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Just Need To Vent!


S<3

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S<3 Rookie

This weekend I decided that after months of being gluten free I could treat myself to a gluteny feast. Why? Because i'm an absoulte IDIOT! I am soooo sick, My face is a broken out mess, and i just want to cry! Ugh, I hate having to check the ingridents in EVERYTHING! Why don't they make a gluten free face lotion for 15 dollars? I am really not happy right now!!!!


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Charlie's Girl Apprentice

The good news is- you can go gluten free again and you never need to test yourself again!

I have seen several posts here about face lotion. I believe many people like Neutrogena, Dove, and Garnier products. Do a search and you will see others have posted the same query. Email the companies if the thread is old. Products sometimes change their formulas. All of those companies offer coupons and you can find them with an easy internet search.

Feel better.

ravenwoodglass Mentor

Well now you know you don't want to do that again. There are reasonable priced skin care products that are gluten free. I use the Garneir line. Do read the labels but if gluten is in there they will list it. If you ask in the products section about cosmetics and toiletries you will get responses from others as to what they use.

Don't beat yourself up about the gluten binge. You learned something from it. It may take some time for the reaction to go away but go away it will.

kayo Explorer

I use Avon. It does remind me of my grandmother but their products are great, inexpensive and many, if not most, are gluten free. I use their lotions, body wash, and glazewear lip gloss.

SGWhiskers Collaborator

You're not the first person to have made that mistake. I hope you feel better soon. Tylenol and benadryl help me get through the worst of the pain for the first few days. (I don't really have GI issues). Stay hydrated and when you are feeling better, find the gluten-free cinnamon sugar donuts in the freezer section. I can't remember the brand, but the box is white with maybe blue lettering.

Adjusting to the diet is hard emotionally. Occassional breakdowns are part of the process.

Monklady123 Collaborator

Yes to what everyone said. The only thing I have to disagree with is what SGWhiskers said about the cinnamon sugar donuts. Go for the chocolate ones. B)

(just call me Ms. Chocoholic)... ;)

Skylark Collaborator

The donuts are Kinnikinnick. Yum!

Hope you feel better soon. Kind of the gluten equivalent of a weekend of binge drinking, eh? :lol:


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SGWhiskers Collaborator

Yes to what everyone said. The only thing I have to disagree with is what SGWhiskers said about the cinnamon sugar donuts. Go for the chocolate ones. B)

(just call me Ms. Chocoholic)... ;)

Oooh! There's chocolate :D

aderifield Apprentice

I'm so sorry you made that mistake so that I don't have to. Feel better soon.

S<3 Rookie

They make gluten free donuts? Where have I been. The only gluten free sweets i've found are ginger snaps, which i'm not crazy about. Where can i find them? :) I just went to an Avon store this past Saturday and was told everything was made with gluten to get it consistency. What products do you use? I love Avon's makeup!

kareng Grand Master

They make gluten free donuts? Where have I been. The only gluten free sweets i've found are ginger snaps, which i'm not crazy about. Where can i find them? :) I just went to an Avon store this past Saturday and was told everything was made with gluten to get it consistency. What products do you use? I love Avon's makeup!

With Avon, I find that the people who sell it don't know the gluten status. I emailed Avon about the specific items I was looking at and they answered.

sandsurfgirl Collaborator

They make gluten free donuts? Where have I been. The only gluten free sweets i've found are ginger snaps, which i'm not crazy about. Where can i find them? :) I just went to an Avon store this past Saturday and was told everything was made with gluten to get it consistency. What products do you use? I love Avon's makeup!

You need to get to a Sprouts or Whole Foods. You could gain 200 pounds on all the gluten free sweets and junk food out there. Glutino has some great ones. There are a version of Oreos even. And Betty Crocker has great gluten free mixes for chocolate chip cookies, brownies, chocolate cake and yellow cake. Glutino wafer cookies are SOOOO yummy!

Dixiebell Contributor

They make gluten free donuts? Where have I been. The only gluten free sweets i've found are ginger snaps, which i'm not crazy about. Where can i find them? :) I just went to an Avon store this past Saturday and was told everything was made with gluten to get it consistency. What products do you use? I love Avon's makeup!

Dixiebell Contributor

If you go to AVON's website and choose the item you are interested in, they have 'larger image', 'ingredients list', 'wish list' under the item. Hope this helps.

GirlScout Newbie

Sorry to hear that you are suffering right now. I hate it when I decide (half heartedly) not to pay close attention to ingredients and end up suffering the consequences. Hang in there!

I didn't know there could be problems with lotions and makeup? I always had problems finding a cleanser that would not make me breakout with ezcema on my face until I tried Aloette Cosmetics. It's the only one (so far) that I like that doesn't cause that problem. I've never checked the ingredients, but would it actually say "gluten" or is it a "hidden gluten" word? I find that I will get these teeny-tiny pimple like bumps on me if I don't use the right body soap. Thanks & take care

adab8ca Enthusiast

Living in Canada, we don't get the same gluten-free foods (ie Betty Crocker gluten-free brownies)

I had a dream last night that I ate a do-nut and now I want one SO badly....I am < 2 weeks gluten-free and haven't had any cravings yet but that dream made me nuts!

Skylark Collaborator

Living in Canada, we don't get the same gluten-free foods (ie Betty Crocker gluten-free brownies)

I had a dream last night that I ate a do-nut and now I want one SO badly....I am < 2 weeks gluten-free and haven't had any cravings yet but that dream made me nuts!

Kinnikinnick (who makes the donuts) is a Canadian company!

kayo Explorer

I use the 'Skin So Soft' lotions and 'Naturals' body wash and lotion. I like the 'Glazewear' lip gloss. Just double check the ingredients as they can change. They're listed on the website. I haven't had any issues and I'm prone to eczema, psoriasis and KP.

Coolclimates Collaborator

Tell me about it! I get so tired of the sky high prices of all the products and having to explain my problems over and over to people who just "don't get it." On top of that, my doctors are treating me like I'm a hypochondriac now. I feel so frustrated.

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      Are Lindt chocolate balls gluten free?

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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