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Gluten Is Everywhere?


Simona19

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Simona19 Collaborator

I have been reading some older posts, and I'm very surpriced from people's reactions to gluten. I started to avoid gluten from my food after my upper endoscopy( May 20.), but I didn't checked stuff from my bathroom. I didn't even checked my medicine yet. It is for real? Is gluten so bad? I'm a sceptic with that. Hm... Maybe all this didn't sank into my brain yet. I was sick all my life. I had something new every year to add to my list of illnesses. I'm the sickest person from my family. And now, on top of all my food allergies I need to stay way from all gluten things. It is hard. My son stopped eating meat in March, I'm gluten free for month and half and my husband and mother can eat anything. For two months I have been cooking three dinners avery day. My household is very interesting these days. :huh:


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tarnalberry Community Regular

Lots of us have mixed households. Many of us do not cook multiple versions of the same meal - the family can eat the same gluten free meals you eat. (Lots and lots of foods are naturally gluten free - meats, veggies, rice/corn/millet/quinoa/buckwheat/amaranth, fruit, dairy (if you tolerate it), eggs. It's packaged or processed foods that are relatively likely to have wheat.

Medications can, though I admit I haven't found any that *actually* contain gluten, rather than simply have a CYA statement by the manufacturer. But many on this board have had trouble with some formulations.

As for avoiding every last particle - think of it this way: celiac disease is, like everything else in your body, a chemical reaction. You don't need to have a lot of something for the chemical reaction to occur. And just by occurring, damage is done to the intestines. The reaction itself is, from what I've read, self-sustaining for up to two weeks, so it's not just that you injure yourself at the moment the gluten hits the intestines, but the damage continues for a while after that.

Kay DH Apprentice

I've been gluten intolerant since getting the flu last September, although I have probably been intolerant for years but flying under the radar. Even if a Celiac's reactions are minor, there still can be damage to the GI tract and other areas of the body; it is a systemic immune response. I am very sensitive to cross contamination (CC) now. I've gotten reactions from foods labeled gluten-free, because they were processed in plants that also process wheat. Buying foods that should be gluten-free from bins causes problems from CC; I've been sick from hummus and buckwheat. There is a lot of hidden gluten, lipstick, chapstick, medicines... We purged the house of things with gluten (tough for you with a son that doesn't eat meat...most vegetarian "meats" have wheat). Most meals can be made gluten-free, and are as good are better. gluten-free breading on foods is better than wheat...it doesn't absorb liquids the same way. gluten-free can be more expensive, unless you like to cook. It is a pain to check ingredients on everything to make sure there is no hidden gluten, but it is worth it for your health. Going gluten-free takes time to emotionally adjust, but it is good.

lucia Enthusiast

Just wanted to chime in about vegetarians and gluten: while most "meat substitutions" are made of gluten, there are plenty of protein sources that are naturally gluten-free. In fact, a majority of people in India are vegetarian and you won't find such meat substitutions there. What you will find are dishes made out of beans, nuts, soy derivatives, and cheese, as well as protein-packed grains. "Meat substitutions" are designed for people who are used to making meat the center of their meal, but healthy vegetarians don't rely on them and they're not necessary for a vegetarian diet.

T.H. Community Regular

Sadly, yup, it's for real.

Think of it this way. You can get a cold or the flu from just one germ. If someone touches raw meat and touches the counter, and then YOU touch it and touch your mouth, you can get food poisoning. And most of us have heard of people who are so sensitive to peanuts that they can simply breathe in a few molecules of peanut in the same room as someone who is eating peanutbutter.

Celiac Disease has the same issue, in some ways. We can react to amounts smaller than those we can see with the naked eye. It really does seem a bit crazy, sometimes, but we KNOW that microscopic things can harm us. This is no different.

A lot of people have already spoken up about the damage, and let me just add: there may be more damage we don't know about. There are some celiacs with neurological problems that the experts don't know the cause of, they only know that without gluten, the neurological symptoms disappear. So to my mind, if there is damage the experts can't explain yet, that means there may be damage they don't even know about, so I just stay well away from gluten and try to stay safe, ya know? In part, this is for my kids.

I have been reading some older posts, and I'm very surpriced from people's reactions to gluten. I started to avoid gluten from my food after my upper endoscopy( May 20.), but I didn't checked stuff from my bathroom. I didn't even checked my medicine yet. It is for real? Is gluten so bad? I'm a sceptic with that. Hm... Maybe all this didn't sank into my brain yet. I was sick all my life. I had something new every year to add to my list of illnesses. I'm the sickest person from my family. And now, on top of all my food allergies I need to stay way from all gluten things. It is hard. My son stopped eating meat in March, I'm gluten free for month and half and my husband and mother can eat anything. For two months I have been cooking three dinners avery day. My household is very interesting these days. :huh:

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    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
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