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Recently Diagnosed


srfjeld

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srfjeld Apprentice

On Friday my naturopath told me I have celiac disease. Since I've come out to friends about it I've been getting information overload. One person told me I'd have to throw out my toaster b/c it's contaminated, and possibly think about getting new pots and pans, cutting boards and throwing out mayo jars, etc... b/c they've all been contaminated. Another friend (with little knowledge of celiac) told me that since I've been living with this for the past 15 years or so, my case isn't severe (though I have many, many symptoms I'm now finding out are gluten related)and I don't have to be as extreme. Any thoughts on this? Do I need to throw out the old and bring in the new with my new way of living?

Thank you,

Stephanie


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Rucko Apprentice

It's probably a good idea to use a toaster that has a removable and therefore washable rack. Get rid of pots and pans that are pitted, otherwise they should be ok, but apparently some people who are very sensitive to any sort of cross contamination have to have their own cookware. You should get yourself a new cutting board and not use wooden spoons or any implements that are scratched or worn. Are there still people in your household who will need that old bread board, toaster, and the mayo? Those things can still be used by them, but you will need to get your own jars of food that they won't touch.

Skylark Collaborator

You need to be ruthless getting gluten out of your kitchen so your body can heal. As Rucko said, a lot of us discard anything that cannot be thoroughly cleaned. Pots, dishes, and utensils clean up easily as long as they're not cracked and in good shape. Porous things like wooden spoons or cutting boards will not clean up and it's best to get new ones. Toaster ovens with crumb trays and removable racks can be cleaned up, but the vertical ones are a problem.

As far as condiments, look at this as an opportunity to clean out the fridge. Don't use anything that might have had a bread-crumb covered knife or crackers dipped in it like mayo, jelly, peanut butter, relish, ketchup, dip, or your old stick of butter. If you share your kitchen with family, label old jars for them to use up and you to avoid. Squeeze container packaging is good if you're sharing condiments with family members. Otherwise, depending on how careful they are, you might want your own containers.

As far as severity, your friend is not correct. If you're really celiac with the autoimmunity (as opposed to gluten intolerant) it doesn't matter how many or few symptoms you have. Gluten is a dangerous thing for you to eat, even in small amounts you might not react to. Small amounts of gluten can keep the autoimmune damage going.

mushroom Proficient

On Friday my naturopath told me I have celiac disease. Since I've come out to friends about it I've been getting information overload. One person told me I'd have to throw out my toaster b/c it's contaminated, and possibly think about getting new pots and pans, cutting boards and throwing out mayo jars, etc... b/c they've all been contaminated. Another friend (with little knowledge of celiac) told me that since I've been living with this for the past 15 years or so, my case isn't severe (though I have many, many symptoms I'm now finding out are gluten related)and I don't have to be as extreme. Any thoughts on this? Do I need to throw out the old and bring in the new with my new way of living?

Thank you,

Stephanie

Yes, decontamination is an important part of converting to gluten free, especially if you are going to be living in a shared kitchen. Those to whom it does not matter do not understand how small an amount of contamination can affect a sensitive person. The reason you have still been having symptoms is probably because you have been having low level contamination all along. I'm sorry, I interrupted this response for dinner, and some other folks have already responded, but you should probably trust the first advice rather than the second one. Until you determine your level of sensitivity, you can't be too careful.

bluebonnet Explorer

be as strict as you can be. the smallest bite or a cross contamination will keep you from healing. its worth it to replace everything. its worth it to avoid all possible contact with gluten. best wishes! :)

book-worm Apprentice

I

LDJofDenver Apprentice

We


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alysongreg Newbie

If the package says gluten free does that mean it is automatically wheat free?

Thanks!

mushroom Proficient

If the package says gluten free does that mean it is automatically wheat free?

Thanks!

Weelll, not necessarily. There are other parts of the wheat plant that do not have gluten' Wheatgrass, for example. And I found a product that had wheat stems in it. Now how they would keep it from being gluten contaminated is another question.

BethM55 Enthusiast

LDJofDenver, thank you. I hadn't thought about my old hand mixer being a contamination source, but of course it is! Well, this is the push I needed to recycle my ancient, avocado green (really!) hand mixer. Out with the old! I did thorougly clean my VitaMix, though. :lol:

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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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