Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanks

kenlove

By kenlove
in Coping with Celiac Disease

Recommended Posts

kenlove Rising Star
kenlove
Posted

As I sit here in a hotel room in Bangalor pounding out what should be my 1000th message, I just wanted to renew my profound thanks for that past years of support from all of you.

We really are an extended family of strangers bound together by the strength to overcome obsticals put in our path. Your assistance, online friendships and offline meetings have been inspirational to say the least.

I hope in the next thousand I cvan repay others with the same help and kindness I've received.

Ken

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

You have already been helpful and supportive to us here yourself. Thanks for the pat on the back and right back at you.

jerseyangel Proficient
jerseyangel
Posted

Ken, what a wonderful thought :D

Thank you for all you do here, too! The board wouldn't be the same without you--and congrats on your 1000th post! :)

ranger Enthusiast
ranger
Posted

Ken,

You have helped me greatly, and, your travels have inspired me. Indian food is still a mystery for me, even though my Grandfather was born in India. I remember eating curry as a child, but have never cooked with it. So, the thanks go two ways!

Susan.

lizard00 Enthusiast
lizard00
Posted
As I sit here in a hotel room in Bangalor pounding out what should be my 1000th message, I just wanted to renew my profound thanks for that past years of support from all of you.

We really are an extended family of strangers bound together by the strength to overcome obsticals put in our path. Your assistance, online friendships and offline meetings have been inspirational to say the least.

I hope in the next thousand I cvan repay others with the same help and kindness I've received.

Ken

Lots of love for ya Ken!!! :lol:

I feel like you took the thoughts from my head... ok, except that I'm not in a hotel in Bangalor :lol::lol: bummer

kenlove Rising Star
kenlove
Posted
  • Author

Thanks all!

great to have so many family members on this forum!

mamaw Community Regular
mamaw
Posted

Ken

What a nice post. You give so much to this forum so a hug to you.....but I think we should rename you to travelin' man!!!!!!

best wishes

mamaw

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

Ken...I also owe thanks to you along with so many others who have helped me through the first/worst part of this journey, and who help to keep me on the right path! I just love the people I've met here and am so grateful for all of them!

Wowee.....1000 posts!

mushroom Proficient
mushroom
Posted

T'is a good place where we all help each other and hold each other's hands. Thanks is a lovely thought but I think nearly every one here gives as much as they take, or more. :D That goes for you, too, Ken. Thank YOU!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,984
    • Most Online (within 30 mins)
      7,748
    Bryan s
    Newest Member
    Bryan s
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.