Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On Turning A Corner At 21 Months


Lisa16

Recommended Posts

Lisa16 Collaborator

I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

Glad you are feeling good! I enjoyed reading that, thanks for posting! :)

ang1e0251 Contributor

Well said!

BeckyMN Newbie

Thank you for this wonderful post. I am not known for being overly emotional, but this brought me to tears. What a great outlook you have, and it is so nice to think about focusing on the true pleasures in life. I am only 7 months into this crazy gluten free journey, and while I feel a million times better, I still have some complaints and hope that they will continue to improve. I hope to be able to write a note like yours in another year. Thank you.

ranger Enthusiast

This overwhelmed me. I will reply tomorrow.

Mrs. Smith Explorer

Thank you. That gives me so much hope for the future ans it will others, Im sure!

nasalady Contributor

Thank you for this.

I'm only 8+ months into this lifestyle and still have so much wrong with me physically and so much more to learn....even though I already feel positive and hopeful your post increases the level of my hope for eventual recovery.

And I'm truly happy for you!! :)

JoAnn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elle's mom Contributor

Also, I am not that emotional, and this gave me a lump in my throat.......thanks for the optimism.

Mskedi Newbie

Awesome!

no-more-muffins Apprentice

What an inspiring post. It has been a rough couple of days for me because I got glutened. I have been doing this for almost 3 months and I feel a lot better, but I still have a ways to go. And dealing with the emotional side of this is just as hard if not harder than living with the physical side. I love to come to this site when I feel people don't understand because I know that there are people here who do. Thanks for sharing your thoughts. I think I'll print it out for a friend of mine who has been gluten-free for 2 months and is progressing slowly.

So, thanks for your post today. You touched many people I am sure many of whom didn't leave a comment.

Three Ds Newbie

Thank you so much for this post! I have been trying to eat gluten free for about 6 months. This part touched me especially:

So know that it will be hard and that you will experience accidents, frustrations, tears in the supermarket, anger, denial, grief, acceptance, depression, obsession, feeling overwhelmed and there are even times when you might think about giving up in some way. But you will get better. And there is light and hope and a better life at the end to look forward to.

I get SO frustrated, often to the point of tears at times, when I'm glutened. And for a long time I was in denial that I was as sensitive as I am to gluten, cc, etc. I've only been able to go a couple weeks at a time without being sick, but it is getting better, and I just need to stick to this. And you are right, this is leading me to some healthier eating - I'm getting better about having fruits and vegetables regularly. Fortunately, or unfortunately :D , one of my favorite indulgences - plain potato chips - are generally gluten free, so I tell myself it's not all bad! But you've given me additional hope. Thank you!

ranger Enthusiast

Hope is the operative word here. Thank you for that! I am 9 months gluten free and, while I am much better, I am not back yet. And, it is frustrating. Sometimes I feel like just eating a twinkie and forget about all this nonsence, but then I think about the consequences. Yikes! Your message spurs me on. There will be a day when your words will be my words. Thank you!

ksymonds84 Enthusiast

Very inspiring, thank you!

pilotmom Newbie
I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask
pilotmom Newbie

Thank you so much for an awesome post! My 9 year old daughter has been gluten free for 5 weeks and still is experiencing stomach aches and has been asking when they will go away. She has been going through a lot of emotions. I read to her your post so hopefully that has helped her. Thank you!

Northland Lady Rookie
Thank you so much for an awesome post! My 9 year old daughter has been gluten free for 5 weeks and still is experiencing stomach aches and has been asking when they will go away. She has been going through a lot of emotions. I read to her your post so hopefully that has helped her. Thank you!

Hi, i tried to contact you personally but couldnt make it work! could you tell me how you got glutenated by tea bags? You said in anther post they had gluten in them. :-)

Thanks

Northland Lady Rookie
I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,902
    • Most Online (within 30 mins)
      7,748

    WOLINM
    Newest Member
    WOLINM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.