Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge

JennyC

Recommended Posts

JennyC Enthusiast
JennyC
Posted

I have not posted in a long time, but I thought that I would come here to share my recent experience. My son was diagnosed with celiac disease three years ago based on clinical symptoms and blood work. When he went gluten-free all of his many symptoms went away. He has been under the care of a great pediatric gastroenterologist for the last three years. At his recent visit, she asked if we would be interested in doing a gluten challenge. I agreed because I thought that having a positive biopsy might make his life easier a later on. I started giving him gluten on Wednesday and he got SO sick. He is back to his pre-diagnosis symptoms, having D three times a day. He is also in a great deal of pain. He wants to go back to eating gluten-free, and I am not about to force him to eat gluten! So now we are going to get a tTG drawn. I feel so bad for him. I've been giving him Tylenol. The GI told me to give him Gas-X. Does anyone know if I can give him Pepto? He is nearly 7 years old and weighs 47 pounds.

Thanks for listening!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Call your ped to ask about the pepto, that is the safest thing to do. If memory serves me Gas-X is not gluten free so do be sure to check into that. It doesn't sound like the challenge and biopsy are worth the pain he is in.

Marz Enthusiast
Marz
Posted

He is nearly 7 years old and weighs 47 pounds.

Aw shame, poor boy :( To have to go through this at such a young age... At least you know what the problem is. Hope he recovers from his glutening quickly.

Honestly, at such a young age, clinical diagnosis shouldn't need gluten poisoning and biopsies/testing. Symptoms and withdrawal of symptoms on a gluten-free diet, with perhaps a challenge showing symptoms re-appearing, should be enough to get you the firm diagnosis.

ravenwoodglass Mentor
ravenwoodglass
Posted

Honestly, at such a young age, clinical diagnosis shouldn't need gluten poisoning and biopsies/testing. Symptoms and withdrawal of symptoms on a gluten-free diet, with perhaps a challenge showing symptoms re-appearing, should be enough to get you the firm diagnosis.

I agree, he was already diagnosed. If the GI wanted to do biopsies they should have been done after the positive blood work and before the diet was started. I would discontinue the challenge, let the doctor know what the results were and get him back on the diet. Did the doctor redo the blood work before the challenge was started? Having that become negative after diagnosis and adherence to the diet, along with his relief from symptoms should have satisfied that doctor. Recent research is also saying that biopsy is not needed when the blood work is positive and there is resolution of symptoms on the diet. Perhaps your GI is not keeping up with the research or needs a new boat.

nora-n Rookie
nora-n
Posted

first the antigliadin gets positive, then when there is enough gut damage the ttg turns positive, and that should take a while back on gluten.

ttg is connected with lots of gut damage.

I wonder if it is worth it, and necessary, since the kid already has a diagnosis.

jerseyangel Proficient
jerseyangel
Posted

I wonder if it is worth it, and necessary, since the kid already has a diagnosis.

I agree.

katyd1d Newbie
katyd1d
Posted

I'm so sorry! Poor little guy. It sounds like you've got all the confirmation the doctor should want!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

At least now you know that gluten causes him a problem, regardless of medical testing or doctor opinions. He also knows and that is a good thing as it should help him stick to the diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...