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SLB5757

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SLB5757 Enthusiast
SLB5757
Posted

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

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dilettantesteph Collaborator
dilettantesteph
Posted

As a child, I had dental enamel defects, and my celiac child also does.

RideAllWays Enthusiast
RideAllWays
Posted

I did as a child as well

momtok&m Explorer
momtok&m
Posted

That's very interesting, my 4 year old has cavities (6 so far) but she's not the gluten intolerant one! I wonder if I should have her tested?

SLB5757 Enthusiast
SLB5757
Posted
  • Author

That's very interesting, my 4 year old has cavities (6 so far) but she's not the gluten intolerant one! I wonder if I should have her tested?

My little guy seems to have dental enamel that is just yellowing or wearing thin. Hard to explain really - but I brush his teeth so well so it doesn't make a lot of sense. I know it could just be genetic - but wondered if there was a link.

T.H. Community Regular
T.H.
Posted

My daughter had enormous dental problems as a child. No sweets or juices, but by 18 months old, she already had 22 cavities, and we were like you. We used flouride and brushing and such, and she would still get about a new cavity a month. It was awful.

She was just diagnosed last year, after she turned 11 years.

My son had the short stature and pudgy belly, and while his test is negative, we've taken him off of gluten and seen an improvement in his growth, as well. No dental issues for him, however.

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

mom2kae Rookie
mom2kae
Posted

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

My almost 4 yr. old has had enamel problems since 1 yr. old. Her top 4 teeth started to lose enamel, then chip all of a sudden. She wasn't bottle fed, no sweets, brush her teeth, etc.

We haven't gotten the official diagnosis but she did get an IGG Gliadin test back + so we're waiting for a specialist referral to get a proper diagnosis. She also has the pudgy belly, weird stools, failure to thrive, etc.

~J

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Cindy G Newbie
Cindy G
Posted

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

Hi!

My daughter has an enamel defect on one of her top front permanent teeth. She was diagnosed 11 months ago, and I had been wondering about that spot for some time! Too bad most dentists don't know more about celiac disease - they could help alot of people reach a diagnosis earlier!!!

What'sForDinner? Newbie
What'sForDinner?
Posted

My son with celiac has terrible teeth...just like I do (also celiac). My son who does NOT have celiac, has great teeth. We have educated our dentist a lot about celiac!

Pattymom Newbie
Pattymom
Posted

My eldest, now 14 had terrible awful teeth, canines that came in with holes basically, and most of his baby teeth as well-He was just diagnosed last year, though he had GI symptoms since aroudn 5 or 6. My youngest, 5 also has lots of dental issues, she's been gluten free since around 3.5ish, had two teeth extracted, and I just ofund two more cavities this week, sigh. Non-celiac dd, 11, great teeth, no issues.

Patty

weluvgators Explorer
weluvgators
Posted

Anyone else with a dental presentation in their child?

Yes! Our super silly girl has had extensive teeth problems, and the staining on her teeth was one of our first clues as to the serious nature of her celiac issues. Unfortunately, we have yet to find a dentist that understands the issues. It is truly awful, in my experience. While I feel that dentists should have been a first line notification and alert for us, they have been anything but. We have had a dentist look at my daughter's teeth and tell us that she has the teeth of a soda drinking, candy eating, bottle at bedtime child, and she is none of those. He could NOT wrap his head around the idea that celiac was the root issue for us. I was standing there telling him about her celiac while he just shook his head and explained that he sees this all the time in the soda drinking, candy eating kids and that was the logical explanation. We never went back. It was so insulting. We struggled to find a pediatric dentist to help, and I think that we are past the worst of it *KOW*. But she has been gluten free for most of her life (we trialed gluten a handful of times in months 6-12). It wasn't until *I* went gluten free (she was nursing), and we better understood cross contamination that we were able to get improved dental health for her. It has been a struggle!

msbecky74 Newbie
msbecky74
Posted

My little girl had horrible teeth when she was little and I couldnt understand why, her two front top teeth were black and decayed. She is now 11 years old and we just found out she has celiac disease last month and sooo many things are starting to make sense to me now. The only reason we found out was because my youngest daughter who is 9 was diagnosed with type 1 diabetes in January and they said that I should have all my children tested, in that test they do a celiac disease test as well.

My daughter never had a problem growing as she is very tall for her age, she is also over weight but has the pot belly. It all came out of know where, she used to be this little tiny girl and then she hit 9 years old and started gaining a lot of weight, started getting severe acne, and very oily hair. Has anyone else seen this in their child with celiac?

We have not started the gluten free diet yet, we just got the second test in that confirmed celiac. So now I am researching like crazy to find out where to start. One with diabetes and one with celiac in 5 months just has my mind whirling.

irish daveyboy Community Regular
irish daveyboy
Posted

Just curious as to how many - if any - of your children have dental enamel defects. I think my 4 year old may have celiac disease and in addition to his short stature and pudgy belly and clay colored stools that he may have dental enamel defects as well. He has been to the dentist many times where they have used flouride treatments and varnishes, and I use an ultrasonic brush from the dentist on his teeth at least two to three times a week (the other times I use a regular spin brush because I do not want to be too harsh on his little teeth). He also uses act bubblegum mouthwash (almost 5....so he doesn't swallow it - he spits it out).

Anyone else with a dental presentation in their child?

I posted these links on the same topic over on a UK forum.

Take Your Pick

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Best Regards,

David

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    1. cristiana
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      Hi @Scatterbrain Thank you for your reply. Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct. Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two...
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    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
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      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
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    • NanceK
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      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
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      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
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