Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Gas Bad Life


rose.88

Recommended Posts

rose.88 Newbie

Hi everyone

My problem is GASES !!!!!!!!! HORRIBLE GASES .. its soooooo embarrassing that I cannot do anything in my life ! I cant study or work because I just cant sit in one place without passing gas ! My life is completely ruined and nobody gets it even my family! I had to drop out of college and leave my friends :( I have no social life .. no career .. nothing!

I have this problem since 8 months now ! I saw many doctors and all of them told me I have IBS they just thought that I have emotional problems and depression! But one of them asked me to try dairy free diet then do lactose tolerance test. So I tried the diet for 4 days and haven


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

Hi everyone

My problem is GASES !!!!!!!!! HORRIBLE GASES .. its soooooo embarrassing that I cannot do anything in my life ! I cant study or work because I just cant sit in one place without passing gas ! My life is completely ruined and nobody gets it even my family! I had to drop out of college and leave my friends :( I have no social life .. no career .. nothing!

I have this problem since 8 months now ! I saw many doctors and all of them told me I have IBS they just thought that I have emotional problems and depression! But one of them asked me to try dairy free diet then do lactose tolerance test. So I tried the diet for 4 days and haven

uafnanook2001 Newbie

Hi everyone

My problem is GASES !!!!!!!!! HORRIBLE GASES .. its soooooo embarrassing that I cannot do anything in my life ! I cant study or work because I just cant sit in one place without passing gas ! My life is completely ruined and nobody gets it even my family! I had to drop out of college and leave my friends :( I have no social life .. no career .. nothing!

I have this problem since 8 months now ! I saw many doctors and all of them told me I have IBS they just thought that I have emotional problems and depression! But one of them asked me to try dairy free diet then do lactose tolerance test. So I tried the diet for 4 days and haven

ravenwoodglass Mentor

I think there are a lot of us who can identify with your problem. Between the stomach rumbling so loud you could hear it across the room and the constant 'toots' I felt like a one man band at times.

The advice to get a good probiotic is a good one. Eat simply, which it sounds like you are doing, but do add some well cooked veggies or fruits to your meals for good nutrition. Stay away from sodas and carbonated beverages for now and if you eat or drink anything with sugar alcohols or sugar substitutes stop for a bit. Check any supplements or meds for gluten. Meds should be checked with the maker as your doctor won't know if they are gluten free. Also watch out for cross contamination. It can take some time to heal but you will and once you do the gas should go away.

cassP Contributor

it will NOT all go away in 2 days- of course u will feel A LOT better in 2 days- but it takes a while for your digestive system to heal and be able to digest even gluten free foods-

i had gone on and off this diet in the past- it always took me a good 3 weeks to not be in gassy pain most of the time! i feel much better now- but keep in mind- u could have other intolerances whether temporary or permanent. some of us cant do dairy, or soy, or corn... but everyone's different.

i also have a Fructose problem- and now that ive eliminated certain fruits- i am MUCH MUCH happier.

i was doing GREAT- and then last night i made gluten free cupcakes- stomach ache and gas this morning- (some of us do better on little or no grains)

u also may want to research about SIBO

lots of people here can help u on this journey! dont lose heart- it takes more than a few days- u will feel better soon :)

kayo Explorer

I can relate! It will go away but it will take time. It's possible you could have additional intolerances as that is pretty common with all of us, celiac or non-celiac. I'm intolerant to soy which makes being dairy free a bit trickier since soy is the perfect non-dairy solution, but there are others. A good probiotic and digestive enzyme will help. Keep a food diary. This will help you narrow down the suspects. I too had SIBO and I have issues with fructose (apples, pears, etc.) and fructans (onions, garlic, shallots, etc.) I'm just now at a point in my diet where I have very little gas. It takes time. Be patient and focus on the little victories. You can do it!

SGWhiskers Collaborator

I reached a point before my diagnosis, I couldn't stand to be around myself. First I was diagnosed with a milk allergy and cut out all dairy. That didn't do it, but when the celiac was diagnosed, things got a lot better over a 3-6 month period. I found I needed to stay away from dairy as well. I do not have a nut allergy, but find that for my body, peanuts are a trigger for the stinkies. I still have gas, but after 2 years gluten, dairy, and egg free, the smell is gone or something I can get away with around my husband. Even the slightest bit of gluten will set my body off for weeks. I hope that you can give the gluten/casin free diet a solid effort for at least 6 months (hopefully that will convince you for a lifetime). This website is a great resource for information and support. Good luck and hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

I will just be another person that chimes in and says...yes this sounds similar to my symptoms. Now I never have bad stomach problems or feel gassy at all. The only time I had a problem was when I was on vacation a month ago and kept drinking soy lattes from Starbucks...then the gas was pretty awful and foul (tmi...sorry). I've since dropped soy and coffee (and have been lactose free as long as gluten free). I think you'll find that you need to baby your system for awhile, and start to explore new foods. I'm at the point where my diet is so pure, that if I eat anything processed I swear I can taste chemicals. Give it time and GOOD LUCK.

srall Contributor

Oh and one other thing. You may notice many other symptoms you never would have thought were related to diet clear up too. Even last night as I was lying in bed reading it occured to me that since I've been gluten free my hands and forearms never go numb anymore from holding the book too long. I haven't had a cold sore in 5 months and other even more embarrassing issues have cleared up. The main ones you'll notice right away, if you are following the diet meant for you, is no more headaches, brain fog, fatigue. Although I have to say sometimes I still have off days seemingly unrelated to being glutened. It takes a long time but it is so worth it. It is absolutely life changing in a positive way.

rose.88 Newbie

Many thaaanks guys Im really glad to see all these advices and comments :) I will keep them in mind. Now Im taking probiotics ( acidophilus ), multivitamins and lactase enzyme I dont know if I have fructose or other problems so for now I will stick to the gluten/lactose free diet and hope that my gases will go away for good :')

rose.88 Newbie

Have you been on antibiotics in the past year? I recommend strictly following the diet, but also taking good quality digestive enzymes with each meal and probiotics.

NO I havent! but I used to take panadol almost everyday because I had headaches But not anymore ! Im taking probiotics and vitamins :) so all I have to do is wait and see

MelindaLee Contributor

Even last night as I was lying in bed reading it occured to me that since I've been gluten free my hands and forearms never go numb anymore from holding the book too long.

I have been gluten free for 2 weeks...I will have to test this theory and see if my hands stop going numb! So many symptoms I thought was just from turning 40 that now seem to be related to gluten!

srall Contributor

Melinda, I am 42 and for YEARS have blamed my fatigue and symptoms on age, stress, motherhood, etc.

If I'm having a good day (because there are still bad days) I feel 20. Keep going...you are going to feel so much better! You may have to drop some other foods too before you get there, but when you do you'll feel great.

ravenwoodglass Mentor

I have been gluten free for 2 weeks...I will have to test this theory and see if my hands stop going numb! So many symptoms I thought was just from turning 40 that now seem to be related to gluten!

Yep. Gluten sure does make us old before our time. I'm 54 and feel the 'youngest' now that I have since I was a child. All those things I had to stop doing like dancing, bike riding and long walks by the lake are now once again a part of life. It does take a while to heal though so be patient with your body. We didn't get sick overnight (though for some it can seem like we did) and we don't heal overnight either.

Try some sublingual B12 to speed the disappearance of the numbness. It may help a lot.

CarolinaKip Community Regular

Oh and one other thing. You may notice many other symptoms you never would have thought were related to diet clear up too. Even last night as I was lying in bed reading it occured to me that since I've been gluten free my hands and forearms never go numb anymore from holding the book too long. I haven't had a cold sore in 5 months and other even more embarrassing issues have cleared up. The main ones you'll notice right away, if you are following the diet meant for you, is no more headaches, brain fog, fatigue. Although I have to say sometimes I still have off days seemingly unrelated to being glutened. It takes a long time but it is so worth it. It is absolutely life changing in a positive way.

I was having 9-10 migraines a month! I haven't had one since going gluten-free! Hang in there, I'm going into my 4th month gluten-free. A great tip they gave me here is to keep a food diary. It will help you figure out if other foods bother you. I found out I cannot do tomatos.Hang in there!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.