Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brainstorm My Pain-please !

jenvan

Recommended Posts

jenvan Collaborator
jenvan
Posted

Hey there... I am looking for any ideas you might have as to what's going on with me!! I have been gluten-free for several months now and about 3 weeks ago I started getting a new kind of pain I have never really had before--mid abdominal pain that would come on gradually, get pretty intense and eventually disapate. It would be like a colic, come in waves and last anywhere from 30 min to 2 hours. The pain wasn't really cramping or gas related or anything like that--more like a persistant stomach ache or a twisty type of pain (if that makes sense!).

I was getting this pain mid to late morning and early afternoon. I had it about every day for 2 weeks. I have been gluten-free, and haven't changed my diet in any ways since going gluten-free. I had a gallbladder/liver ultrasound at that point that came back normal. However, it has persisted since then, and now I get the pain everyday, and it is more painful. Saturday I had a really bad attack and had to go to bed--had the severe pain, chills and felt really loopy.

My only hypothesis so far either gallbladder issues or another food intolerance (maybe?). I am calling my doctor today b/c I know sometimes gallbladder won't show up on an ultrasound...but maybe I am off on this one.

Any thoughts please ??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

celiac3270 may want to tell you about what he had...the malrotation. I don't know all the symptoms he had with that but I know it was painful and it sort of sounds what you may be going through with you describing kind of a twisty feeling.

Maybe you are eating something that is causing problems. Have you tried keeping a food journal and mark whenever you get this. Maybe that will help pinpoint if it is any food.

Have you been "glutened" lately? If you have maybe it is a reaction.

Not sure what symptoms are but could you have a gall stone?

Carriefaith Enthusiast
Carriefaith
Posted

I get severe upper midline abdominal pain. I get it so bad sometimes that I cannot move until it goes away. It's very scary. I had a few ideas on what it may be:

1) acute or chronic pancreatitis or

2) a reaction to gluten

I have had my pancreas enzyme levels checked (a blood test to see if your pancrease is working proporly), however, the blood test was taken when I wasn't getting the pain. I haven't got I call from my doctor, so I'm assuming those results were negative. Now for the gluten reations... I don't intentionally injest gluten but it is possible that I may get contamination and the severe pain is my reaction.

Good luck and I hope you find an answer to your pain.

Guest Viola
Guest Viola
Posted

Another possibility is the 'illium' (sp) According to my doctor when one is accidently glutenized or is food intollerent, larger chunks of food will pass through the intestine and sit in a small pocket called the illium. This causes pain until it breaks down and continues to pass through. The pocket (pain) is usually slightly on the right side from center, and frequently confused with gall bladder pain. In fact I have been through many gall bladder checks over the years as that spot is always tender when I have my check ups.

anerissara Enthusiast
anerissara
Posted

I'll have to check out that illium thing...that sounds remarkably like the pain I used to get all the time. It's pretty much gone (I've been gluten-free for about 5 months) but now I have a new pain in the *lower* right side of my tummy! Argh, it never ends. But, the illium explanation sounds like what was going on earlier...thought it was maybe gallbladder but it wasn't. Thanks!

Eliza13 Contributor
Eliza13
Posted

Over the years I've had a very sharp (double over) type of pain in my upper left abdomen, just below the ribcage. I had never connected it to celiac until now since my docs have said it is likely a muscle spasm. Hmmmm. Now I am wondering b/c I have read about the link between celiac and the pancreas. Can anyone shed light on this?

:unsure:

jknnej Collaborator
jknnej
Posted

Skarlett, you want to check out the thread I wrote about chest pain. In it, I also talked about rib cage pain, just under the left or right breast. It hurts so bad when I get it that I can't move or breathe.

Another member said it might be a symptom of costochondritis. Google that and you'll see....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rmmadden Contributor
rmmadden
Posted

If you suspect a liver or gallbladder problem you could try doing a liver/gallbladder flush. I bought such a thing from Dr. Shulze's line of herbal remedy products and it is supposed to flush-out toxins from your liver/gallbladder and blood. People who have had these type problems swear that they go away after taking this product (even those who were slated for surgery).

Try visiting www.herbdoc.com or call 800-HERB-DOC.

Best of luck!

Cleveland Bob B)

Carriefaith Enthusiast
Carriefaith
Posted

Skarlet13,

I did some research on this. Although I have seen a lot of improvements in some of my symptoms I still get them once in a while and I still get pain in the upper abdomen. Here is a thread that I started on this a while back:

Open Original Shared Link

Eliza13 Contributor
Eliza13
Posted

Thank you all for your replies. This is definitely something to think about and run by my doctor. I've only been gluten-free for 3 weeks and do feel much better, but it seems the more I research, the more I learn that my ailments are connected to celiac. I had so many symptoms that my doc did not feel it necessary to run tests, but I have questioned that approach. I often find myself wondering if there is something else there in addition to celiac.

Love,

Skar

jenvan Collaborator
jenvan
Posted
  • Author

Thanks for the ideas all. I went to my old gi doc today. (have an appt with one recommended by other celiacs next week). My old gi doc basically said, "huh, I'm not sure. It could be gallbladder, it could be reflux--maybe...let's run some tests and take some more drugs!") I am going to opt out of the CT scan for now. I feel like at this point I can try prevacid (for the hell of it) before I dump radioactive materials into my digestive system.

If my new gi doc doesn't have any ideas, I may be joining some of you in the SCD diet! I will be getting my food intolerance lab tests back in 2 weeks too. In the meantime I'm eating more "plain" food to help prevent another painful attack. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tess this if it is something you haven't considered.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill. (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.  When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.