Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Theory


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

Today I'm sick as a dog. Nausea, vomiting, coughing, and feeling weak and tired. I feel like I got glutened but I'm pretty positive I did not.

I've seen other people post about this happening to them before and I have a theory. I have also seen people post about gluten being trapped in our bodies, in our intestines, and our brains. So my theory is that maybe gluten is lodged in places and when it gets released we get glutened again.

Is that silly? Or does it make sense? I've lost a few pounds and my husband said that maybe as I lose weight gluten is getting released like a toxin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Maybe you caught a virus or a touch of food poisoning? Its possible to eat the same dish as others & get the one part that has bacteria growing. Also, you (we) may be a bit more succeptable to these things or get hit harder by them. My MD doesn't seem to know much about celiac disease but he did think I should stay away from kids when a stomach virus is going around as it might hit me harder.

Whatever: Sorry you are not feeling good feeling s*&((y.

tictax707 Apprentice

I am so sorry to hear that you are sick!! This is a very interesting thought. It has happened to me before that I get sick as if I am getting gluten, but cannot trace any gluten anywhere (even after calling ALL manufacturers of anything I have eaten since I felt bad), and there were no colitis triggers. I'm in research, so my science brain is off to figure out whether or not this is medically feasible. Just wanted to send some quick sympathy first though. ;)

Gemini Experienced

Today I'm sick as a dog. Nausea, vomiting, coughing, and feeling weak and tired. I feel like I got glutened but I'm pretty positive I did not.

I've seen other people post about this happening to them before and I have a theory. I have also seen people post about gluten being trapped in our bodies, in our intestines, and our brains. So my theory is that maybe gluten is lodged in places and when it gets released we get glutened again.

Is that silly? Or does it make sense? I've lost a few pounds and my husband said that maybe as I lose weight gluten is getting released like a toxin.

One of the hardest things a newer Celiac has to remember is that not everything is caused by gluten. Sounds like a virus or maybe the flu but not gluten. If you have been gluten-free and follow the diet strictly, any trace amounts should vacate the property and not come back! :P

WheatChef Apprentice

The average person gets salmonella poisoned a handful of times every year.

tictax707 Apprentice

Unfortunately I can't find much in the way of a definitive answer after wading through the literature, and now my break is over. Ultimately gluten would have to a) get past the gut via the leaky gut syndrome (a phenomenon that I am not sure is fully accepted), and 2) gluten has be to able to actually be taken up by the tissue. The biggest fraction of gluten is 130kDa, and I read that cells can take up proteins to 150kDa. However, I don't know whether or not this actually happens in the human body. Sorry I couldn't help prove/disprove the theory more. If I find out anything else I will post. Ultimately I guess all you can do is treat the symptoms best you can and rest up...

Stylo Rookie

I like your theory, though I'm not sure it is possible. I've heard that some drugs stay in your fat and if you lose weight they get re-released. I don't know if thats true, but I know someone who lost a lot of weight and had an acid flashback.

You could just be sick, I didn't think I had a gluten allergy for the past two years because I thought I was getting sick all the time and that was it. It feels the same to me, I quit smoking, lost weight, and couldn't stop being sick. Let's hope it's just the flu :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

Unfortunately I can't find much in the way of a definitive answer after wading through the literature, and now my break is over. Ultimately gluten would have to a) get past the gut via the leaky gut syndrome (a phenomenon that I am not sure is fully accepted), and 2) gluten has be to able to actually be taken up by the tissue. The biggest fraction of gluten is 130kDa, and I read that cells can take up proteins to 150kDa. However, I don't know whether or not this actually happens in the human body. Sorry I couldn't help prove/disprove the theory more. If I find out anything else I will post. Ultimately I guess all you can do is treat the symptoms best you can and rest up...

Thanks for looking that up. How cool to be in research!

Gemini- "vacate the property" :lol::lol::lol::lol:

I feel like I have a virus or some food poisoning. I hope my theory is totally wrong because what a scary thought that it could do that. I guess there's always accidental glutening. My kids are not gluten free, but I'm very careful about crumbs, etc.

Whatever it is, it sucks!! lol

Lgood22573 Rookie

I think it sounds like a virus or food poisoning as well. Hope you feel better really soon!

tictax707 Apprentice

Yeah - hopefully this theory won't pan out!! I don't know why, but my spidey sense tells me that gluten probably can't hang around and hide and bite you randomly later. It does sound more like a virus of some sorts. You've been through a lot recently! You might be more suseptible to stuff than normal... Regardless, I hope it goes away pronto!

ravenwoodglass Mentor

It does sound to me also like you have picked up a virus.

Gluten would not stay in your system and it does not cross into the brain etc. What does happen is the antibodies flow through the system and that is what is technically causing a 'gluten reaction'. They do subside after we have been gluten-free for a bit but CC or an accidental glutening create a cascade of antibodies going again. The amount needed to trigger the antibodies can be as little as just a few part per million. It isn't the gluten flowing through our bodies but our bodies reaction to it that makes us ill.

Fozzie Newbie

I can relate to your situation. After 5 weeks on this diet I was feeling "Normal"( relatively) for about 5 days and then something happened after dinner on Tues. I think that the chicken was off as my husband had indigestion after eating it . As for myself the lymphocytic gastritis has been causing turmiol for 3 days (stinging and pain) and my gut is rolling again. I have been extremly careful about the food I have ingested over the past month and this is depressing! I don't think that gluten can hide in our bodies but rather because of the damage we have incurred to our GI system we may be more susceptable to other pathologies.

Question- Does anyone else have lymphocytic gastritis along with celiac?

JNBunnie1 Community Regular

Oddly enough, since I've been gluten-free I've had pretty much a cast-iron stomach when it comes to food poisoning. I've only gotten hit once, I'm able to clearly determine the difference between food reactions and food poisoning, fortunately for me, the symptoms are very different, I only puke with food posioning. I got the one incident of food poisoning because I was stupid, too, left chicken salad out too long and then ate it. I've taken some other risks and never got hit, even when my boyfriend did, isn't that weird? Well, we've already established I'm weird.... :)

GFinDC Veteran

Hmmm, is coughing one of your usual symptoms with a glutening? If it not, then it sounds like a bug in the tummy.

I don't think gluten can hide out inside us, although people with diverticulitis might think differently.

You might want to write down everything you ate the day before and keep that list. It might lead you to another food intolerance.

I've heard about chemicals being stored in fat, (from the infamous Dr. House of TV land).

Get better! :)

gabby Enthusiast

Hi,

There are lots of food recalls going on all the time...and it might be a good idea to check the FDA recall website once in a while to see if anything there effects you. They will list things being recalled due to undeclared allergens, undeclared gluten, undeclared other ingredients, or due to things like suspected salmonella, listeriosis, etc. There's one product listed from April 1, 2010 that is being recalled because of undeclared wheat and barley ingredients....

Open Original Shared Link

Hope that helps!

GFLindsey Explorer

I can relate to your situation. After 5 weeks on this diet I was feeling "Normal"( relatively) for about 5 days and then something happened after dinner on Tues. I think that the chicken was off as my husband had indigestion after eating it . As for myself the lymphocytic gastritis has been causing turmiol for 3 days (stinging and pain) and my gut is rolling again. I have been extremly careful about the food I have ingested over the past month and this is depressing! I don't think that gluten can hide in our bodies but rather because of the damage we have incurred to our GI system we may be more susceptable to other pathologies.

Question- Does anyone else have lymphocytic gastritis along with celiac?

Fozzie -- I have been searching on here for someone else with lymphocytic gastritis! UGH. I have lots of questions for you! I am going to send you a PM.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748

    Cbear
    Newest Member
    Cbear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.