Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Which Diet/lifestyle To Follow To Feel Better?


Sweetfudge

Recommended Posts

Sweetfudge Community Regular

I'm trying to figure out what to do here. I'm having pretty regular symptoms the last few months, and really can't pinpoint the cause.

The paleo diet, lectin intolerance and elimination diet have all been recommended to me by people. But I don't know what to do.

Any suggestions/experience with any of these, or recommended resources? Thanks all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sweetfudge Community Regular

p.s. I am not looking to lose any weight, I am just looking for a fix to whatever is ailing me.

I eat relatively healthy, avoid all the foods listed in my signature, don't eat a lot of red meat or fatty foods, don't eat out, rarely eat processed foods, pretty much just drink water and teas (and definitely drink enough in a day), take fiber and probiotics, as well as occasionally remembering to take vitamins/minerals.

sb2178 Enthusiast

I found an elimination diet with challenges to be helpful in finding problems (raw foods, high fat, sorghum in large amounts, gluten, lactose in large amounts). Fortunately, nothing else remains a problem after gluten free, except the lactose, which is improving and now quite mild. Oh, and chocolate, which I'm not admitting yet.

A faithfully kept food diary is a must, whichever you end up choosing.

alchemist Rookie

p.s. I am not looking to lose any weight, I am just looking for a fix to whatever is ailing me.

I eat relatively healthy, avoid all the foods listed in my signature, don't eat a lot of red meat or fatty foods, don't eat out, rarely eat processed foods, pretty much just drink water and teas (and definitely drink enough in a day), take fiber and probiotics, as well as occasionally remembering to take vitamins/minerals.

I have extreme food sensitivities(especially since going gluten free) and my body pretty much forces me to eat a Paleolithic diet...minus the berries and nuts :huh: I have never fallen for the low fat myth ..so avoiding dietary fat is I believe missing out on a possible energy source for you.A great resource for the paleo lifestyle is at marks daily apple (mark sisson) his book Primal blueprint is a dietary gem.Its funny really ...my diet is so limited but the meat and veggies I can eat keep my weight stable at 178 pounds (I am 6-3") my body fat is around 16% ...blood pressure runs low (probably low adrenals too though) and my energy levels are pretty good as long as I dont over exert...so I suppose this is a nod to the paleo way from me BUT we are all biochemically unique so you really have to find your own way with this one...although looking into a grain free lifestyle for people with celiac makes nothing but sense

cheers

Steve

ps...just to add ..Probiotics make me really ill...even in the smallest doses....supplements need to be assessed for a possible reaction too.

Looking for answers Contributor

What kind of fiber do you take? The reason I'm asking, I started to have symptoms a few months ago and couldn't figure out for the life of me what was going on. I had allergy tests, which came back extremely high for eggs, so I cut them out. Little difference. I then began keeping a food journal and discovered psyllium husks were the culprit. A lot of supplemental fiber is hard on the digestive track. Just another things to consider when looking for the proverbial needle in the haystack.

mushroom Proficient

What are your current symptoms and do they seem to be associated with anything? Have you done any challenges on the the no-nos on your list?

Bennie Rookie

3 tbsp of flax seed (ground up fresh in my coffee grinder) with a glass of water works well for me. I need to remember to drink plenty of water throughout the day or the flax seed will cause the opposite effect that I am looking for.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sweetfudge Community Regular

I found an elimination diet with challenges to be helpful in finding problems (raw foods, high fat, sorghum in large amounts, gluten, lactose in large amounts). Fortunately, nothing else remains a problem after gluten free, except the lactose, which is improving and now quite mild. Oh, and chocolate, which I'm not admitting yet.

A faithfully kept food diary is a must, whichever you end up choosing.

Lol @ the chocolate thing. Have you tried dairy free chocolate/dark chocolate too? I think I would die without that :P

I do need to start keeping a food diary again, good call on that one!

I have extreme food sensitivities(especially since going gluten free) and my body pretty much forces me to eat a Paleolithic diet...minus the berries and nuts :huh: I have never fallen for the low fat myth ..so avoiding dietary fat is I believe missing out on a possible energy source for you.A great resource for the paleo lifestyle is at marks daily apple (mark sisson) his book Primal blueprint is a dietary gem.Its funny really ...my diet is so limited but the meat and veggies I can eat keep my weight stable at 178 pounds (I am 6-3") my body fat is around 16% ...blood pressure runs low (probably low adrenals too though) and my energy levels are pretty good as long as I dont over exert...so I suppose this is a nod to the paleo way from me BUT we are all biochemically unique so you really have to find your own way with this one...although looking into a grain free lifestyle for people with celiac makes nothing but sense

cheers

Steve

ps...just to add ..Probiotics make me really ill...even in the smallest doses....supplements need to be assessed for a possible reaction too.

Thanks for sharing your experience on the lifestyle. I've ordered the primal blueprint, and have read through the blog. It is the best one I've found! You know, I'm not really worried about my weight right now, just feeling better. But if it helps me lose those last 10 lbs, I wouldn't complain :)

I've done a couple of tests on my supplements, and definitely come up worse for wear when I don't take the probiotic. It's Align, designed specifically for "IBS-symptoms" so I'm pretty sure it's not causing my problem.

What kind of fiber do you take? The reason I'm asking, I started to have symptoms a few months ago and couldn't figure out for the life of me what was going on. I had allergy tests, which came back extremely high for eggs, so I cut them out. Little difference. I then began keeping a food journal and discovered psyllium husks were the culprit. A lot of supplemental fiber is hard on the digestive track. Just another things to consider when looking for the proverbial needle in the haystack.

I take acacia fiber, made by a company who specializes in "IBS-friendly" products, that don't cause the same problems as most supplemental fiber. I've tested it, and it definitely makes a positive difference when I'm using it. Good point though :)

What are your current symptoms and do they seem to be associated with anything? Have you done any challenges on the the no-nos on your list?

Current symptoms are almost constant gas, quite often stinky. Almost daily I notice cramps, and usually have some constipation, as well as urgency when my body does decide it's ready for me to go. Occasional diarrhea and bloating (once a week or so).

Haven't done any challenges on recent food items, just supplements. Feeling like symptoms are so random, that I'm not sure where to start.

Thanks all for your help :)

GFinDC Veteran

I see in your sig you are avoiding potatoes. How about tomatoes and peppers? They are also nightshades and can cause problems.

BRUMI1968 Collaborator

Hi. I was diagnosed over three years ago and have done almost every diet you can think of: paleo, body ecology, raw food - traditional, raw 80/10/10 low fat. Have gone nightshade free, grain free, bean free, fat free, salt free, soy free, dairy free, etc.

It sounds crazy, but I'm actually really glad I did all those diets over the years. They all have their good points, and I think having experimented with them is giving me stronger foundation to personalize a diet for me.

That said, I just started what is called a low fodmap diet. The idea is that certain short-chain sugars ferment in your body before they move through your digestive system, causing all manner of gas, bloat, stink, C, D, etc. What the diet proposes is that you cut out all of these, then add them back by family (fructose, sucrose, raffinose (beans), lactose, etc.) I've already found that quitting them did indeed cut my bloat - and bloat is pretty much the only symptom I have left from being gluten-free so long). I accidentally ate onion a day ago and boom, w/i 24 hours was bloated and stinky. So what you should end up with after doing this diet for a while (getting rid of all high fodmaps then adding them back, finding out which bother you), is the understanding of which sugars you don't digest well. YOu can either avoid them entirely, or use some tricks like only tiny amounts of something or adding glucose to something. It's an idea. It sounds like the things this diet talks about are things that you are experiencing. There are a couple folks on the board who have done this diet. Another diet folks on the board have done is the Specific Carb Diet. I have not done that one, as it relies on dairy more than I like, but lots of folks feel it works well.

But I can outline the benefits I experienced from each other diet I've done below.

RAW FOOD (traditonal): PRO: felt clean, easy digestion, regular poops, good poops CON: expensive, too fatty really, lost too much weight, can be really labor intensive to create "gourmet" stuff, puts you on the outside of regular folks - slightly isolating I guess.

RAW FOOD (low fat): PRO: always had accessible food (fruit), clean, know stuff is gluten-free, really hydrating CON: bloated and C (banana), expensive, weight loss, have to train stomach to eat large amounts at once in order to get enough calories - slightly isolating, though less so that regular raw since you're not making a bunch of raw food all the time, you're just eating fruit.

PALEO: PRO: no grains works best for me, and no beans; bloat went away for the most part, don't think I ever got my stomach acid up to snuff for digesting meat CON: expensive (I will only eat humane, local, and GRASS FED meat - anything other than that is like animal cruelty in my mind, and unhealthy), a bit on the acid side if you don't balance out the nuts and meats, nuts too hard to digest.

BODY ECOLOGY: PRO: this is a great diet to kill yeast, easy to prepare stuff CON: expensive (meat), not enough carb energy for me, yeast killoff can be intense if you have problems with yeast.

Remain free of: dairy, gluten, soy, sugar, grains (mostly)

Sweetfudge Community Regular

Hi. I was diagnosed over three years ago and have done almost every diet you can think of: paleo, body ecology, raw food - traditional, raw 80/10/10 low fat. Have gone nightshade free, grain free, bean free, fat free, salt free, soy free, dairy free, etc.

It sounds crazy, but I'm actually really glad I did all those diets over the years. They all have their good points, and I think having experimented with them is giving me stronger foundation to personalize a diet for me.

That said, I just started what is called a low fodmap diet. The idea is that certain short-chain sugars ferment in your body before they move through your digestive system, causing all manner of gas, bloat, stink, C, D, etc. What the diet proposes is that you cut out all of these, then add them back by family (fructose, sucrose, raffinose (beans), lactose, etc.) I've already found that quitting them did indeed cut my bloat - and bloat is pretty much the only symptom I have left from being gluten-free so long). I accidentally ate onion a day ago and boom, w/i 24 hours was bloated and stinky. So what you should end up with after doing this diet for a while (getting rid of all high fodmaps then adding them back, finding out which bother you), is the understanding of which sugars you don't digest well. YOu can either avoid them entirely, or use some tricks like only tiny amounts of something or adding glucose to something. It's an idea. It sounds like the things this diet talks about are things that you are experiencing. There are a couple folks on the board who have done this diet. Another diet folks on the board have done is the Specific Carb Diet. I have not done that one, as it relies on dairy more than I like, but lots of folks feel it works well.

But I can outline the benefits I experienced from each other diet I've done below.

RAW FOOD (traditonal): PRO: felt clean, easy digestion, regular poops, good poops CON: expensive, too fatty really, lost too much weight, can be really labor intensive to create "gourmet" stuff, puts you on the outside of regular folks - slightly isolating I guess.

RAW FOOD (low fat): PRO: always had accessible food (fruit), clean, know stuff is gluten-free, really hydrating CON: bloated and C (banana), expensive, weight loss, have to train stomach to eat large amounts at once in order to get enough calories - slightly isolating, though less so that regular raw since you're not making a bunch of raw food all the time, you're just eating fruit.

PALEO: PRO: no grains works best for me, and no beans; bloat went away for the most part, don't think I ever got my stomach acid up to snuff for digesting meat CON: expensive (I will only eat humane, local, and GRASS FED meat - anything other than that is like animal cruelty in my mind, and unhealthy), a bit on the acid side if you don't balance out the nuts and meats, nuts too hard to digest.

BODY ECOLOGY: PRO: this is a great diet to kill yeast, easy to prepare stuff CON: expensive (meat), not enough carb energy for me, yeast killoff can be intense if you have problems with yeast.

Remain free of: dairy, gluten, soy, sugar, grains (mostly)

I've been doing a lot of research over the last few weeks, and really like the concept of the paleo diet, even if I don't end up following it 100%. I've mostly been eating leaner foods (meat, dairy free, etc) lately, so worry about adding back in all that red meat, bacon, and butter. Tried a few paleo recipes so far, and really enjoyed them.

Interesting that you mention the FODMAP diet. I've had a couple of other people strongly recommend it to me. I think it really makes sense, and am leaning toward trying this one. Sounds kind of like an elimination diet, but with a bit more structure, imo. Did you purchase any books about the diet, or just try it using online sources?

I have kind of done the same thing with all the different diets I've tried/researched. I think it works best to incorporate what you find works best for your body. Thanks for sharing what's helped you.

P.S. I'm curious, what grains are you still able to tolerate?

BRUMI1968 Collaborator

I've never really done an elimination diet or a real serious investigation into which grains do me the worst. I can say that rice, believe it or not, both bloats me and makes my teeth instantly hurt. Well, brown rice. Jasmine I can tolerate a small amount of but not for days in a row. Corn does not seem to bother me that much. You would think it would - storage grain (moldy), gmo (I try to get non-gmo), etc. Oats I tolerate like for one day, but if I eat multiple days, it can start to. For me it is more of a noticing how much better I felt when I was grain free in general - so I mostly just went with it. Plus, it fit into the raw food I was doing at the time.

I would just go easy adding in the fat of the paleo if you decide to go that way so your body can get used to it. You want to make sure you have enough stomach acid to digest the meat - you can look that up on google. I am just getting used to eating meat again. It has not bothered my lower digestion, but has caused quite a bit of gurgling in my stomach after I eat it. My anemia does not feel better at all yet - it's only been a week but I might have to succumb to supplements if I want to get out of this funk any time soon.

I think you're smart to realize that you're going to have to adjust any one else's diet to match your own body and your won life. I don't know if I'll keep eating meat - I keep having a yucky taste/feeling in my mouth and I don't think that's good, is it?

Good luck to you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.