Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Goodbye My Sweet Friend Dairy...


Marz

Recommended Posts

Marz Enthusiast

So after 5 days gluten-free, I'm suddenly getting severe reactions to milk. I wasn't lactose-intolerant before going gluten-free, I was happily having milk with cereal, extra glass of milk each day, yoghurt, cheese on everything etc.

Yesterday, every time I put something dairy-related in my mouth, my stomach got upset, intestines churning after an hour or so.... And add to that my normal nasal drip turned into a torrent. It really seems that dairy is causing problems, and I've read that casein is often the culprit :(

Today I'm dairy free as well, and I'm feeling a lot better.

I'm really hoping this goes away after a while. Can you be casein-intolerant for a while after going gluten-free, and then be able to tolerate it again?

Is it "safe" to continue with dairy even if you know you can't tolerate it - it isn't like gluten where trace amounts can seriously screw you up right? I might experiment with small amounts of dairy and see what my tolerance level is.

So diet at the moment:

Beef/Lamb/Pork - no spices except salt and pepper

Veges of all kinds - no sauces except home-made with gluten-free ingredients

Cucumber/lettuce salad - plain salad, no dressing

Fruits of all kinds - fresh, not tinned etc

Rice/Potato/Sweet potato and starchy veges for the carbs

Nuts/dried fruit/peanut butter for snacks.

Does this sound healthy? Anything else I can add to this to increase my healthy fat/carb consumption? I'm underweight at the moment, just worried I could be starving myself further by taking dairy away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

So after 5 days gluten-free, I'm suddenly getting severe reactions to milk. I wasn't lactose-intolerant before going gluten-free, I was happily having milk with cereal, extra glass of milk each day, yoghurt, cheese on everything etc.

Yesterday, every time I put something dairy-related in my mouth, my stomach got upset, intestines churning after an hour or so.... And add to that my normal nasal drip turned into a torrent. It really seems that dairy is causing problems, and I've read that casein is often the culprit :(

Today I'm dairy free as well, and I'm feeling a lot better.

I'm really hoping this goes away after a while. Can you be casein-intolerant for a while after going gluten-free, and then be able to tolerate it again?

Is it "safe" to continue with dairy even if you know you can't tolerate it - it isn't like gluten where trace amounts can seriously screw you up right? I might experiment with small amounts of dairy and see what my tolerance level is.

So diet at the moment:

Beef/Lamb/Pork - no spices except salt and pepper

Veges of all kinds - no sauces except home-made with gluten-free ingredients

Cucumber/lettuce salad - plain salad, no dressing

Fruits of all kinds - fresh, not tinned etc

Rice/Potato/Sweet potato and starchy veges for the carbs

Nuts/dried fruit/peanut butter for snacks.

Does this sound healthy? Anything else I can add to this to increase my healthy fat/carb consumption? I'm underweight at the moment, just worried I could be starving myself further by taking dairy away.

The diet sounds very healthy, healthier than most people do. Yes you may be able to tolerate dairy again. Give yourself a few months of healing and then try yogurt and cheddar cheeses and see how you do. Those have very little lactose so if it is a lactose intolerance after you have healed there is a good chance you will be able to consume them. If it's casien then well dairy may be out for the long term. I am able to tolerate a bit of dairy in my coffee but that is about it. There are some good dairy replacements out there, I like Wegmans rice milk, don't get Rice Dream as that is not safe. The only way I can drink rice milk is with chocolate syrup but it works for cereal. There are also almond milks and hemp milk. Hemp milk is high in protein if you feel you need a bit extra.

Your not alone most of us can't tolerate dairy at first but many are able to add it back in after we are healed.

kayo Explorer

Looks very healthy to me. My only suggestion would be to add some grains, gluten-free of course, like quinoa and buckwheat. I make salads like taboule out of them and I also make a breakfast cereal with the quinoa adding blueberries, sugar and cinnamon. Prepped like this it reminds me of oatmeal.

I'm also lactose intolerant and I use hemp milk. There's also soy milk (chocolate Silk is to die for), coconut milk, and nut milks. I eat a lot of rice already so I didn't want to add rice milk into my diet.

Mari Enthusiast

What may be happening is that you have had an allergy or intolerance to cow's milk before you went gluten-free but since the gluten is gone you are noticing the reaction more. Also it may be that as long as we were eating gluten our bodies tried to minimize the reaction and damage and it also minimized the reaction to allergies. In allergy to cow's milk can be tested for by blood test or fecal tests (Enterolab.com). The blood test may be negative if you have been not eating the allergin for too long a time. I showed a positive even tho I'd avoided cow's milk for years. I use goat's milk products.

julandjo Explorer

What may be happening is that you have had an allergy or intolerance to cow's milk before you went gluten-free but since the gluten is gone you are noticing the reaction more. Also it may be that as long as we were eating gluten our bodies tried to minimize the reaction and damage and it also minimized the reaction to allergies. In allergy to cow's milk can be tested for by blood test or fecal tests (Enterolab.com). The blood test may be negative if you have been not eating the allergin for too long a time. I showed a positive even tho I'd avoided cow's milk for years. I use goat's milk products.

I too am newly cutting dairy out of my diet. Is goat's milk/cheese okay to eat? I have an awesome turkey/quinoa/goat cheese meatball recipe that I LOVE. If I could continue to eat this it'll make my whole month!

pigeonsailor Newbie

Why no dressing on the salad? You can make your own. A delicious honey mustard vinaigrette, for example. I find beans to be really important for me too, and I'm digging quinoa these days.

  • 1 year later...
Rob Sutton Newbie

I have severe Celiac and have done ok with cream cheese and other cheeses. I also avoid meat which helps keep the intestines clean and smooth moving so dairy does not fester. Meat and gluten are the biggest issues for dairy digestion. I am happy as a lacto-ovo vegetarian. I eat a lot of corn and bean tacos with cheddar cheese. I eat cream cheese with sprouted sunflower and pumpkin seeds. Finding the right combination and portion size is the key. Too much dairy can cause issues. Too little and you will not have energy. Dairy is a great source of condensed energy and protein. Make digestion your focus rather than the hype about dairy. I use some liquid meat protein for example. I don't eat meat merely because it takes too long to digest. If I had not other choices I may eat a small piece. Vegetarian is not a religion it is only about digestion and good health to me. Digestion, digestion, digestion!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Hi Marz,

Good luck! It takes a journey to find out what is bugging you.

Personally, quuinoa kicks me almost dead. So do certified gluten-free oats. But that doesn't mean that they will affect you, and there are foods that will bug you that won't bug other people. We have a mean little army working inside our bodies that want to attack what we stick in our mouths or put on our hair or face and skin.

I've been off dairy for about a year. I bought goats milk two weeks ago and poured about a Tbsp. in my cup of coffee. I took two sips and chickened out on my challenge. I just didn't want to get sick again. I tossed my coffee out, got a fresh cup of black java. Maybe I should be more courageous.

I wish you well. :)

Marz Enthusiast

I have severe Celiac and have done ok with cream cheese and other cheeses. I also avoid meat which helps keep the intestines clean and smooth moving so dairy does not fester. Meat and gluten are the biggest issues for dairy digestion. I am happy as a lacto-ovo vegetarian. I eat a lot of corn and bean tacos with cheddar cheese. I eat cream cheese with sprouted sunflower and pumpkin seeds. Finding the right combination and portion size is the key. Too much dairy can cause issues. Too little and you will not have energy. Dairy is a great source of condensed energy and protein. Make digestion your focus rather than the hype about dairy. I use some liquid meat protein for example. I don't eat meat merely because it takes too long to digest. If I had not other choices I may eat a small piece. Vegetarian is not a religion it is only about digestion and good health to me. Digestion, digestion, digestion!

Thanks for the reply :) Not sure if you noticed, it was a year ago that I posted this. I was still trying to get a handle on what was upsetting my stomach. Since then my gut has healed up and I can eat dairy without a problem. Still have problems with soy though.... I don't think I could ever go vegetarian, I feel like my diet is too restricted as it is already! Red meat is sometimes too much for me digestion-wise, but I can handle white meat/fish fine :)

Marz Enthusiast

Hi Marz,

Good luck! It takes a journey to find out what is bugging you.

Personally, quuinoa kicks me almost dead. So do certified gluten-free oats. But that doesn't mean that they will affect you, and there are foods that will bug you that won't bug other people. We have a mean little army working inside our bodies that want to attack what we stick in our mouths or put on our hair or face and skin.

I've been off dairy for about a year. I bought goats milk two weeks ago and poured about a Tbsp. in my cup of coffee. I took two sips and chickened out on my challenge. I just didn't want to get sick again. I tossed my coffee out, got a fresh cup of black java. Maybe I should be more courageous.

I wish you well. :)

Thanks Marilyn :) I'd really encourage you to try a bit of milk, like Rob said - you might be able to handle some small amounts of cheese at first. Quinoa also kicks my butt, no idea why. I haven't tried certified gluten-free oats yet, too scared of the reaction! I had some non-gluten free oats once, and my reaction was ugly... not sure if it was gluten or the oats itself.

  • 11 months later...
NatureLover36 Newbie

Hi I'm new to the forums and was so happy to see your journey with dairy! :)

But I have a question - even though I've shown no detectable reaction to dairy, I tested positive for casein intolerance(as well as gluten, soy, and egg) with Enterolab. Should I avoid eating ALL dairy because of this test, forever? Or can I eat small amounts infrequently since I have no reaction?

I react very strongly to even small amounts of egg, so I don't eat eggs, and of course can't have gluten, and I'm vegetarian. I've lost a lot of weight unintentionally after going gluten-free. I'm underweight and feel like maybe if I ate cheese or yogurt, it would help me gain weight.

Please help - should I keep avoiding dairy forever, or not?

Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748

    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.