Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Do The Right Thing?

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

I was out with my friend last night and at the bar i saw a urologist that i went to years ago who pumped me full of 6 months worth of antibiotics for no reason and this incidentally is what destroyed my insides and gave me food allergies and celiac disease; im convinced his ignorance is what is responsible for all my problems today. Anyway this Dr is an arrogant cocky jerk, would make me wait over an hour in his waiting room before he saw me and was rude and inconsiderate and show no sympathy towards me. Ultimately another doctor helped with my urinary issues, but by then it was too late and all the damage was done.

He was at the bar with his wife and I so wanted to curse him out and tell him how he ruined me life, or just spit in his face..but i didnt. i was with my friend and didnt want to make a scene and just walked away.

still seeing him brought back bad memories and ruined my night. sorry if this sounds psychotic or immature but did i do the right thing by not confronting him? He definitely spotted me and knew who i was but ignored me

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lycopene Rookie
Lycopene
Posted

You did the right thing. That's VERY big of you to not do that. I understand what you mean by that. My doctor almost KILLED me when I was younger.

I know exactly how you feel, but stuff like that never helps. You would've been kicked out, blahblahblah and it wouldn't have made you feel better. All you have to do is just shove it off to the side.

I don't believe in god or anything, but I DO believe that everything happens for a reason. For example, one of the reasons why I have celiac disease, I think, is to make me healthier... in a sense. I used to eat REALLY bad. Now I eat amazingly healthy and I LOVE it. The pain sucks... but yeah.

Good for you though, not starting anything. *Applauds you*

mushroom Proficient
mushroom
Posted

Well done, Jason. Some people are beyond education, so there's really no point in trying to tell anything to someone who already knows it all :P

katifer Apprentice
katifer
Posted

I have wanted to write some of the Dr.s that diagnosed me w/ random wrong things and just tell them it was GLUTEN! please dont continue to miss this with other patients! you did the right thing for sure. it is hard when you have suffered for such a long time to not want justice though.

jasonD2 Experienced
jasonD2
Posted
  • Author

I could've just splashed my drink in his face...maybe i woulda been kicked out of the bar but who cares...grrr

Lycopene Rookie
Lycopene
Posted

Be happy you didn't! Seriously, it's the bigger thing to do. You say he looked at you and knew who you were but said nothing? Obviously that's not being the bigger person.

So be pleased with yourself that you are. Being positive is a gooood thing, trust me!

eastvangal Newbie
eastvangal
Posted

I did write a doctor and a naturopath who misdiagnosed me, and enclosed an information sheet that I compiled on Celiac Disease. I could have used some of your restraint at the time, as I recall rashly sending it off with great angry enthusiasm and wish I'd have edited. It was quite early into my self-diagnosis.

But I've kept that information sheet and give it to family, friends and other doctors. I've even posted it at work (psychiatrists office), just to spread the information.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Good job Jason! Wouldn't have done any good to get in a fight & you could have ended up finding out what passes for gluten-free in jail. You could send him a note detailing everything that happened but I doubt he would read past the first 2 lines. If you do want to do that, write it & wait a few days. Then re-read & have someone or 2 or 3 someones read it first. Good restraint. Love - mom :P

jerseyangel Proficient
jerseyangel
Posted

You took the high road, Jason--you did the right thing.

I have to add that I understand completely the rage and frustration you felt towards him, and how good it would have felt for that one second to toss your drink in his face. ;)

ciavyn Contributor
ciavyn
Posted

Way to go! You definitely did the right thing. It would have done nothing to assuage your frustration and anger and only given him the right to blame you. Why give him that power?

Regardless of his poor treatment, you are taking control of your life and finding the answers he was too incompetent to discover. Take pride in that, and know that one day he will get his. God, karma, whatever. Stay strong and focus your energy on feeling as healthy as you can.

jasonD2 Experienced
jasonD2
Posted
  • Author

Thanks for all your support! A roundhouse kick to his skull would have been nice, but I know I did the right thing as well :)

JNBunnie1 Community Regular
JNBunnie1
Posted

Thanks for all your support! A roundhouse kick to his skull would have been nice, but I know I did the right thing as well :)

Sometimes the fantasy is SO much more satisfying than the reality (yes, I'm speaking from experience) so I say keep on daydreaming about that roundhouse to the head! Jerk. That, and telling everyone you know not to use that doctor is better revenge anyway. (Is it against board rules for him to tell us so we can avoid this doctor?)

psawyer Proficient
psawyer
Posted

It is not against the rules to name names, but Rule 1 applies. The wording in the opening post was okay because it did not identify the "arrogant cocky jerk," but to name him now would not be appropriate.

jasonD2 Experienced
jasonD2
Posted
  • Author

His name is Dr. Ahole ;) Hows that?

kareng Grand Master
kareng
Posted

His name is Dr. Ahole ;) Hows that?

That's my GI doc's name!

jerseyangel Proficient
jerseyangel
Posted

His name is Dr. Ahole ;) Hows that?

What a coincidence--I had one of those too! :lol:

sandsurfgirl Collaborator
sandsurfgirl
Posted

I had a Dr. Ahole, Dr. Moron, Dr. Idiot.

I would write a letter and send it to him with specific info about your lab results. Not an angry one, even though you want to send an angry one, but an informative one. I would make it short as possible. I called a couple of my old docs just to let them know and I plainly said "If you have another patient with an unexplained array of symptoms, please consider testing them for celiac."

jenngolightly Contributor
jenngolightly
Posted

That's my GI doc's name!

OMG - that's my GI's name, too! We all must be neighbors.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,031
    • Most Online (within 30 mins)
      7,748
    joanna19
    Newest Member
    joanna19
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By trents · Posted

      Here is an article that gives an overview of all tests that can be used to detect celiac disease:    As you can see, the different tests vary in their degree of specificity and sensitivity. So, it is to be expected that if someone has celiac disease, not all the tests will be positive. Also notice that the tests break down into two large groups, IGA-based tests and IGG-based tests. There is also the EMA (Endomysial Antibodies) which is an older test and has largely been supplanted by he tTG-IGA which is less expensive to administer. So, when you report that the TTG score from your daughter's bloodwork is 22ku/l, we assume you are referring to the tTG-IGA test, which is the most popular test ordered by physicians when checking for celiac disease and considered to be the centerpiece test. However, you do not mention if there was a "total IGA" test run. Whenever the tTG-IGA is ordered, a total IGA should also be ordered to check for IGA deficiency. IGA deficiency will result in other IGA test scores, such as the tTG-IGA being artificially low, even falsely negative. This is especially true for young children. This is discussed in the article I linked. If your physician did not order total IGA test, this should have been done. Do you have a recourse for requesting such? I should also mention that you must not withdraw gluten from your toddler's diet until all testing for celiac disease is completed. Doing so would invalidate the testing.
    • Scott Adams
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By Scott Adams · Posted

      I’m so sorry to hear about your toddler’s recent Type 1 diabetes diagnosis, and I understand how overwhelming it must feel to now be navigating possible celiac disease as well. The slightly elevated TTG antibodies (22 ku/L) with normal endomysial antibodies could indicate a few things—sometimes, mild elevations can occur due to factors other than celiac disease, such as recent infections or even Type 1 diabetes itself. However, the symptoms you’ve noticed (changes in stools, itching, and hair thinning) could potentially align with celiac disease, so it’s understandable why you’re concerned. Since the consultant wants to retest in 3–6 months, it may be because they’re assessing whether the antibody levels persist or increase, which would strengthen the case for further investigation (like a biopsy). In the meantime, if your daughter’s symptoms worsen or you feel uneasy waiting, it’s completely reasonable to ask for an earlier review or a referral to a pediatric gastroenterologist for further advice. Keeping a symptom diary until the next test might also help track any patterns. You’re doing a great job advocating for your little one—trust your instincts and don’t hesitate to push for more clarity if needed. Sending you lots of support.
    • mytype1diabetes
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By mytype1diabetes · Posted

      Hi all, Posting from the UK.  My 2 year old was recently diagnosed with Type 1 diabetes. In the UK they routinely screen for coeliac disease. The test showed slightly elevated levels of TTG antibodies. The consultant wants to repeat these antibodies in 3-6 months time to determine clinical significance. In our letter it said "marginally elevated TTG antibodies (22ku/l), normal endomysial antibodies". I'm not exactly sure what this means, especially given one of the tests were within the normal range, and if we should be worried about the numbers. It is difficult to know if she has any "symptoms" but at the time she was diagnosed with Type 1 diabetes I noticed that her stools had changed. They are now probably a Type 6 on the Bristol stool chart. She seems to be quite itchy which is a recent thing and over the past week I have noticed some hair loss/thinning. I feel very worried and I'm not sure I can wait for her to be retested in 3-6 months time.  I'd appreciate any wisdom, advice or information you have. Thanks 🙏🏼
    • slkrav
      Glutened from hair conditioner- check your body products and makeup !

      By slkrav · Posted

      I was feeling really sick last week, for several days I kept thinking I was getting cross contamination. Typical symptoms like not sleeping well at night and waking up with widespread inflammation in all of my joints, foggy head and of course bowel issues. I had read the article recently that was talking about body products. I was starting to get depressed. I was showering and decided to read the ingredients in the products I've been using. It turns out that two of the ingredients in my conditioning hair mask contain GLUTEN. I felt really stupid for not checking before and I threw that away and also checked the ingredients of everything else I've been using. I've heard of skin issues from gluten containing body products, but this opens up a whole new way if being proactive. 
    • xxnonamexx
      Supplements for those Diagnosed with Celiac Disease

      By xxnonamexx · Posted

      I haven't taken blood test for deficiencies yet since self diagnosed but I started a Multi vitamin from reading consumerlabs Nature Made Multivitamin For Her 50+ with No Iron, Womens Multivitamin for Daily Nutritional Support, Multivitamin is actually good for men compared to the mens version since im 47 I figured this should be ok. I also just started taking Kirkland Signature Super B-Complex with Electrolytes which consumerlabs which is an independent lab that tests what is actually in it states this is a good balanced B complex vitamin where its not too much of any vitamin for you to take.  I was thinking of taking the Gluten test after the summer  ut I think if I reintroduce gluten for this test I will be so sick and make things worse. I heard there is a blood test coming in a year that they add gluten to the blood to test which would be nice but prob in a year or 2. 
×
×
  • Create New...