Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going In For Endoscopy Tomorrow


beth67

Recommended Posts

beth67 Rookie

I found out I have celiacs two months ago and have been gluten free and enjoying not having stomach pain. My doctor wants to do an endoscopy to see if there is any damage or tumors. I've been eating gluten for two days to prepare and it hasn't been fun. I've been getting really bad cramps. So bad I've had to hang onto the kitchen counter until they pass. Can anyone tell me what it's like to have an endoscopy and how you feel afterwards.

Thanks,

Beth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



butterfl8 Rookie

Depends if they put you out, or do concious sedation. I was supposed to have the concious sedation, but the night before I had a last meal of pizza. Well, that didn't work so well, so I was up nearly the whole night. Slept through the whole procedure and woke up without a memory of what had happened. My sister just had her's, and she was put out. My husband had one a few years back, and he said that they put him out enough that he didn't really care what was going on with his throat, but he enjoyed watching the screen to see the results. So I wouldn't worry about the procedure itself. Sorry you've had to gluten yourself though, that's not fun, to say the least. Good luck!

-Daisy

gf-soph Apprentice

Hi beth

Mine was fine. I was sedated but conscious, and all I can remember was them starting to put the tube in my mouth, nothing after that. I came to a while after they were done, with a slightly sore throat. A family member took me home, I napped that afternoon and was a bit out of it for the rest of the day. Felt fine the next day - the anticipation was worse than the actual procedure for me.

Good luck!

Sophie

beth67 Rookie

I'm back from my endoscopy and it really wasn't that bad. I have a fuzzy memory of a black tube and some discomfort and someone holding my hand. When I woke up they said I wasn't under enough and had to give me some more drugs. Don't remember anything else though. I enjoyed not having any aches and pains there for awhile when I woke up because I have low back and sacro iliac joint pain but now the drugs are waring off and I'm feeling achy again. Probably achy from eating gluten for the last two days to prepare for the biopsy. There was no sign of cancer or ulcers but in the report I got it said something about the lining being flattened which confirms the ciliac diagnosis. Now I'm officially off gluten for the rest of my life. Since I had to eat it for the test I had a little fun. I had french bread, a doughnut, and cookies. It was fun for a little while until I had to hang onto the kitchen counter so I wouldn't collapse from the cramping that I knew was coming. I think I'll go make some gluten free bread in my new breadmaker with a gluten free setting. It comes out really good. Thank you all for the feedback about the procedure.

Beth

ravenwoodglass Mentor
I'm back from my endoscopy and it really wasn't that bad. I have a fuzzy memory of a black tube and some discomfort and someone holding my hand. When I woke up they said I wasn't under enough and had to give me some more drugs. Don't remember anything else though. I enjoyed not having any aches and pains there for awhile when I woke up because I have low back and sacro iliac joint pain but now the drugs are waring off and I'm feeling achy again. Probably achy from eating gluten for the last two days to prepare for the biopsy. There was no sign of cancer or ulcers but in the report I got it said something about the lining being flattened which confirms the ciliac diagnosis. Now I'm officially off gluten for the rest of my life. Since I had to eat it for the test I had a little fun. I had french bread, a doughnut, and cookies. It was fun for a little while until I had to hang onto the kitchen counter so I wouldn't collapse from the cramping that I knew was coming. I think I'll go make some gluten free bread in my new breadmaker with a gluten free setting. It comes out really good. Thank you all for the feedback about the procedure.

Beth

I am glad you got through it okay and are now able to go back to being gluten free and continue the healing.

kaki-clam Enthusiast

Mine was no problem at all....i am terrified of needles, so that was the worst part. I was semi awake and i remember him telling me to swallow the tube but that is it. The whole thing took like half an hour and then half hour recovery...good luck, it will be fine! No sore throat or anything after!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,177
    • Most Online (within 30 mins)
      7,748

    Cassiedawn16
    Newest Member
    Cassiedawn16
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...