Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unable To Work Out


masterjen

Recommended Posts

masterjen Explorer

Working out is a passion of mine; what might be called a hobby. However, the worst of all the celiac symptoms kicked in when I was diagnosed (in Feb. 2010). When I've tried to work out, even for 10 minutes and doing perhaps a tenth of the intensity I normally would train at, I would end up with muscle tremors, extreme weakness, and then headache. I have "tested" myself periodically during this time with similar results. A few days ago I tried again (and for 25 min. rather than 10 min.): the tremors did not occur, and the post workout weakness and headache were much less intense. So, I am improving with those symptoms, but for the next day I had diarrhea, felt generally unwell for the next 3 days (headachy and lethargic, with stomach/intestinal discomfort). Has anyone been similar to me? Is there hope for me to resume one of my favourite hobbies?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nyctexangal Rookie

I feel your pain. I've been unable to work out due to the chest pain I have with Celiac. I was just Celiac diagnosed (and have gone gluten-free) for the past 7 weeks. I was a personal trainer for 3 years as well. I know the deep desire to get in the gym and rock it out. But I think it's really important to allow the body to heal, and not add any more stress to it than we already are.

Since in Celiac, we experience severe malabsorption, the symptoms of Celiac can be WAY worse after working out, since you're depleting your body of vitamins and minerals- which it is already having to struggle to absorb. So in my opinion, once the body heals, working out will be awesome. So for now...lots of gentle walking to this end. Make sure your taking the correct vit/minerals. Especially B vitamins- it's helped my symptoms a lot. That and Fish oil. :)

tictax707 Apprentice

Hi... I am so sorry to hear about your battles. Although I haven't had your symptoms exactly, I had have problems working out in that past when I get sick, either from gluten/dairy or eventhe common cold or flu. Ultimately I would say that your body is still adjusting to the changes in your diet. In the grand scheme of things two months is nothing compared to how things have been during your whole life up until now. It might be rough going for a bit, but I promise you it will get better as long as you are extremely strict with the diet and don't "cheat." One of the things that I have found recently is that I am extremely sensitive to dehydration. Your symptoms post workout might be due to dehydration...? It couldn't hurt to make super sure you are well hydrated before attempting your next training session. And it sucks but you do have to ease into it too. After trying in 10 minute intervals, a 25 minute interval is more than twice that! Your body was probably pretty overwhelemed. I find that sports drinks are very helpful - even if they are pretty dilute. For your symptoms now i would reommend pedialyte, although I am not sure what the equivalent would be for your area. It's basically a liquid given to babies to help get their electrolytes back in balance when they are sick. Hope this helps, and feel free to ask more questions! I love, love, love, my training and working out, so rest assured I understand both the passions and the frustrations!

Heidi S. Rookie

Have no fear, you will feel better!

I suffered from horrible fatigue and became unable to exercise at all before going gluten free. To my knowledge with NO Contamination set backs it takes ~3 months for your system to heal internally. Your body is still working very hard to repair damage and that is not taking into account that there is a gluten-free learning curve about everything in your life becoming gluten free (food, drink, skin, hair, body products, exposure, cross contamination, etc.). You may be still be getting small amounts that you are fighting. Every glutening will set your system healing back as well.

Do not be discouraged I have been able to exercise being almost a year gluten free MORE than ever in my entire life! My vitamin levels are back up, I have more energy, and my endurance increases with less chest pain now more than ever! Gluten has a detox period and you will overcome your hurdles. Be patient with your body, you are healing, and when setbacks occur listen to your body and take it easy. I step up my exercise when I can and step it down if I am having a problem. The increase in adrenaline and endorphins can make an already upset system a bit more irritated.

I would not worry yet, give it a few months and keep pushing through with what you can handle! This is just my opinion, I am not a doctor but from my experience celebrate your healing and every baby step you can! Best of Luck!

masterjen Explorer

I really appreciate the supportive and encouraging input! Thank you!!! :) It helps to hear this from those who also love to work-out and exercise, rather than to hear comments from my non-exerciser friends and family who say 'you were probably working out too much before anyway" - lol.

tictax707 Apprentice

ha, ha...! True that. People have thought I am nuts for my hobbies, and that's not even taking into account the celiac disease! Heidi is right - that once you get the hang of it, you will almost certaintly feel much better than you ever did before you were diagnosed. I finished my first full ironman in November, and I am sure I would have nearly killed myself trying to finish that distance before my diagnosis. Hang in there, and keep coming back for questions! :D

Glutenfreenoobie Rookie

Working out is a passion of mine; what might be called a hobby. However, the worst of all the celiac symptoms kicked in when I was diagnosed (in Feb. 2010). When I've tried to work out, even for 10 minutes and doing perhaps a tenth of the intensity I normally would train at, I would end up with muscle tremors, extreme weakness, and then headache. I have "tested" myself periodically during this time with similar results. A few days ago I tried again (and for 25 min. rather than 10 min.): the tremors did not occur, and the post workout weakness and headache were much less intense. So, I am improving with those symptoms, but for the next day I had diarrhea, felt generally unwell for the next 3 days (headachy and lethargic, with stomach/intestinal discomfort). Has anyone been similar to me? Is there hope for me to resume one of my favourite hobbies?!

Young male here. I've had problems working out. In fact the reason I decided to go gluten free in the first place was because I was having trouble working out. I tried increasing my protein but I ate my protein on bread (sigh). My main problem is just the general feeling of unease and bad when I start warming up. I mean I go on my stationary bike for 2 mins at low intensity and I feel awful.

Second main problem is my abs. I get through the workout but then I have to run to the toilet every 10 mins for the next couple days. Could gluten intolerance weaken my abs? I know in Pilates class I was getting beaten by middle age guys with beer bellies that claimed this was their first Pilates class. Meanwhile I've been training my abs for years and couldn't do 1/3 of what these middle age guys were doing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Heidi S. Rookie

Young male here. I've had problems working out. In fact the reason I decided to go gluten free in the first place was because I was having trouble working out. I tried increasing my protein but I ate my protein on bread (sigh). My main problem is just the general feeling of unease and bad when I start warming up. I mean I go on my stationary bike for 2 mins at low intensity and I feel awful.

Second main problem is my abs. I get through the workout but then I have to run to the toilet every 10 mins for the next couple days. Could gluten intolerance weaken my abs? I know in Pilates class I was getting beaten by middle age guys with beer bellies that claimed this was their first Pilates class. Meanwhile I've been training my abs for years and couldn't do 1/3 of what these middle age guys were doing.

Have you gone to a celiac or gluten intolerance specializing nutritionist? One thing that helped me very much was working with a nutritionist to balance my gluten free diet. I also had significant vitamin deficiencies and need prescription vitamins for a time and now I remain on a multi-vitamin. Also take vitamins at night before bed and I do not eat very much before working out. I normal stick to cereal or like a little rice, chicken or avocados (stomach settling food). Heavy protein before working out maybe too much on a healing system. I know my energy and strength has increase with balancing my vitamins. Hope it helps!

Glutenfreenoobie Rookie

Have you gone to a celiac or gluten intolerance specializing nutritionist? One thing that helped me very much was working with a nutritionist to balance my gluten free diet. I also had significant vitamin deficiencies and need prescription vitamins for a time and now I remain on a multi-vitamin. Also take vitamins at night before bed and I do not eat very much before working out. I normal stick to cereal or like a little rice, chicken or avocados (stomach settling food). Heavy protein before working out maybe too much on a healing system. I know my energy and strength has increase with balancing my vitamins. Hope it helps!

I don't have a lot of extra money so I try to avoid seeing extra professionals, in this case a nutritionist. For the same reason I avoid supplements. I'm just going to go gluten-free and listen to my body. Hopefully my digestive system is still intact enough that I'm not suffering from any malnutrition.

dilettantesteph Collaborator

You haven't been diagnosed very long. I imagine you just need more time to heal and figure out the diet. I found that working out seemed to point out any trace gluten that I might have missed. I would notice symptoms if I worked out that I missed if I didn't do much. I just got my diet more and more pure until I stopped having the symptoms. Friday I swam 2000 yards. Can't do that with GERD! It took me 2.5 years to get here. I hope you manage to get there faster. Good luck to you.

bridgetm Enthusiast

I've been having the same problem. I kayak upwards of 15 miles a week during the summer so once I'm back on campus I do a lot of ab and core work, lats, triceps, everything. It always takes me a while to build up my program in the fall because I don't do any dry-land work in the summer, but I was doing great this year (from cruches, to sit-ups, to weighted sit-ups and Russian twists)... until I started having trouble with gluten.

I won't ramble on here with how my symptoms started since I've described that on a few other topic posts. Long-story short, my lower-left quadrant abdominal pain has decreased some in the last month that I've been gluten-free. I know I'm probably being cross-contaminated here and there and at times I get tired of reading labels and won't check until after I've spent the day curled in a ball (I've learned my lesson), but overall I've noticed improvement.

After about two weeks, since I wasn't in any acute pain (my abdomen often only hurts if I put pressure on it) and stretching didn't aggravate it, I decided to stretch out really well and try some sit-ups. I think I got through about 2 sets of 6 before I was exhausted. To put that into perspective, in January I was hitting 3 sets of 10 with no weight and 2 sets of 8 with a 10 lb steel plate. I thought it was because I had gone from 3-4 workouts/week to no activity for almost a month, but then for a few days after I just didn't feel good. Abdominal pain, bloating, etc. All the good stuff. Since I've been so up and down since then (due to cross-contamination in a school cafteteria, misreading of labels and who-knows-what else I did wrong) I haven't even done crunches.

I'm trying to be more careful (once I get home from school in three weeks and control every surface that all of my food touches it will be much easier) and I'm really hoping that this improves soon because this lack of activity is driving me insane. I can't even hit my makeshift kayak ergometer without facing about a week of recovery time. Gatorade and peanut butter always set me up for a smooth recovery day and immediate progress, but even those miracle-workers don't touch this.

tictax707 Apprentice

Bridgetm, have you tried pedialyte? I have found that when Gatorade doesn't help me out, pedialyte will. More electrolyes maybe? The clear stuff is well, clear, so no funny dyes like the bright, vivid colors of gatorade. I can't imagine that all those dyes are good for you, but unless I am really bad off, I guess I can handle them ok.

I too, am a huge peanut butter fan. :) YAY for PB!! :) Going to make my own here in a little bit.

One of the things that makes me the most depressed is when I can't work out either - I feel ALL out of whack and batty. I trust you are keeping the foods really easy and basic (rice, bananas, PB) to help your tummy rest...?

I am sorry you have been knocked down, and I hope you feel better soon!!!

bridgetm Enthusiast

Tictax- I didn't think of trying Pedialyte; maybe I'll pick some up this weekend. I am trying to eat only simple foods. Bananas, peanut butter, sweet potatoes and Uncle Ben's microwave-ready rice are staples. I also eat some gluten-free rice cereals and cereal bars, Bakery on Main's trail mix bars, and of course Lara and Bumble Bars. Sometimes I'll go for a few Lay's chips but I always know immediately that my stomach's not happy with that decision. I definitely need to be a bit more careful about that processed stuff, but right now I'm living in a dorm room with no fridge and a packed schedule. But bananas, Bumble Bars and peanut butter are pretty convenient.

tictax707 Apprentice

Tictax- I didn't think of trying Pedialyte; maybe I'll pick some up this weekend. I am trying to eat only simple foods. Bananas, peanut butter, sweet potatoes and Uncle Ben's microwave-ready rice are staples. I also eat some gluten-free rice cereals and cereal bars, Bakery on Main's trail mix bars, and of course Lara and Bumble Bars. Sometimes I'll go for a few Lay's chips but I always know immediately that my stomach's not happy with that decision. I definitely need to be a bit more careful about that processed stuff, but right now I'm living in a dorm room with no fridge and a packed schedule. But bananas, Bumble Bars and peanut butter are pretty convenient.

Cool - I hope it helps you too. If you remember, let me know if you think it worked for you too.

Sounds like you have a good simple-food plan. I love love love the bumble bars, but have found they can cause my system to get a bit rumbly when I am healthy, so I stay away when I am not. (but that's just me) ;)

  • 1 month later...
pamelaD Apprentice

I am also a workout fanatic...

I was so sick just before I was diagnosed and lost ~25 lbs (down to about 105) and could not do my usual workout: short of breath, weak, tired. As I started to feel better and wanted to get back to physical activities, I discovered yoga. I started slow and fell in love with it.

Now - 6+ years later, I do my cardio workout in the gym in the morning and then go to my yoga studio 3-5 times a week in the evening and on weekends.

Seriously- start back slow... don't push it. Take care of yourself. Yoga, for me, was the perfect way to get back into feeling better physicaly.

Good Luck,

Pam

  • 4 weeks later...
Wheatfreedude Apprentice

Meanwhile I've been training my abs for years and couldn't do 1/3 of what these middle age guys were doing.

Middle aged guys rule!

:P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.