Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Do The Right Thing?

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

I was out with my friend last night and at the bar i saw a urologist that i went to years ago who pumped me full of 6 months worth of antibiotics for no reason and this incidentally is what destroyed my insides and gave me food allergies and celiac disease; im convinced his ignorance is what is responsible for all my problems today. Anyway this Dr is an arrogant cocky jerk, would make me wait over an hour in his waiting room before he saw me and was rude and inconsiderate and show no sympathy towards me. Ultimately another doctor helped with my urinary issues, but by then it was too late and all the damage was done.

He was at the bar with his wife and I so wanted to curse him out and tell him how he ruined me life, or just spit in his face..but i didnt. i was with my friend and didnt want to make a scene and just walked away.

still seeing him brought back bad memories and ruined my night. sorry if this sounds psychotic or immature but did i do the right thing by not confronting him? He definitely spotted me and knew who i was but ignored me

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lycopene Rookie
Lycopene
Posted

You did the right thing. That's VERY big of you to not do that. I understand what you mean by that. My doctor almost KILLED me when I was younger.

I know exactly how you feel, but stuff like that never helps. You would've been kicked out, blahblahblah and it wouldn't have made you feel better. All you have to do is just shove it off to the side.

I don't believe in god or anything, but I DO believe that everything happens for a reason. For example, one of the reasons why I have celiac disease, I think, is to make me healthier... in a sense. I used to eat REALLY bad. Now I eat amazingly healthy and I LOVE it. The pain sucks... but yeah.

Good for you though, not starting anything. *Applauds you*

mushroom Proficient
mushroom
Posted

Well done, Jason. Some people are beyond education, so there's really no point in trying to tell anything to someone who already knows it all :P

katifer Apprentice
katifer
Posted

I have wanted to write some of the Dr.s that diagnosed me w/ random wrong things and just tell them it was GLUTEN! please dont continue to miss this with other patients! you did the right thing for sure. it is hard when you have suffered for such a long time to not want justice though.

jasonD2 Experienced
jasonD2
Posted
  • Author

I could've just splashed my drink in his face...maybe i woulda been kicked out of the bar but who cares...grrr

Lycopene Rookie
Lycopene
Posted

Be happy you didn't! Seriously, it's the bigger thing to do. You say he looked at you and knew who you were but said nothing? Obviously that's not being the bigger person.

So be pleased with yourself that you are. Being positive is a gooood thing, trust me!

eastvangal Newbie
eastvangal
Posted

I did write a doctor and a naturopath who misdiagnosed me, and enclosed an information sheet that I compiled on Celiac Disease. I could have used some of your restraint at the time, as I recall rashly sending it off with great angry enthusiasm and wish I'd have edited. It was quite early into my self-diagnosis.

But I've kept that information sheet and give it to family, friends and other doctors. I've even posted it at work (psychiatrists office), just to spread the information.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Good job Jason! Wouldn't have done any good to get in a fight & you could have ended up finding out what passes for gluten-free in jail. You could send him a note detailing everything that happened but I doubt he would read past the first 2 lines. If you do want to do that, write it & wait a few days. Then re-read & have someone or 2 or 3 someones read it first. Good restraint. Love - mom :P

jerseyangel Proficient
jerseyangel
Posted

You took the high road, Jason--you did the right thing.

I have to add that I understand completely the rage and frustration you felt towards him, and how good it would have felt for that one second to toss your drink in his face. ;)

ciavyn Contributor
ciavyn
Posted

Way to go! You definitely did the right thing. It would have done nothing to assuage your frustration and anger and only given him the right to blame you. Why give him that power?

Regardless of his poor treatment, you are taking control of your life and finding the answers he was too incompetent to discover. Take pride in that, and know that one day he will get his. God, karma, whatever. Stay strong and focus your energy on feeling as healthy as you can.

jasonD2 Experienced
jasonD2
Posted
  • Author

Thanks for all your support! A roundhouse kick to his skull would have been nice, but I know I did the right thing as well :)

JNBunnie1 Community Regular
JNBunnie1
Posted

Thanks for all your support! A roundhouse kick to his skull would have been nice, but I know I did the right thing as well :)

Sometimes the fantasy is SO much more satisfying than the reality (yes, I'm speaking from experience) so I say keep on daydreaming about that roundhouse to the head! Jerk. That, and telling everyone you know not to use that doctor is better revenge anyway. (Is it against board rules for him to tell us so we can avoid this doctor?)

psawyer Proficient
psawyer
Posted

It is not against the rules to name names, but Rule 1 applies. The wording in the opening post was okay because it did not identify the "arrogant cocky jerk," but to name him now would not be appropriate.

jasonD2 Experienced
jasonD2
Posted
  • Author

His name is Dr. Ahole ;) Hows that?

kareng Grand Master
kareng
Posted

His name is Dr. Ahole ;) Hows that?

That's my GI doc's name!

jerseyangel Proficient
jerseyangel
Posted

His name is Dr. Ahole ;) Hows that?

What a coincidence--I had one of those too! :lol:

sandsurfgirl Collaborator
sandsurfgirl
Posted

I had a Dr. Ahole, Dr. Moron, Dr. Idiot.

I would write a letter and send it to him with specific info about your lab results. Not an angry one, even though you want to send an angry one, but an informative one. I would make it short as possible. I called a couple of my old docs just to let them know and I plainly said "If you have another patient with an unexplained array of symptoms, please consider testing them for celiac."

jenngolightly Contributor
jenngolightly
Posted

That's my GI doc's name!

OMG - that's my GI's name, too! We all must be neighbors.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.