Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Careful Do I Have To Be?


Kategrad7

Recommended Posts

Kategrad7 Newbie

Hi!

I was just diagnosed last week, have gone through the cabinets and handed over all of the gluten containing groceries to my housemates and now am wondering, just how careful do I have to be? I am a graduate student living in the middle of nowhere in up-state New York and as a graduate student I am relatively poor. I have read some sites that indicate that I should buy my own cooking supplies (pans, cooking spoons, colanders) but I really don't want to go that extra step unless its really necessary. I have very few intestinal symptoms, most of mine being that I get tired or disorientated, so knowing when something is effecting me is going to be a bit of an issue. How hurtful can environmental gluten be? If I don't have blatant symptoms does that mean that I don't have to be as super careful as some sites are suggesting?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vintagegyrl Rookie

I am wondering this same thing. My issues are mostly ones that seem unrelated. FMS, CFS, Hypoglycemia, exhaustion, weakness.

I am trying to figure out how to keep gluten free in a shared household myself. I will be cooking some gluten items for DH but mostly his things are just snacks or sandwiches, etc.

jackay Enthusiast

I am trying to figure out how to keep gluten free in a shared household myself. I will be cooking some gluten items for DH but mostly his things are just snacks or sandwiches, etc.

Sounds like the same situation here as far as cooking goes. I just don't know how careful I have to be because I am still having health issues.

I am intolerant to so many foods that I don't know if I am reacting to something else or still gluten. I've eliminated all the foods I tested intolerant to and some days feel better and other days I don't. I get an extremely sore back, insomnia and depression.

I was extremely anxious before giving up gluten so made one step in the right direction. Also had diarrhea almost every day. The anxiety is much better and most days the diarrhea is.

I am thinking of intentionally eating gluten one day to see how I react. I really don't want to go through the pain it will cause but want to find out if I am doing enough to eliminate gluten contamination.

Bobbijo6681 Apprentice

I had an appointment with the dietician last week and asked her these questions. I fortunately live by myself, but just before diagnosis bought brand new Pampered Chef stainless steel pans, and REFUSE to throw them out or buy new. She told me that as long as they are not scratched and are washed very thoroughly after a gluten item, then I should be fine. Things like wooden spoons and soft plastic (rubber scrapers etc.) should be replaced if possible. She also recommended just washing everything in the dishwasher multiple times to ensure that all gluten has been removed.

I only have mild GI symptoms, so it is hard to say if I am healing properly or not. I can say that I feel better and don't run to the bathroom after eating so I have shown signs of improvement.

I hope that this helps!

tarnalberry Community Regular

Hi!

I was just diagnosed last week, have gone through the cabinets and handed over all of the gluten containing groceries to my housemates and now am wondering, just how careful do I have to be? I am a graduate student living in the middle of nowhere in up-state New York and as a graduate student I am relatively poor. I have read some sites that indicate that I should buy my own cooking supplies (pans, cooking spoons, colanders) but I really don't want to go that extra step unless its really necessary. I have very few intestinal symptoms, most of mine being that I get tired or disorientated, so knowing when something is effecting me is going to be a bit of an issue. How hurtful can environmental gluten be? If I don't have blatant symptoms does that mean that I don't have to be as super careful as some sites are suggesting?

It's quite important. Not all celiacs have strong symptoms, but they are still damaging their intestines, increasing inflammation in the digestive system, and increasing their risk for long term complications. Cross contamination is a definite concern for celiacs.

There are some things you can share in a kitchen - stainless steel pots and pans that are WELL cleaned after using and stainless steel eating utensils, for instance. Cast iron and non-stick pans should not be shared, as cast iron has many small crevices that can hide gluten, and non-stick pans have the same problem the moment a single scratch appears. Colanders need to be unique to gluten free items because it's next to impossible to wash the inner edge of every hole on a colander - and that can be a hiding place for gluten to not be completely removed when washed, even in a dishwasher. Wooden spoons should also not be shared (the are porous, and there's no way to get rid of every bit of gluten in ever last crack), but metal spoons and silicon spatulas (that haven't been torn/scratched/shredded) should be fine to share (I wouldn't share plastic spatulas that scratch more easily than the silicone). Toasters should absolutely NOT be shared, but microwaves can, as long as everyone always uses a plate (and covers splattery food). You can make do with just one of each of these, though - it doesn't have to be a big expenditure.

plantime Contributor

Tiffany posted the same thing I go by. I am afraid of hidden gluten, so stainless steel is the way I go for pans and utensils. It only takes a tiny bit of gluten to make me sick, though, so I can feel when I get contaminated. Try buying your pans one at time, or go to Wal-Mart for an inexpensive set. You don't need a lot of dishes, just one of each.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,729
    • Most Online (within 30 mins)
      7,748

    jesscran1966
    Newest Member
    jesscran1966
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.