Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Want To Live Life! But Nervous...


The Glutenator

Recommended Posts

The Glutenator Contributor

I have the opportunity to go to Germany for work, and want to take a month off after the conference to go to France and Spain. I am very exited, but apprehensive about the eating situation. I don't want celiac disease to prevent me from traveling as I think it is an amazing part of life! my family has also voiced there concerns and some think I should not go at all. Does any one have any advice? Can I make it for a month with out starving to death? I am disappointed to be missing out on the cultural foods, but there is still lot to see! Any support or advice would be very appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tictax707 Apprentice

My vote is to go for it. I would do a lot of research beforehand about the places that you will be visiting. Find out places to eat and places to buy food. You can also ship from here to your hotel. Find hotels with mini fridges and microwaves.

Do you speak any French or Spanish? There are triumph dining cards in Mexican spanish and french. Hopefully you won't annoy the Spaniards with Mexican spanish, but it's better than nothing if you don't speak the language.

I spent three weeks in New Zealand and Australia. Granted the awareness is a little better there than here, but I didn't know that going into it. I shipped food to my hotels. I did a LOT of research on the internet first. There are meals that you can make where you just add water. There is another meal much like a TV dinner, that is vaccuum sealed & ok at room temp so you don't have to worry about keeping it cool (or shipping it cool for that matter). I can't for the life of me remember the name of it, but I know it was kosher too.

This looks like it might be a helpful site:

Open Original Shared Link

Let us know what you decide!!

Jestgar Rising Star

If I were there I would be beating you over the head with a guide book yelling GO! GO!

It's just food. You can always find something to eat, and just as you've learned to cope here, you can learn to cope anywhere.

jenngolightly Contributor

I've heard that they're much more sensitive to celiac over there than they are here. Have a great time!

The Glutenator Contributor

Thanks for all your support. I am 24 and my parents have actually said they "forbid" me to go because they are so worried. I don' know what to say to ease their minds and it is really stressing me out.

tictax707 Apprentice

I was 24 once and my parents forbade me to do something or other. Do you need their monetary support? There comes a time to break away and do your thing. Not one person so far has said don't go, and we are ALL staunch gluten-fearers. It's understandable that your parents worry about you, but I am sure we will be joined by more voices that say it CAN be done. Maybe you could even use what you find here to help convince them to support you in your decision to go. Tell them about your research that you will do about places to eat and food you can buy. Then, after you have done your research you can SHOW them what you found and what your plan of attack is. My parents were also once very overbearing and controlling, and that is how I dealt with them. And it really worked. Now they leave me alone thank goodness, but it's part of the process, and yes I was still going through it in my 20s, so don't feel bad about that. Let us know how it goes and how else we can help!! :)

Ahorsesoul Enthusiast

Europe is much more advanced about celiac and gluten free eating than the USA. Go enjoy and be sure to report back here about what you find and places to eat. Son just returned from a week in Paris and a week in Germany. He absolutely loved Germany. Probably will not go back to Paris. Germany is so much better. Enjoy.

Found this article:

Open Original Shared Link

Beside you are an adult. You can go if you if you desire. Why pass up this once in a lifetime opportunity.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Thanks for all your support. I am 24 and my parents have actually said they "forbid" me to go because they are so worried. I don' know what to say to ease their minds and it is really stressing me out.

Believe it or not, I am always a bit nervous when I come to the U.S. :lol::o , away from the safety of what I know. However, of course I have this handy reference guide right here to keep me on the right path. Every country has different ways of doing food, but where I go to in Nevada has to be the gluten capital of the U.S. Someone even asked me if that was sugar :lol: That being said, there is so much food that is naturally gluten free and so much more awareness on the continent than in the U.S. ... you would be missing out on a tremendous experience to let fear of food keep you back, because I don't think it is necessary to be afraid at all. You have had some good suggestions here. Learn a basic gluten vocabulary, but you will be surprised how much English is spoken, (although I understand in France they don't often let on :rolleyes: , especially if they take exception to your 'franglais" :lol: ) I was even able to communicate in Italy about flax seed oil and we came to the conclusion that linseed oil was the same thing :)

Go and you will have a great time. Wonderful cheeses, sausages (that they don't stuff with gluten), olives, fruits, oh my, I want to go right now.

Lycopene Rookie

Meats, vegetables... I mean, you can live off of that for a month, right? Plus, it seems as if everyone is saying they're more advanced in the whole gluten-free-area than the US is. GOGOGO. DEFINITELY GO. Do NOT pass up an option to see the world, you will REGRET IT FOREVERRRRR.

Seriously. That's something everyone wants to do, and if you have the option available, TAKE IT. Please, for all of us here!!

EDIT: Whoa. =o Didn't need mod approval for this post. Yay. [:

GFLindsey Explorer

Here is a good way to look at things... You can always fly back home if you go and are too overwhelmed, stressed, etc. But you may lose this chance if you don't go for it now! Nothing is ever permanent so don't put too much pressure on yourself to stay if you are not comfortable or happy or healthy when you are in Europe. (Sometimes when I think of things in this way, it helps take the pressure off. Decisions are rarely permanent - so don't feel stuck!)

Celiactravel website has FREE gluten free dining cards in 49 langauages!!! Take them with you and let them do the talking!

kayo Explorer

I say GO! No question about it. Rarely do we get the opportunity to do such things especially as we get older. Jobs, kids, careers, life all seem to take precedence and once you hit that full time job you won't be able to take months off to experience such an amazing journey (you'll get 2-3 weeks of vacation tops). I wish I had traveled more when I was younger and had the time. It would have been budget travel (think hostels and pbj) but that's ok.

We have decided our next vacation will be in Europe since they do have a better understanding of gluten/celiac and they don't cook with so much soy (damn soy). Pour through this site for information. There's a travel section and use your google-fu.

If you show your parents you have staked out shops and restaurants where you can get gluten-free meals, plan to bring X gluten-free items with you, and ship X gluten-free items ahead of time AND you're willing to come home if you get very sick then I can't see why their concerns wouldn't be alleviated. They'll still worry of course but if you show 'you've got this' then that will go a long way in your favor.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.