Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intolerance Testing

India

By India
in Food Intolerance & Leaky Gut

Recommended Posts

India Contributor
India
Posted

Does anyone have any advice on food intolerance testing? Coeliac UK told me the tests are a waste of time and money but I know people on here have used them - were they helpful? As I don't live in the US, I'm not asking for recommendations of companies but I'd love to know whether you think they produce meaningful results.

Many thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

complete food allergy testing can be really expensive! some people were happy they did it- and others on here would suggest doing an elimination diet.

if you want to do a couple of inexpensive tests that COULD help u out a bit- google: SIBO & Fructose Malabsorption. if they ring true at all for u- i THINK your doctor can run a couple of breath tests and they wouldnt be as pricey as a huge allergen panel.

?? just a thought- maybe those 2 tests could have some answers for ya.

or also a candida test.

jackay Enthusiast
jackay
Posted

Does anyone have any advice on food intolerance testing? Coeliac UK told me the tests are a waste of time and money but I know people on here have used them - were they helpful? As I don't live in the US, I'm not asking for recommendations of companies but I'd love to know whether you think they produce meaningful results.

Many thanks :)

I had it done twice, about a year and a half apart. The first time I wasn't gluten free and gluten did not show up on that test. I now know I was gluten intolerant at that time. Anyway, avoiding all of the foods that showed intolerance didn't help. I went on a four day rotation diet with the foods that tested O.K.

When I had the test done 18 months later, I was eating gluten free. I tested intolerant to so many foods it was unbelievable. I eliminated all those foods along with everything that contained gluten and I didn't notice any difference.

I then went on an elimination diet and started out with just three foods for a while (chicken, olive oil and turnips. I gradually added more foods. This worked so much better for me than avoiding the foods I tested intolerant to.

So what I am saying is that I found the testing a waste of money. They are very expensive. Luckily, my insurance covered a good share of it.

India Contributor
India
Posted
  • Author

Thanks for your replies. I hadn't been convinced by the testing people I spoke to and this confirms my suspicions.

I'm going for a SIBO test soon but my local hospital doesn't do a fructose intolerance test, so I need to find somewhere then persuade my doctor to refer me (I love our National Health Service but it can be difficult).

I hope to never go through an elimination diet again - I nearly lost my sanity as well as most of my body fat! Would a rotation diet be easier on the body?

alchemist Rookie
alchemist
Posted

Thanks for your replies. I hadn't been convinced by the testing people I spoke to and this confirms my suspicions.

I'm going for a SIBO test soon but my local hospital doesn't do a fructose intolerance test, so I need to find somewhere then persuade my doctor to refer me (I love our National Health Service but it can be difficult).

I hope to never go through an elimination diet again - I nearly lost my sanity as well as most of my body fat! Would a rotation diet be easier on the body?

Hello India I have tried the Elisa ige food allergy test and the Al-meow:) igg test....both provide lovely charts as to which foods you have highly-moderately and low sensitivities to......they are almost worthless (in my case). I react to pretty much all of the foods that both tests say were safe for me to eat.The elimination diet previously mentioned is the way to go.Its funny actually if you dig around on the Al-Meow:) website there is an article that says that the value of this type of testing is very questionable as igg antibody measurements to food do not necessarily indicate a problem.

good luck

steve

India Contributor
India
Posted
  • Author

Thanks Steve - I'm tickled to have a reply on this from an alchemist :) There seems to be pretty much a consensus on this, so I won't waste my money. Back to the food diary...

  • 2 weeks later...
Lisa79 Enthusiast
Lisa79
Posted

I am the same, suffer many intolerances, to be 100% honest I struggle to know exaclty which foods I am intolerant too, one day I might get away with pinching a few chips and other days I suffer terribly. Some days I could get away with a slice of cheese.

I also bet there are many foods which may be my problem and I just don't know it.

I used to have terrible pains after a Cajun Chicken Salad, turned out to be the small pinch of paprika...

Mash potatoes it could be the milk? as I can sometimes get away with a chip or a roast potato (only sometimes).

Elimination diets are so hard and just wish there was a simple test that could tell me exactly what foods dont agree with me.

I am reading a book at the moment called it could be allergy and it could be cured. Very interesting but some examples really show you could have an allergy/intolerance to something and have no idea.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,982
    • Most Online (within 30 mins)
      7,748
    volivier
    Newest Member
    volivier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Outgrow celiac?

      By Riley. · Posted

      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.