Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Short Survey


medstudent

Recommended Posts

medstudent Newbie

Hi. Im a third year medical student and im currently doing a project on some of the long-term complications of coeliac disease.

I was wondering if you would be so kind enough to provide with some information to help me compile this project.

Sex:

Age:

Date started gluten free diet:

Suffer from the following on a regular basis since starting treatment:

Constipation

Diarrhoea

Abdominal pain

Indigestion

Acid reflux

Other related problems

You can either post here or if you prefer PM me or email vinny60@hotmail.com.

Thank you very much

Vanessa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

Sex: Female

Age: 59 this month

Date started gluten free diet: Feb. 1989

Suffer from the following on a regular basis since starting treatment:

Constipation

Diarrhoea SOME TIMES

Abdominal pain SOME TIMES Always when accidental gluten ingestion (all 3)

Indigestion SOME TIMES

Acid reflux YES

Other related problems

ARTHRITIS COSTOCONTRITIS IRON DEFFICIENCY LOW IN OTHER VITAMINS

Carriefaith Enthusiast

Sex: F

Age: 24

Date started gluten free diet: March 3, 2004

Suffer from the following on a regular basis since starting treatment:

Constipation: no

Diarrhoea: I'd say about 40% of the time

Abdominal pain: not very often but when I get pain it is very severe

Indigestion: probably about 30% of the time

Acid reflux: no

Some of these symptoms are probably due to accidental gluten injestion although I am not sure. I have also been diagnosed with IBS induced by having celiac (which can also cause some of these symptoms). I am also lactose intolerant.

oops I put March 2005 by mistake :o I really started the diet March 2004... oh well

skbird Contributor

Sex: Female

Age: 34

Date started gluten free diet: Oct 2004

Suffer from the following on a regular basis since starting treatment:

Constipation - when glutened

Diarrhoea - soft, not runny, on occasion

Abdominal pain - when glutened or other intolerant food ingested

Indigestion - when glutened or other intolerant food ingested

Acid reflux - when glutened

Other related problems - most of these are when glutened:

migraine, depression, knuckle/joint pain, frustration/anger (unprovoked), brain fog

Stephanie

anerissara Enthusiast

Sex: female

Age: 31

Date started gluten free diet: January 20 2005

Suffer from the following on a regular basis since starting treatment:

Constipation no

Diarrhoea most of the time...finally getting a little better but bad when glutened

Abdominal pain when glutened

Indigestion no

Acid reflux rairly

Other related problems-- most of these are gone unless I'm glutened but when I do get glutened: tired, grouchy, brain fog, backache, dh rash on fingers.

KaitiUSA Enthusiast

Sex:Female

Age:17....18 next month

Date started gluten free diet: January 2004

Suffer from the following on a regular basis since starting treatment:

Constipation:no(only when glutened)

Diarrhoea:no

Abdominal pain:no

Indigestion:no

Acid reflux:no

Other related problems: nausea and anxiety when glutened.

Also diagnosed with graves disease(hyperthyroid)

celiac3270 Collaborator

Sex: Male

Age: 14...and a half, lol

Date started gluten free diet: February 18, 2004

Suffer from the following on a regular basis since starting treatment:

Constipation No

Diarrhea Sometimes

Abdominal pain No

Indigestion No

Acid reflux No

Other related problems No related problems. I'm probably not much help, thankfully, because I was diagnosed early enough to avoid developing any long-term problems.

Oh, when glutened: abdominal pain/indigestion, diarrhea, very gassy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rmmadden Contributor

Sex: YES - AS MUCH AS MY WIFE WILL ALLOW :D

Age: 37

Date started gluten free diet: December 3, 2004

Suffer from the following on a regular basis since starting treatment:

Constipation - NO

Diarrhoea - SELDOM

Abdominal pain - SELDOM

Indigestion - SOMETIMES

Acid reflux - YES

Other related problems - MUSCLE ACHES B)

KaitiUSA Enthusiast
Sex: YES - AS MUCH AS MY WIFE WILL ALLOW :D

:lol::lol:

Guest gfinnebraska

Sex: Female

Age: 42

Date started gluten free diet: April, 2002

Suffer from the following on a regular basis since starting treatment:

Constipation - yes *

Diarrhoea - yes *

Abdominal pain - yes *

Indigestion - yes *

Acid reflux - no

Other related problems - bloating and gas *

* I only suffer when I accidentally get gluten in my diet. Otherwise, I stay symptom free & pain free.

plantime Contributor
Sex: YES - AS MUCH AS MY WIFE WILL ALLOW :D

>heeheehee!< :lol::lol: !

Sex: female

Age: 40

Date started gluten free diet: Feb 14, 2004

Suffer from the following on a regular basis since starting treatment:

Constipation-no

Diarrhoea-no

Abdominal pain-yes, but caused by gallbladder/liver problems

Indigestion-no

Acid reflux-no

Other related problems-

Guest vetnurse

sex: Female

Age: 43

Date Gluten Free Diet started:about 8 weeks ago

Constipation: No

Diarrhea: No

Abdominal Pain: No, only when accidentally glutened, or have to much milk.

Acid Reflux: No

Indigestion: No

Still very iron deficient!

Since Gluten Free: No longer brain fogged, depressed or sleepy

louie Newbie

Sex: Female

Age: 42

Date started gluten free diet: august 1999

Suffer from the following on a regular basis since starting treatment:

Constipation, only if dont eat enough fruit

Diarrhoea if get glutened and if too much milk or chocolate

Abdominal pain if get glutened

Indigestion never

Acid reflux never

Other related problems before diagnosis skin irritations and allergies, depression, brain fog, miscarriage & pregnancy problems

Jnkmnky Collaborator

Sex: Male

Age: 7

Date started diet: August 01

No lingering problems with digestion/bowels/gastro, etc...

Delays in speech, fine/gross motor skills. Difficulty recalling info and words in general *speech therapist says may be due to late speech*, small stature, repeating a grade in school due in large part to delays in speech and that foggy mental state Celiacs mention.

cmom Contributor

Sex: Female

Age:46

Date started diet:approximatelly 1990; seriously after being very sick for 9 straight days summer of 2001

Constipation:never

Diarrhea: often

Abdominal pain: every couple of days

Indigestion:no

acid reflux:rarely

Other related problems: skin rash, terrible bloating, weight gain

srdover Newbie

Sex: female

Age: 40 (and 3/4!)

Date started gluten free diet: 11/19/03

Suffer from the following on a regular basis since starting treatment:

Constipation -no

Diarrhoea-only when "glutened" but still have steatorrhea 18 months later

Abdominal pain-only when "glutened"

Indigestion-no

Acid reflux-no

Other related problems

folate and B12 deficient

poor muscle tone (but improving)

arthralgias in back, hands, elbows mild when gluten-free, worse when "glutened"

*extreme fatigue

*change in sleep pattern (from regular/light to comatose)

*"brain fog"

*Iritis/uveitis-left eye only-not bilateral

*irritability

*nausea

*indicates only when glutened

ianm Apprentice

Sex: Male

Age: 37

Date started gluten free diet: March 2004

Suffer from the following on a regular basis since starting treatment:

Constipation: Rarely

Diarrhoea: Only once since March 2004

Abdominal pain: Never

Indigestion: Never

Acid reflux: Never

Other related problems: Have become very healthy since going gluten free.

Used to suffer from:

Extreme fatigue, now I exercise regularly and lead an active lifestyle.

Brain fog

Weight gain, once weighed 250+ lbs. Now down to 170. Had numerous other health problems related to being overweight but those are gone now.

medstudent Newbie

A big thank you to those of you who have already replied. Could you please keep your replies coming in. Thanks again!

frenchiemama Collaborator

Sex: Female

Age: 28

Date started gluten free diet: 4-21-05

Suffer from the following on a regular basis since starting treatment:

Constipation - no

Diarrhoea - only when glutened

Abdominal pain - only when glutened

Indigestion - occasionally, but I used to have it every day

Acid reflux - no

Other related problems

-dermatitis herpetiformis (ongoing, but slowely getting better)

-severe headaches when glutened

-brain fog/drowsiness when glutened

lcmcafee2 Newbie

Sex: Female

Age: 47

Date started gluten free diet: "sorta" Nov. 2004 "for real" March 2005

Suffer from the following on a regular basis since starting treatment:

Constipation No

Diarrhoea Yes (*)

Abdominal pain No

Indigestion No

Acid reflux No

Other related problems

nausea, fatigue, depression, headaches, low iron (always deferred at the Red Cross for donating blood) insomnia, and poor dental health despite proper oral hygiene!

(*) foods like oranges and tomatoes cause me problems

Noneformethanks Newbie

Female

46 (until July 11!)

Gluten-free since 2/2004

NO PROBLEMS!!! :lol:

If accidently glutened, then extreme pain, bloating, gas, and gluten-"gurgles"--- very noisy digestion. I can hardly believe that I used to think living like that was normal. Did have early bone loss and anemia.

Life is good!

jenvan Collaborator

Female

Age: 26

gluten-free since Feb 2005

Constipation -yes, has improved since gluten-free

Diarrhoea- on occasion

Abdominal pain- unexplained, started after going gluten-free

Indigestion- no

Acid reflux- no

Other related problems: fibromyalgia, persistent fatigue

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.