Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Experience At Hospital


K8ling

Recommended Posts

K8ling Enthusiast

My toddler was admitted to the hospital on Friday afternoon for a severe sinus infection/bronchitis, and when we checked in they asked about dietary restrictions. I told them I have Celiac and they said it was no problem, they would send me a gluten-free meal when they sent up the parent trays. I was pretty skeptical, however, the food was actually good and didn't make me sick. I managed to avoid cc from the toddler (he wasn't eating much anyway) as well as from the inlaws, and I brought gluten-free cookies and crackers and snacks and whatnot since the hospital didn't have anything except PB crackers and gluten filled things. On my "mommy bracelet" they even had a little sticker that said "gluten-free ONLY" so all the dietary people would know.

Anyway, just wanted to share my experience with the hospital. Hopefully he won't have to go back however if he does, at least I know they can feed me :).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

My toddler was admitted to the hospital on Friday afternoon for a severe sinus infection/bronchitis, and when we checked in they asked about dietary restrictions. I told them I have Celiac and they said it was no problem, they would send me a gluten-free meal when they sent up the parent trays. I was pretty skeptical, however, the food was actually good and didn't make me sick. I managed to avoid cc from the toddler (he wasn't eating much anyway) as well as from the inlaws, and I brought gluten-free cookies and crackers and snacks and whatnot since the hospital didn't have anything except PB crackers and gluten filled things. On my "mommy bracelet" they even had a little sticker that said "gluten-free ONLY" so all the dietary people would know.

Anyway, just wanted to share my experience with the hospital. Hopefully he won't have to go back however if he does, at least I know they can feed me :).

I hope the little guy is feeling better soon and am glad to hear you had a good experience.

sandsurfgirl Collaborator

I hope your baby is better soon!

So happy to hear about your good hospital experience. That's one of my horrible fears that I would be hospitalized and get glutened a bunch of times.

K8ling Enthusiast

It was one of my worst fears as well, however it seems that at THIS hospital it may be ok. I checked everything twice and it was all good.

The boy is doing better, thanks!

kareng Grand Master

It was one of my worst fears as well, however it seems that at THIS hospital it may be ok. I checked everything twice and it was all good.

The boy is doing better, thanks!

Put the hospital name on here that way if someone is googling Hopsitals with guten free food they will find them. Also, do they take adults? Might be a bit far from KS for an emergency. :)

K8ling Enthusiast

Put the hospital name on here that way if someone is googling Hopsitals with guten free food they will find them. Also, do they take adults? Might be a bit far from KS for an emergency. :)

HAHAHA ok, I didn't know if I could put the hospital on here. It was Houston County Hospital in Warner Robins, GA. This was just the pediatrics ward, however I am guessing they extend this to the whole hospital. I refused the food until I got so hungry I HAD to eat something (kids can't be left alone so I had no choice). I am SO thankful they were so willing to work with me, because I was a mess between my husband being deployed, my kid being sick and me having bronchitis. The dietician went out of her way to help me.

sandsurfgirl Collaborator

You poor thing! Doing this while your husband is away must be so hard. HUGS


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

You poor thing! Doing this while your husband is away must be so hard. HUGS

It really was, my poor kid was so sick and no one could tell me what was wrong with him...in addition to having almost NO food with me when he was admitted because it was so quick...I pretty much starved the first day, living off of Larabars and water. My husbands red cross call didn't go through and so I was essentially totally alone for about 4 hours...and then one well meaning nurse brought me chickfila on her break and I had to tell her I couldn't eat it (she somehow missed my bracelet). I was SO tempted to eat it anyway LOL.

I made it though. He made it. I didn't get glutened or CC'd even though he was on a normal diet. And he seems to be feeling better.

Women are like tea bags; you never know how strong they can get 'til they're in hot water. (eleanor roosevelt)

sandsurfgirl Collaborator

Oh man. I can't imagine. My son was a premie and so so sick all the time for the first couple of years. We made so many hospital and ER trips and it was exhausting. That was before diagnosis but I still starved sometimes just because there wasn't food around.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.