Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Happening Again.....

Canadian Karen

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted

The last few days, I have been getting that familiar tingle/burning down my arms. Last night, my neck started hurting. Through the night, I went to change positions and the shooting pain through my neck actually woke me out of my sleep and I amost bolted out of bed with the pain.

I have been up since then. I have iced, heated, showered with the water massager, everything. My neck is so killing me I can't move my head or shoulders at all. Also, my jaw is locking again and my teeth hurt again.

Terry was taking the kids to his parents today so I can have a free day to do whatever I wanted. I had so many plans for gardening, etc. I guess that ain't happening!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Can someone recommend to me a good OTC anti-inflammatory/muscle relaxer that is gluten-free? I usually don't take them because they do bother my stomach but in this case, I think that is the lesser of two evils...... I have taken 2 Tylenol 2's and it hasn't even touched the pain.......

Karen

Guest BellyTimber
Guest BellyTimber
Posted

:huh:

Sorry, no suggestions but I do identify at the moment with the clicking jaw and a knee that feels as if it's falling to bits, it comes on suddenly when I've eaten almost the same as normal - can't place the issues.

Hoping you get better soon

:)

celiac3270 Collaborator
celiac3270
Posted

I also don't have any suggestions, but just want to offer any support ;). I went to Open Original Shared Link , not that celiac is a wrong diagnosis ;), but just to see what they had for burning/tingling symptoms--this seeemed closest to your description, but you might want to check out the other possibliites:

And then for the jaw they have an introduction:

I won't be able to help too much :( but with symptoms that recur like this, there's probably something going on... maybe you'd find something there that helps you or maybe your dr. can be a little more...proactive in finding an answer to this...

Feel better! :unsure:

marycubs Rookie
marycubs
Posted

Gapspan -

this is the first I've seen on the clicking/popping jaw... I have been dealing with that for a few years too. Is this something related to celiac ??

I'm a newbie (just officially diagnosed last week) - do you have any information on how this is connected ? ( I also have clicking in my knee - but just thought that was normal wear & tear)...

thanks for any info...

Merika Contributor
Merika
Posted

According to my acupuncturist, the jaw thing is related to the system that is affected by celiac. Sorry to be vague, but I just don't remember at the moment what she said exactly. I have the jaw thing too. The fun just never ends :)

Merika

KaitiUSA Enthusiast
KaitiUSA
Posted

Pre gluten-free I know I had my jaw lock on me a few times...thinking about it, it happened after lunch <_< I think it can be celiac related.

As far as clicking in the knee. My mom's knees used to crack like crazy(not painful though just cracking) when she walked up the stairs and bent down..now, that doesn't happen as much. She has been taking EFA's and she has been gluten free with me and has seen major improvement with that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

I also have the popping/clicking knees. When I bend down, you can hear my knees pop clear across the room! It is not painful in any way, just annoying....

My jaw, on the other hand........ :angry:

Karen

judy05 Apprentice
judy05
Posted

2nd posting

Karen,

I use Skelaxin for those pains, neck, shoulder, back and legs. I have a prescription for two pills three times a day. I always try to take the minimum dose (1/2 tab) and it is usually works. If I take 2 then I can't function. My husband also takes them. It is a muscle relaxer, Not sure if it is gluten-free but I've never had a problem.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.