Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guess Who Got Glutened!

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

Yep, I got Glutened by an Amy's gluten-free/DF spinach Pizza. It was really mild compared to the Great Cheerio Incident (I hadn't been diagnosed yet) but still, I am laying on the couch with an upset stomach now.

Is it possible that it wasn't the pizza and just that I am still adjusting to the diet?

Either way, lime gatorade and rice cakes seem to be my best friends right now :P

Luckily kid is in bed and husband is flying so I am able to wallow on my own.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Generic Apprentice
Generic
Posted

Amy's doesn't have a very good reputation for their gluten free foods. I won't touch them personally. Too many peopl have gotten sick from them, myself included.

K8ling Enthusiast
K8ling
Posted
  • Author

OOOOH BOY do I know that now, I feel terrible. I'm balled up in bed with my dog and my gatorade.

NO MORE AMYS FOR ME!!!

starrytrekchic Apprentice
starrytrekchic
Posted

It was definitely the pizza. I've eaten Amy's twice since going gluten free and I was glutened (badly) once.

Amy makes food on shared lines, and though they clean them and test to make sure they're below the 20ppm required to label foods 'gluten-free' their food isn't by any means safe, especially for the more sensitive celiacs.

Open Original Shared Link

K8ling Enthusiast
K8ling
Posted
  • Author

It was definitely the pizza. I've eaten Amy's twice since going gluten free and I was glutened (badly) once.

Amy makes food on shared lines, and though they clean them and test to make sure they're below the 20ppm required to label foods 'gluten-free' their food isn't by any means safe, especially for the more sensitive celiacs.

Open Original Shared Link

I was telling my husband, even if they clean it between every gluten/non gluten thing, all it takes is ONE person having a bad day and slacking off and suddenly there's a bunch of celiacs sick lol.

Thanks for letting me know I'm not crazy!

Rachel W Apprentice
Rachel W
Posted

My sweet sweet mother bought be some Gluten free "mini" muffins, should be Micro , they were tiny ! Anyway I forgot who the manufacturer is. So I was working on the road today and decided to try ! WRONG ! i swear it felt like 5 minutes after it hit my gut the gas bloating and cramps started ! Scary part is in addition to saying Gluten Free on the package it also saied- SUGER FREE, 1 NET CARB... So if they are wrong about the gluten what about diabetic patients what will it do to them ! :blink:

i-geek Rookie
i-geek
Posted

Yep, I got Glutened by an Amy's gluten-free/DF spinach Pizza. It was really mild compared to the Great Cheerio Incident (I hadn't been diagnosed yet) but still, I am laying on the couch with an upset stomach now.

Is it possible that it wasn't the pizza and just that I am still adjusting to the diet?

Either way, lime gatorade and rice cakes seem to be my best friends right now :P

Luckily kid is in bed and husband is flying so I am able to wallow on my own.

:o

I bought one of those and ate half last Wednesday (and I was pissed off because I'd meant to grab the one with dairy cheese and didn't realize my mistake until I got home). I'd been CC'd at a restaurant earlier that day and was already feeling lousy. If there's a bad batch of those pizzas out there, that explains why I had the worst gluten migraine yet for 3 days straight- and why it got worse after I ate the pizza. I was confused because I don't usually get that sick with a minor CC incident.

Rats. Pizza crust is the only thing I haven't figured out how to make well. Back to square one.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Another possibility is that you are intolerant to soy. That pizza is loaded with it. I mention this because it took me literally years to realize that many of the gluten-free foods that I thought had CC'd me had soy and it wasn't the CC that was an issue it was my intolerance to soy.

ciavyn Contributor
ciavyn
Posted

I have extreme reactions to sugar free things. Sugar alcohols go right through me. So that may have played a part too.

K8ling Enthusiast
K8ling
Posted
  • Author

:o

I bought one of those and ate half last Wednesday (and I was pissed off because I'd meant to grab the one with dairy cheese and didn't realize my mistake until I got home). I'd been CC'd at a restaurant earlier that day and was already feeling lousy. If there's a bad batch of those pizzas out there, that explains why I had the worst gluten migraine yet for 3 days straight- and why it got worse after I ate the pizza. I was confused because I don't usually get that sick with a minor CC incident.

Rats. Pizza crust is the only thing I haven't figured out how to make well. Back to square one.

Kinnikinik (I spelled that wrong) makes AWESOME pizza crusts, they're frozen and my toddler AND husband ate it ALL. I had to make more for me lol. No reactions, and very tasty. Hope that helps your pizza dilemma!

OH YEAH and that other Amy's pizza I had in the freezer? I fed it to my toddler. He thought he was super special and it made his day when really he was just getting rid of it for mommy :P

K8ling Enthusiast
K8ling
Posted
  • Author

My sweet sweet mother bought be some Gluten free "mini" muffins, should be Micro , they were tiny ! Anyway I forgot who the manufacturer is. So I was working on the road today and decided to try ! WRONG ! i swear it felt like 5 minutes after it hit my gut the gas bloating and cramps started ! Scary part is in addition to saying Gluten Free on the package it also saied- SUGER FREE, 1 NET CARB... So if they are wrong about the gluten what about diabetic patients what will it do to them ! :blink:

Aww it might have been the fake sugar! That has gotten me before.

i-geek Rookie
i-geek
Posted

Kinnikinik (I spelled that wrong) makes AWESOME pizza crusts, they're frozen and my toddler AND husband ate it ALL. I had to make more for me lol. No reactions, and very tasty. Hope that helps your pizza dilemma!

OH YEAH and that other Amy's pizza I had in the freezer? I fed it to my toddler. He thought he was super special and it made his day when really he was just getting rid of it for mommy :P

Thanks for the recommendation! There are a couple of stores near work that carry those. I'll have to check them out SOON.

JNBunnie1 Community Regular
JNBunnie1
Posted

Thanks for the recommendation! There are a couple of stores near work that carry those. I'll have to check them out SOON.

Also, if your store has it, try the Against the Grain brand of pizza crusts. They're more expensive, but they're WORTH IT. I think the Kinikinnick are also very good, but find them to be a bit sweet, which works well if you top with spicy stuff or make a dessert pizza.

i-geek Rookie
i-geek
Posted

Also, if your store has it, try the Against the Grain brand of pizza crusts. They're more expensive, but they're WORTH IT. I think the Kinikinnick are also very good, but find them to be a bit sweet, which works well if you top with spicy stuff or make a dessert pizza.

Oh, awesome! According to the website, my food co-op carries the Against the Grain products (as does one of the stores that carries the Kinnikinnick line). Thanks for the recommendation.

JNBunnie1 Community Regular
JNBunnie1
Posted

Oh, awesome! According to the website, my food co-op carries the Against the Grain products (as does one of the stores that carries the Kinnikinnick line). Thanks for the recommendation.

Also, the baguette, when split in half and toasted/baked with garlic butter on top, makes BANGIN garlic bread, just like the stuff you're used to. Just put the garlic butter on top before you bake, not after, or else the baguette dries up and gets hard.

tom Contributor
tom
Posted

With regard to Amy's, for years I've heard of ppl feeling CC'd by Amy's Frozen Food products, but not the rest.

I can't remember anyone w/ a problem w/ Amy's soups or chili.

Even *I* can eat one of the chili varieties. (I'm practically whole alphabet-free, much more than I list at bottom)

K8ling Enthusiast
K8ling
Posted
  • Author

Also, the baguette, when split in half and toasted/baked with garlic butter on top, makes BANGIN garlic bread, just like the stuff you're used to. Just put the garlic butter on top before you bake, not after, or else the baguette dries up and gets hard.

HAHA I could have used this tonight, I had to make due with some Udi's bread with my garlic bread stuff on it LOL it got the job done buuuut.....

Black Sheep Apprentice
Black Sheep
Posted

Rats. Pizza crust is the only thing I haven't figured out how to make well. Back to square one.

If you decide to try making it again, try this one:

Open Original Shared Link

I can't find sweet rice flour where I live, so I simply added more brown rice flour. That was the other thing I did different from the recipe, was used brown rice flour instead of white. It was nearly the best pizza crust I've ever had, and even non-g.f. hubby thought so, too. I say "nearly" the best because next time I make it, I'll probably make two thin crusts instead of one thick, as we like thin crust better. But even with thick crust, the flavor was so good!

sandsurfgirl Collaborator
sandsurfgirl
Posted

:o

I bought one of those and ate half last Wednesday (and I was pissed off because I'd meant to grab the one with dairy cheese and didn't realize my mistake until I got home). I'd been CC'd at a restaurant earlier that day and was already feeling lousy. If there's a bad batch of those pizzas out there, that explains why I had the worst gluten migraine yet for 3 days straight- and why it got worse after I ate the pizza. I was confused because I don't usually get that sick with a minor CC incident.

Rats. Pizza crust is the only thing I haven't figured out how to make well. Back to square one.

Gluten Free Pantry French Bread and Pizza mix! Best yummiest pizza crust. I spray my hands with oil so I can pat it down flat. I use a chunk for a small piza for myself and bake the rest into a loaf of bread.

jenngolightly Contributor
jenngolightly
Posted

HAHA I could have used this tonight, I had to make due with some Udi's bread with my garlic bread stuff on it LOL it got the job done buuuut.....

Udi's makes fabulous products - their pizza crust is great. Better than kinnikinnik's. Super-soft cinnimon rolls. And bagels that taste good straight from the bag - no toasting required. I hope you can find some of these products where you live.

I heart Udi's.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.