Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Best Friend Was Just Diagnosed With Celiac. I Am So Happy And So Sad!


tmf315

Recommended Posts

tmf315 Newbie

I got the stangest phone call from her yesterday. She started out by reminding me that not only do we share the same birthday, the same interests, have had most of the same life experiences, etc, but now we both have the same sickness. She had begun feeling sick with most of the same symptoms, both lost over 50 lbs apiece, and we have both been on a mission to find out why. We both had all the same tests, kept getting told all the tests were normal. I was beginning to think we were both being poisoned (technically I guess we were!) I was diagnosed through Enterolab since my doctors were awful and wouldn't consider gluten after negative blood tests/biopsy (although after showing them my Enterolab results they changed their tune, even made copies of the lab results for my file). My friend found out because she had a positive biopsy. She has an awesome gastroenterologist. Too bad I can't go see him, she drives about four hours to see him.

I was so sad for her diagnosis, but also happy for me since now I don't feel alone in this new journey (I have only known for about a month and have been feeling like a freak of nature). Funny thing is, a couple of weeks ago my hubby was joking with her that he thought she had the same thing I did and we all just laughed. She always jokes that she is really my mother (she is 65 I am 35) so now this is really funny.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



thleensd Enthusiast

I got the stangest phone call from her yesterday. She started out by reminding me that not only do we share the same birthday, the same interests, have had most of the same life experiences, etc, but now we both have the same sickness. She had begun feeling sick with most of the same symptoms, both lost over 50 lbs apiece, and we have both been on a mission to find out why. We both had all the same tests, kept getting told all the tests were normal. I was beginning to think we were both being poisoned (technically I guess we were!) I was diagnosed through Enterolab since my doctors were awful and wouldn't consider gluten after negative blood tests/biopsy (although after showing them my Enterolab results they changed their tune, even made copies of the lab results for my file). My friend found out because she had a positive biopsy. She has an awesome gastroenterologist. Too bad I can't go see him, she drives about four hours to see him.

I was so sad for her diagnosis, but also happy for me since now I don't feel alone in this new journey (I have only known for about a month and have been feeling like a freak of nature). Funny thing is, a couple of weeks ago my hubby was joking with her that he thought she had the same thing I did and we all just laughed. She always jokes that she is really my mother (she is 65 I am 35) so now this is really funny.

You're lucky to have each other! Understood on the happy/sad sentiment.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pilber309's topic in Related Issues & Disorders
      16

      Burning Sensation in the small intestine

    2. - Jojer commented on Scott Adams's article in Winter 2026 Issue
      7

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

    3. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      16

      Burning Sensation in the small intestine

    4. - cristiana replied to pilber309's topic in Related Issues & Disorders
      16

      Burning Sensation in the small intestine

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,892
    • Most Online (within 30 mins)
      7,748

    KelleyORDH
    Newest Member
    KelleyORDH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @pilber309, as knittykitty pointed out, lactose intolerance is not the only issue with dairy in celiac community. Lactose intolerance has to do with the sugar component of dairy, lactose. However, some celiacs react to a protein fraction in dairy, namely, casein, like they do gluten.
    • pilber309
      Stop eating oats as it did give me irritation.The only diffrent thing i have been consuming are a new probitics which seem to have a fruit ive never heard of as a prebiotic
    • cristiana
      It could well be a new intolerance developing.  Does your diet incorporate pure oats i.e. those safe for coeliac consumption?  I find I can only tolerate a certain amount, same goes for dairy in fact, then I start to get gastric symptoms.   Or have you started consuming a new type of gluten-free bread, or more gluten-free bread than normal, that might contain oats?  I remember reading a post on this forum from a woman who had started to eat a lot of loaves made with oat flour and her coeliac symptoms kicked off again.  I am sure you know this, but some coeliacs cannot tolerate pure oats.
    • pilber309
      I eat a lot of dairy but its intermittent is this burning so I would assume it would happen all the time. Plus I have been tested for lactose intolerance  etc and I am fine and the other symptoms of that I don't get. As a aside  my dad died last month after a long illness so I wonder if the stress of that might be a influence as a bodily reaction to stress.
    • pilber309
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.