Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Have Hashinotos


Wolicki

Recommended Posts

Jodie2DQ2 Apprentice

I did not have time to read all the threads but I just wanted to share my sister's story. She was hypo for at least 5 years...nobody ever thought to scan her thyroid or even check her antibodies. I finally convinced her to get a scan done and low and behold...Hashimito's! SEVERE! But she went to the Endo Dr. and saw only the medical assistant and FINALLY had to lose it in her office and several visits of trying to level out her hormones. The problem with Hashimoto's is you can't ever really get level. And she wasn't. The medical assistant was saying she wanted to send my sister to a cardiologist and she came unglued!My sister REALLY lost it! The medical assistant got the Dr. in the office right away! My sister really had every symptom of the disease and wanted it out! The Dr. agreed she must have a severe case and agreed to have it out. She has been amazingly better! It does take time to level out the medication but she is doing great! I know there are some Dr's that only take the diseased part out...but he took the entire thyroid because the body will just keep attacking what is left! One other point...before she finally got to the Endo...she was sent to an ENT..which is the Dr. that ended up doing the surgery, but before he had only put my sister on acid reflux meds because of the lump in her throat! After she went to the Endo...then back to him for the surgery consult he did not even mention that he had missed it before! Man...we all really have to fight for our health don't we? I hope your issues are better. Just wanted to share this story! Jodie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I got my test results back. Vitamin D in normal range, though seems low at 37. Ref range is >20. Thyrolgloblulin antibodies <20 and peroxidase antibodies <10. So looks like standard run of the mill hypo. I am concerned that the doctor (idiot) only prescribed 75 mcg of Levoxyl, when the package insert clearly states that I should have a much higher dosage, as I weigh 160. Thoughts?

Gemini Experienced
lol Gemini -- I also dress well when I fly -- same reason: I get better service. But I usually do business casual. And when it comes to the proverbial power suit at the doctors.....sometimes I just feel to ill to bother (but I still ALWAYS do). I'm in a sort of traditional profession (at least as far as attire goes) and clients expect me to look a certain way (so I do). And I would expect the doctor to be well put together...but when I'm the patient I do wish I could just throw on jeans and a blazer. However, my experience tells me that if I do so, I will not be given good care so...the suit it is. In fact, I just had an endo appointment on my day off and I wore a suit (painful as it was).

NOW -- lets talk about broadway! I was at a show recently (Mary Poppins) and some guy had on flip flops and an undershirt (colloquially known as a 'wife beater' - hate that term). Come on! I'm all for broadway being accessible, but there is no reason to wear underwear as outerwear

Your post cracked me up and I needed a good laugh! :D I could probably name a number of places where the attire nazi's could have a field day. I have traveled to Europe a number of times and you can always tell an American by sight...all by the way they dress, or don't dress, for that matter! Pretty sad and I hope it changes back a bit to when people had some self esteem and knew how to dress for whatever occasion they happen to be at. I haven't seen a show on Broadway, sadly enough, but I can imagine just what you saw. My place of employment recently had to establish a dress code for certain jobs because apparently many of the young people they hired had no idea how to dress for a meeting or to receive visitors they were escorting in. I was just blown away they had to be TOLD! :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.