Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do People Mean By "getting Sick" When They Eat Something With Gluten?


Coolclimates

Recommended Posts

Coolclimates Collaborator

I just was diagnosed with celiac disease 3 weeks ago and have been on the diet barely 3 weeks. I keep hearing people saying that if you suddenly eat something with gluten, you will get "very sick." My question is, what do they mean by sick? Do they mean throwing up/stomach issues? Or do they mean flu like symptoms like headaches, body aches, fever? or do they mean something else? Please clarify.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Hi cool,

If ten people respond you will probably get 20 answers. :) That is because it is different for almost everyone though many people share similar but not identical responses. Also the response can change over time.

I now usually experience fatigue, headaches, painful joints (especially my ankles). The onset of the painful joints is new however and was never one of my original symptoms. But I can experience other symptoms occasionally as well. Some of it seems to depend on how I got glutened. That is what type of food it was. But for me the onset is usually very rapid (15 minutes to a couple hours, average probably 45 minutes).

mommida Enthusiast

If I ate straight gluten ~ Usually the big "D" in about 15 minutes, or sometimes the lovely projectile vomit.

If it is maybe a little cross contamintion ~ agonizing stomach cramps for about 3 hours, and then the big "D" spread out in about three bouts until my guts are empty.

If gluten goes in is is coming out one orafice or another until it's all gone. Sure there are aches and pains, headaches, and other stuff. Day or two after I feel more tired and notice my hair tends to fall out.

conniebky Collaborator

I get weak and my joints get painful and stiff. I get a headache and stomach cramps. I get tingling in my extremeties.

luvs2eat Collaborator

I'll have horrible lower digestive issues... cramping, BIG D w/in an hour or 2... and will feel very barfy (but I always fight that one!!). The next day I'll be wiped out... foggy and hugging the couch.

WheatChef Apprentice

Abnormal bowel movements for a few days. Terrible bloating and gas. Severe lethargy for 2-3 days. Brain fog for at least a week. Loss in muscle tone. Most likely migraines for a few days. Clogged sinuses for at least a day. Most likely some mild anxiety for a few days.

Normally these don't come on severe, just kind of gradually creep in over the next few hours after getting poisoned.

chere1020 Newbie

Abnormal bowel movements for a few days. Terrible bloating and gas. Severe lethargy for 2-3 days. Brain fog for at least a week. Loss in muscle tone. Most likely migraines for a few days. Clogged sinuses for at least a day. Most likely some mild anxiety for a few days.

Normally these don't come on severe, just kind of gradually creep in over the next few hours after getting poisoned.

It depends on what I get glutened with, one time it was wheat in a chicken broth and that took only 10 minutes before I had indigestion and acid reflux and it just got worse from there. I get really nauseous and if it is a bad case and I keep eating whatever it is that causes the problem I have the big D in a huge way. The last vacation before this one we went home a day early because I had the big D so bad I was dehydrating and so viciously sick I couldnt get out of bed. I was in a bad way that time, but it was before I knew I was gluten intolerant. Now when I get glutened I drop back to fresh only foods and it clears up within 48 hours. It is horrible and you know it when it happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelissaBe123 Newbie

Depending on how much I got, it will either be horrible abdominal pains or the big D. I have never really experienced headaches or pains in my joints.

Jencat Rookie

Well I got unintentionally glutened about four days ago and it Has been a rough glutening, on and off D and cramping, bloating, nausea, brain fog and fatigue,numbness to my hands and fingers and very irritable just want it to be over.-Jen :(

Korwyn Explorer

Well I got unintentionally glutened about four days ago and it Has been a rough glutening, on and off D and cramping, bloating, nausea, brain fog and fatigue,numbness to my hands and fingers and very irritable just want it to be over.-Jen :(

:( That's the worst part (mentally) for me now. Waiting for the fog to lift and kicking myself for not being more careful. Hope you feel better soon.

conniebky Collaborator

:( That's the worst part (mentally) for me now. Waiting for the fog to lift and kicking myself for not being more careful. Hope you feel better soon.

I got glutened this morning. tingly extremitries, headache, stomach troubles, panicky feeling, vertigo and kinda of sad. Seems I get sad when it happens. It's like, "oh no here comes the enemy".....something like that.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,017
    • Most Online (within 30 mins)
      7,748

    DontLicktheBread
    Newest Member
    DontLicktheBread
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      A typical CYA response--since they don't label it that way they don't test for gluten, thus can't guarantee it's gluten-free, even though no gluten ingredients are used in the product.
    • Scott Adams
      I understand your immense frustration after 17 years of excellent management; it's incredibly disorienting to have your numbers spike without a clear cause or physical symptoms. Given your thorough investigation, the Crunchmaster crackers are a very plausible culprit, despite their certification. Certification ensures gluten is below 20ppm, but if you are consuming them daily, even that tiny amount could theoretically accumulate over time to cause an immune response (elevated IgG) without triggering your acute symptomatic response (which is often IgA-mediated). Since your son, the perfect control subject, doesn't eat them, this is an excellent hypothesis to test. I would recommend a strict elimination trial: remove the crackers completely for 4-6 weeks and then re-test your IgG levels. If the numbers drop significantly, you have your answer. Other less obvious sources to consider if the crackers aren't to blame include any other new packaged goods (spices, nuts, chocolate, supplements), a change in the recipe of a trusted product, or even lipstick or toothpaste. Your methodical approach is exactly what will solve this mystery.
    • Jenny (AZ via TX)
      When using daily med to look up prescriptions, is there a way to filter ingredients such as gluten or wheat?  I usually take only a couple of drugs but since I’m having surgery, I have 5 new ones to take for a short time post-op. Thanks!   For non prescription drugs, Walgreens has a line called Free&Pure that has gluten free written on the packaging if anyone is interested. 
    • Scott Adams
      Dr. Jean Duane published a book on Celiac.com, and although all chapters are worth reading, there are some that cover this perfectly. Here is the link to the 1st chapter: This chapter and others cover this topic well:  
    • Jenny (AZ via TX)
      I called Colace to see what they would say. They cannot guarantee the products are gluten free.  No gluten ingredients but mentioned ingredients from pigs.  I did explain the pig part wasn’t the issue, just gluten.  I had asked about Colace clear as I had read that one was gluten free. 
×
×
  • Create New...