to cure us; they prefer to focus on the drugs to treat our symptoms... far more profitable for the drug companies.

ann72601 Apprentice
ann72601
Posted
At 40, my lifetime GP retired. My new doctor checked my history and had me tested almost immediately. I think he has celiac disease and so has a vested interest in learning about the disease. What kills me are the Drs in emergency (presumably they are supposed to have the most current medical info?) and paramedics who know nothing about it.

I think that most Doctors get their information (post medical school and perhaps even during) from the drug companies and since they don't have a drug to patent to cure us; they prefer to focus on the drugs to treat our symptoms... far more profitable for the drug companies.

In my case, I had to kiss a lot of frogs before I found the prince. I use an MD and ND, both are older and wiser having experienced more than med school. It doesn't matter what there is in life to learn; there is nothing like experiencing it and this means doctors too. My thanks actually goes to the people here who have been there and done that. They've helped me know how to deal with docs and all the daily challenges that come with celiac. I love them!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.