Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Loosing Weight, Not Good

ratty89

By ratty89
in Coping with Celiac Disease

Recommended Posts

ratty89 Rookie
ratty89
Posted

So Ive been gluten free dairy free for about 10 weeks now, loving that my skin and tummy problems are going away.

The general thought was Id put on some much needed weight (was only about 52kg/115 lbs and Im around 5'5), due to malabsorption being righted, eating more protein etc.

I dont own scales but I can judge from my clothes fitting and my bone visibility through my skin that Ive lost some weight. Maybe down two kgs or 5 pounds. Not so good.

Ive been eating probably more than I used to since Im under instruction to eat 6 meals a day, have a high protein diet etc whereas before I had toast for breakfast, a candy bar for lunnch, a gluteny afternoon snack then dinner...generally. I am doing low sugar low fat however to help the healing of the stomach and with no dairy and gluten (or corn) my cake/biscuit/icecream/candy bar habit has all but vanished.

Has this happened to anyone when going gluten-free and what could I do to put a little weight on / not loose more???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Keeping your protein up is good but I would add fats if you can tolerate them and nuts as well. Chew them well for better digestion. Avacados are a good. Macadamia nuts are especially high in calories.

jststric Contributor
jststric
Posted

Sounds like you've never had to worry about being overweight. I can't imagine not, lol. All the things in Weight Watchers and places like that say is that white potatoes, corn and carrots are all real, whole foods overweight people should stay away from because they break down into sugar in our bodies. If you can find those type of items to add into your diet in addition to your protein. Maybe google foods overweight people should stay away from and then just eat those!

Wolicki Enthusiast
Wolicki
Posted

lots of nut butters :lol::lol::rolleyes::P

ilikechaitea04 Newbie
ilikechaitea04
Posted

I'm having the same problem! I've lost almost 25 lbs. I'm a mere 97 lbs now. Used to be 115 (prior to diagnosis) then fell to 104. Now 97. It sucks because I've always been allergic to dairy, now now gluten, no eggs, no soy. And I'm on a fruit free ALL sugars free diet to kill of Candida. It's SO hard!!!!!

Just add as many calories as you can everyday. CALORIES CALORIES CALORIES. Add an extra protein shake a day.

Instead of water drink- Juice, dairy free milks, and get a good protein shake mix like Spirtein(it's gluten free/dairy free) or Jay Robb's Egg white protein, or Nutribiotic Rice Protein. They mix great with any juice or dairy free milk or go great in smoothies (come in all sorts of flavors).

Also, Nut butters are key! Avocados, adding healthy oils to gluten free baked goods etc.

Also, RED MEAT. Buffalo is great, it's higher in calories than beef and has a little less fat. Steak. Lamb.

Also, eating lots of good whole carbohydrates as well as protein helps. quinoa, Amaranth, Teff, Buckwheat are all great grains to eat! High in protein and fiber as well as nutrients!

Also, if you're excersizing regluarly, STOP! Yoga is okay though, help building muscle mass/tone as you gain weight back. Also, rest ALOT.

I'm still working on gaining weight too! Hang in there!

ang1e0251 Contributor
ang1e0251
Posted

I agree that adding healthy fats is necesary to feeding your body's muscles. Add coconut milk and coconut oil several times a day in addition to the other suggestions. The high protein diet is good too but your body needs the healthy fats.

GFinDC Veteran
GFinDC
Posted

The main ingredients in most gluteney baked goods are fat, sugar and starch. Butter, sugar and flour, with a few eggs for protein and some yeast and flavorings. So if you give up gluteney baked goods and don't replace them with gluten-free baked goods, I can see losing some weight could make sense. I am not suggesting you run out and buy lots of gluten-free baked goods though!

You got some good suggestions already. I like to make guacamole for sandwich spread. I use it on corn tortillas. Put your corn tortilla on the gas stove burner for a few seconds and flip it with a pair of tongs. They are much softer when heated up. I make some meat and rice and veggies on the weekends to munch on during the week. Goes real well on a corn tortilla with some lettuce and guacamole. There's tons of good recipes in the baking and cooking forum here. Bananas are good in gluten-free cereal too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sunnybabi1986 Contributor
sunnybabi1986
Posted

Yeah, I'm having the same problem here. I've always been very underweight and in the past year, I've dropped several more pounds and I'm afraid to list my weight for fear that someone will send me to the hospital :o

Rice, potatoes, vegetables, fruits, and nuts just aren't cutting it for me calorie-wise. Unfortunately, for years, the bulk of my calories came from dairy. However, dairy now appears to be a problem, so it's a no go for dairy now. After dropping the dairy, I started eating a large amount of whole grain pasta to try to make up some of the calories I'd lost, and voila, here I am, on a celiac board ;)

I'm curious about the coconut milk...do you drink this plain or put in on cereal or what? Sounds yummy, but I've never tried it. I may have to give it a shot! Any suggestions on how to eat/drink it? And boy, do I love macademia nuts! Expensive, though...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748
    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.