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Aabye

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Aabye Newbie

https://www.celiac.com/categories/Celiac-Di...Celiac-Disease/

FOund htis link on this site. THat is how I found you all.

Has anyone dealt with blood issues on here?

I had some falling blood counts and they think it was celiac.

Just wondered if any one else had blood issues that resoved off gluten or progressed?

I have not gon e back.


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Gemini Experienced
https://www.celiac.com/categories/Celiac-Di...Celiac-Disease/

FOund htis link on this site. THat is how I found you all.

Has anyone dealt with blood issues on here?

I had some falling blood counts and they think it was celiac.

Just wondered if any one else had blood issues that resoved off gluten or progressed?

I have not gon e back.

Yes, I have dealt with blood issues and have learned a great deal. The article about Paraproteinemia

was of special interest to me. Approx. 2 years into the gluten-free diet, I had routine blood work done and had elevated protein levels, the type looked at when diagnosing multiple myeloma. I was sent off to see a hematologist, who did the SPEP test, which looks for these monoclonal bands which could signify cancer.

I also did my own research and found articles which stated that Celiac Disease, along with other autoimmune problems, can cause elevated protein levels. Made sense as these types of tests are all measurements of immune activity and we have the mother of all autoimmune diseases.

The hematologist was great and put me at complete ease. She wanted to make sure I understood that I did not have cancer and what she was seeing was perfectly normal for people with AI diseases.

She also learned something from me about Celiac disease and has now included it in her list of diseases to check for with her patients who show these types of blood results.

It has now been 4 1/2 years post diagnosis, I follow a very strict gluten-free diet with no cheating and my last blood results showed normal protein levels. I have calmed my autoimmune system down to the point where things are getting better. However, don't get too comfortable because Celiacs may have wonky blood work for a long time or for life. That does not mean you have cancer or are more pre-disposed to blood cancers, either. I wouldn't say that if a person chose to cheat or not follow the diet but for those who take it seriously, the risk of cancers are no greater than anyone else. It's all about taking care of yourself.

BTW, I have always had low white cell counts, which still showed on my last blood work recently. That one has been stubborn but I do not worry about it. I do not get sick on a regular basis at all

so have accepted that it may be that way for life. It is connected to AI diseases as well.

jkr Apprentice

My WBC doesn't go past 3.0 and it has been that way for years. I'm hoping next time I get a CBC after being gluten free for a while it will go up but I am not sure if it will.

Gemini Experienced
My WBC doesn't go past 3.0 and it has been that way for years. I'm hoping next time I get a CBC after being gluten free for a while it will go up but I am not sure if it will.

Don't sweat your WBC...it is a sign of AI diseases and may never go into the normal range. It only matters if you are becoming ill all the time. I rarely catch a cold now that I am gluten-free so I never think about the count.

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