Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Delayed Food Reactions


Leper Messiah

Recommended Posts

Leper Messiah Apprentice

Hi,

Anyone experience (or know that they do!) delayed symptoms for any of their intolerances. Generally for me my symptoms are extreme tiredness and hunger straight after eating as well as a blown up stomach but like today I'm fairly sure I haven't had any gluten, accidental or otherwise yet my symptoms are quite severe.

Just made me think it could be a delayed reaction to something I ate at the weekend, not gluten but I accidentally had a lot of food that sneakily had milk powder in it which I didn't notice until after I'd eat quite a bit of it and I'm pretty sure milk is a problem food for me.

Any experiences/thoughts on delayed onset food allergies?

What a pain in the @ss these reactions are...oh to eat like a 'normal' person.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor

Hi,

Anyone experience (or know that they do!) delayed symptoms for any of their intolerances.

Yup - dairy and soy reliably give me a rash that sets in about 36 hours after I eat them.

Jeanne

ravenwoodglass Mentor

My neuro symptoms and stomach growling happen pretty quick. My GI issues, DH breakout and muscle and joint pain don't normally hit until 3 or 4 days later. My allergist said this was normal for intolerances and that for some the reaction can take up to a week.

hypersof Apprentice

well, I'm still fairly new to all that (1 month gluten-free),

but it seems that for me, the GI symptoms hit around a half day after accidental "glutening", and the rest of the symptoms (brain fog, rash...) arrive a couple days later...think I got glutened about 6 days ago, my digestive tract is getting back to normal (BM need time but insane bloating was gone pretty quick), and the fatigue and rash are just begginning to slow down now...

I hope this is all going to be behind me very soon, & hope the same for you!!

Sophie

Leper Messiah Apprentice

Just out of interest when you start on the gluten free diet, how far back does one glutening put you?

I've gone gluten, soy and dairy free and think I've just about found a daily diet that I can stick to but fearful that because the person I live with isn't gluten free that a crumb or two may have sneaked under the radar onto my plate/food and into my stomach.

bridgetm Enthusiast

I felt minor symptoms immediately after that pie incident on Sunday, but I didn't start to get severe abdominal pain until late last night and this morning and it's steadily getting worse. It doesn't help that I crash-tested a few questionable things, such as a single Quaker Quake. I've learned my lesson, but I've just gotten so tired of reading labels and planning every bite.

Relatively on topic... Anyone have any post-glutening tips? Do you simplify your diet as much as possible your system returns to "normal"? Focus more on hydration? Or just make sure you don't get glutened again so as not to compound the symptoms?

Wolicki Enthusiast

Simple foods, lots of water, no dairy and probiotics. There is anecdotal evidence that LGlutamine helps, but I have not tried it yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Leper Messiah Apprentice

Why do you say no probiotics?

jackay Enthusiast

Why do you say no probiotics?

I'm sure she means simple food, lots of water, probiotics and no dairy.

bridgetm Enthusiast

Simple foods, lots of water, no dairy and probiotics. There is anecdotal evidence that LGlutamine helps, but I have not tried it yet.

I've been drinking lots of water today and eating the basics (fresh fruits, veggies, some lean meat, peanut butter, a potato and some gluten free banana bread). I've noticed some definite improvement though the pain is worst within an hour of eating; the general abdominal pain is now more localized. It's bothering me, but at least I'm not curled up in a ball.

I've been avoiding dairy for over a week and started taking a multi-vitamin. Any probiotic suggestions?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,677
    • Most Online (within 30 mins)
      7,748

    shayansh
    Newest Member
    shayansh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.