Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"organic Barley Grass"


elle's mom

Recommended Posts

elle's mom Contributor

Last week I bought these vitamins (Calcium/Mag/Vit D combo) at my local health food store and they said "gluten-free" right on the box. One of the ingredients was this "organic barley grass".....obviously sounds like gluten to me so I ask the owner. He says the 'grass' is different than the barley grain so it's not gluten. I say OK and take the vits. I also confirm what he said to be true. The vitamins make me feel good, so I am loving it! Then my dd (4mo old baby-nursing) gets super fussy 4 days later. This is the only new thing in our diet, so I'm sure it's the culprit.

I just wondered if this was a rookie mistake on my part (cc), or if anyone else has (or has NOT) had trouble with this ingredient? I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

The grass is lower in gluten than the usual milled seeds, but it is not gluten-free. You will also sometimes encounter "sprouted" grains. Again, there may be a lower gluten content, but they are not safe.

lpellegr Collaborator

You also don't know whether there were any traces of the seeds when the barley grass was harvested or transported or processed. I'd avoid any part of the plant, just in case, same with wheat grass.

Korwyn Explorer
Last week I bought these vitamins (Calcium/Mag/Vit D combo) at my local health food store and they said "gluten-free" right on the box. One of the ingredients was this "organic barley grass".....obviously sounds like gluten to me so I ask the owner. He says the 'grass' is different than the barley grain so it's not gluten. I say OK and take the vits. I also confirm what he said to be true. The vitamins make me feel good, so I am loving it! Then my dd (4mo old baby-nursing) gets super fussy 4 days later. This is the only new thing in our diet, so I'm sure it's the culprit.

I just wondered if this was a rookie mistake on my part (cc), or if anyone else has (or has NOT) had trouble with this ingredient? I

I cannot even have tea that has barley grass in it. While the gluten content may be 'lower' it still has gluten. Gluten is not only found in the seed.

  • 2 weeks later...
Kay-dee Newbie

I ate this once... I baught a bar that was labeled gluten-free (this was in my very early gluten-free days!) I ate it THEN looked at the ingredients and to my horror I saw "barley grass" AND "wheat grass". I had no reaction to it and I'm pretty sensitive... but I don't think I would eat it again! :) I think it's a gamble... though it is supposedly gluten-free, i'm sure there is risk of cc.

GFinDC Veteran

I made the mistake of taking a multi-vitamin with oat straw or oat grass, something like that in it. The pills didn't bother me noticeably at first, but seemed to build up to a stronger reaction over time. Not good stuff. I figure it was a very small amount of gluten, and oat gluten which didn't use to bother me. But it did get the better of me when taken every day.

Tim-n-VA Contributor

I think it comes down to the fact that gluten is only created in the grain portion of the plant. IF you can get just the stalk/grass part of barley or wheat it will be gluten free. Obviously, there is a very high chance of cross-contamination. My understanding is that these grasses are usually harvested before the grain/seed forms but still there is room for error.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

I would get rid of the vitamins...too much of a chance, in my opinion.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.