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Guest Doct.Giggles

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celiac3270 Collaborator

Oh, I see, cool. I thought there would be some simple meaning behind it, but I didn't know what it was . Thanx for answering.

Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol

:mellow::huh:^_^:o;):P:D:lol:B):rolleyes:-_-<_<:):wub::angry::(:unsure::wacko::blink::ph34r:


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  • Replies 86
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jazzyjess Newbie

hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

celiac3270 Collaborator
hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

Yea...soy lecthin (spelling?) is fine...gluten-free.

jazzyjess Newbie

thanks

im so bad at reading the labels i usually just end up not eating things cos im not sure wether there ok or not and its safer so its great that i can find out some things i didnt know :lol:

celiac3270 Collaborator

When in doubt, check the forbidden list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

or the safe list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

and if you are searching for something, do ctrl and f, pulling up a "find" box. Then you can type in the word you're looking for and if you're not sure of the spelling, just do, for example, "soy L"

jazzyjess Newbie

thats reli good i just visited it thanks so much when ever labels have long ingredients i never know whether there all right or not thats going to be very useful

im jess btw im 14 i became coeliacs around easter :P

Carriefaith Enthusiast
Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol
I don't have all those smilies as an option, like the bashful one with hearts above its head and the sleepy one. Do you have to do something special to get those?

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gf4life Enthusiast

Carrie, at the bottom of the emoticon box there is a Show All option. Click on that and it will open up the whole box in a separate window. :)

God bless,

Mariann

celiac3270 Collaborator

Yes...I anticipated I would get that question :lol:

melly Rookie

hello my name is melly I technicaly wont be a teenager till the sixtenth of october i found out that i had celiac disease 2 weeks a go im still not felling well and still getting used to it some times it makes me sad seeing all i cant have and i think it would be really nice to talk to someone my age thats going through the same thing if you are please message me

ps is everyone here named tifany

celiac3270 Collaborator

no I responded to your other topic.

melly Rookie
I feel really young!!!! I am still 13 and won't be 14 untill October!!!!! :( But it is nice to find people close to my age!!! :huh:

-Tiffany

lol tiffany I am still 12 and i wont be 13 till october and i feel really young

PrincessLEah Rookie

turned 13 a month ago :D

PrincessLEah Rookie

I need some candy. BRB

Guest gliX

I'm too old for this section B)

  • 1 month later...
Thyraxeon Newbie

Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

KaitiUSA Enthusiast
Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

<{POST_SNAPBACK}>

Hey I am also 18. You can email me anytime to chat.

petlover Newbie

I am 11 and very new to this whole thing. Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back. My mom tested negative but can't eat anything with gluten in it. I feel the same way she does when I eat it. So I will probably never eat it again even if the test is negative. It is nice to know there are other kids like me. :P . Most kids dont understand. It is hard when someone offers me something I can't eat but want to :(

Asia

KaitiUSA Enthusiast
I am 11 and very new to this whole thing.  Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back.  My mom tested negative but can't eat anything with gluten in it.  I feel the same way she does when I eat it.  So I will probably never eat it again even if the test is negative.  It is nice to know there are other kids like me. :P  . Most kids dont understand.  It is hard when someone offers me something I can't eat but want to :(

Asia

<{POST_SNAPBACK}>

Were you gluten free at the time of testing? If you were not on gluten then the results may not come back right. I am glad that you feel better on the diet so you should continue to stick to it. There is so much stuff that you can have that your friends can have too so it won't be as hard when you get used to it and find things :D

2Boys4Me Enthusiast

Not a teenager ( :o since too long to mention) and my son Ty who was just diagnosed with celiac disease won't be a teenager for almost 7 years!

I'm just posting to say there are young celiac disease kids out there, we don't know any of them though ;)

Linda, mom to Ty my 5.5 year old Celiac kid.

petlover Newbie

I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

dragonzzz Newbie

I'm 10 but i'm almost 11. My mom can't have gluten and neither can my sister. I got tested and the results haven't come back yet but i can't eat anything with gluten in it for the time being :( . i hate it cause half the things i eat have gluten in them and i luv them soo much. I have been feeling better since ive stopped eating it. One of my symtoms was gas. Sometimes it was so painful i had to stay home from school. I had diarrhea with it and was doubled over when it was really bad. But since i went gluten-free i havent had any gas! I ws wondering do any of u guys have the same symptoms as me? Or any other symptoms...

dragonzzz Newbie
I have not eaten gluten for only 2-3 weeks but have had a few accidents.  Some how now when I have an accident it hurts so much more

<{POST_SNAPBACK}>

I luv your avatar!!! Is it u? :D

celiac3270 Collaborator
    I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

Absolutely. As your intestines heal they become more sensitive to gluten...and are less accustomed to it, yielding a more painful reaction when you do accidentally ingest gluten.

dragonzzz Newbie

I know ur not talking to me but that is really cool!

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      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
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      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
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