Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For The Ideal Info To Send To My Family

Emme999

Recommended Posts

Emme999 Enthusiast
Emme999
Posted

Hello :)

My doctor wants me to inform all of my first and second degree relatives that I have been diagnosed with celiac disease so that they can get tested. I really don't want to call all of them though :blink: So... I was thinking that I would just print up some info and mail it to everyone.

Can anyone recommend a really comprehensive but easy to understand article? I don't want it to be too simple because I've already had a few relatives saying things like, "Oh, well I can eat wheat and I don't feel any different so I don't think I've got it" (when they have thyroid disease, bipolar disorders, diabetes, etc.) I'd like to find an article that says something like, "Look! You might have it and not have the typical GI symptoms! It's worth being tested or else your asymptomatic condition could turn into ..."

Know what I mean? :huh:

I have a whole bunch of links, but they are all either too long or too complicated or too simple. I'd love to see some suggestions, particularly if you've used a specific article to introduce celiac disease to the people in *your* life.

Thanks!

- Michelle :wub:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frenchiemama Collaborator
frenchiemama
Posted

Well, in my family we have a pretty good grapevine so I only told about 4 people and the rest took care of itself. I sent the articles from csaceliacs because I liked the way they explained things. Then my aunt (who is the head of a library at a medical school) inundated the whole family with about a million med journal articles.

Carriefaith Enthusiast
Carriefaith
Posted

Here are some links:

Open Original Shared Link

Symptoms: Open Original Shared Link

Complications: Open Original Shared Link

Statistics: Open Original Shared Link

I think there is enough info here. Hope this is what you're looking for!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,232
    • Most Online (within 30 mins)
      7,748
    Melvin McDowell
    Newest Member
    Melvin McDowell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @knitty kitty just covering back to this topic. I appreciate everyone’s help. Dairy was definitely adding to some of my issues but I wanted to ask about histamine. When I was working with my dietician I mentioned I got a stuffy nose when I was eating strawberries which I had just noticed one day in particular. Once I looked more into this I realized that histamine peaks at night and can cause insomnia exactly as I had been describing before. Working with her I realized while I wasn’t eating a lot of high histamine foods, I was eating a lot of histamine triggering or releasing like bananas (I was having several a day) and strawberries. Also some nights are worse than others but I also discovered meat sitting out even for a day can increase in histamines especially salmon which I eat quite a lot of even though I thought I was getting it fresh. Just wanted to know your thoughts and I’m just curious how this ties into celiac and leaky gut. 
    • Teaganwhowantsanexpltion
      A little about me and my celiac disease

      By Teaganwhowantsanexpltion · Posted

      I was diagnosed at 6 after having severe stomach pain after eating white bread or any kind of gluten my sister had one done aswell I was scared for the biopsy but thats bc the gas mask thing but now that I am a 14yr old female struggling with severe chronic pain making my body ache for no reason making it hard to sleep and do the things I love like playing spot which I love to do but I can sometimes not even be able to walk bc my knees hurt so bad I can or my hips or back the only think I wish for is to be a normal kid which I can't even be and I get accused of faking pain bc there is no physical things to notice especially at school when one day it will be so sore im limping the next im walking perfectly fine idk if its all from celiac disease but im the only one in my family that has this problem 
    • xxnonamexx
      Healthy Gluten Free Foods low sugar that you found?

      By xxnonamexx · Posted

      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.