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Recently Diagnosed With Celiac Disease


Rizz

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Rizz Newbie

Hi All,

Last week I was diagnosed through blood work and biopsy with celiac disease and a hiatal hernia. I had major GI issues and lost 22 pounds over the past 6 months, since I was only 155 to start I am now down to skin and bones,...lol Needless to say it has been an overwhelming week especially being an Italian who enjoys eating for the past 38 years but was always miserable after many meals. I am excited to feel better and be a more energetic father/husband

I was told to go completely Gluten free and have been good for four days with one minimal maple syrup slip up. Fortunately for me there are a couple of local stores that have Gluten free areas so while I figure out how to modify my diet their prepared meals should help. Having two small boys (4+6) concerns me as they have such a prepared food diet.

Thanks for your time

Scott


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I'm sorry to hear that, Scott, and I hope you feel better soon. I found out I had Celiac 3 days before my 32nd birthday, early this May. It came as a real shock because I don't have the typical GI/stomach issues. However, I do have acid reflux and lost a fair amount of weight in the last year.

Anyway, welcome to the group!

T.H. Community Regular

I hope the recovery goes smoothly for you!

Oh, and if you haven't considered it yet, you might want to look into getting your sons tested, too. My kids had no symptoms, but we tested them after hearing that out of siblings, parents, and children of celiacs, 1 in 22 will test positive. Once the tests were complete, both my kids have ended up on gluten free diets along with my brother and father. Hadn't realize we were the celiac brady bunch before then, LOL.

Hi All,

Last week I was diagnosed through blood work and biopsy with celiac disease and a hiatal hernia. I had major GI issues and lost 22 pounds over the past 6 months, since I was only 155 to start I am now down to skin and bones,...lol Needless to say it has been an overwhelming week especially being an Italian who enjoys eating for the past 38 years but was always miserable after many meals. I am excited to feel better and be a more energetic father/husband

I was told to go completely Gluten free and have been good for four days with one minimal maple syrup slip up. Fortunately for me there are a couple of local stores that have Gluten free areas so while I figure out how to modify my diet their prepared meals should help. Having two small boys (4+6) concerns me as they have such a prepared food diet.

Thanks for your time

Scott

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    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
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