Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Said "gluten", Not "cheese"


BethM55

Recommended Posts

BethM55 Enthusiast

We had out of town guests this weekend, and consequently ate several meals out. Twice, after discussing gluten free with the servers, they came back and questioned me about cheese. :blink: "The chef says you can't have this item because there is cheese on it." "OMG, there's cheese on your salad! Is that ok???" I'm pleased they are asking and alert, but they are alerting to the wrong foods. What is this? I'm ok with dairy, fortunately. It's the gluten, people! Has anyone else experienced this strange phenomenon? :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kayo Explorer

Oh yes, all the time. Well meaning friends will ask, can you have carrots? rice? I just look at them puzzled. People really don't seem to understand the differences between vegetables, fruits, dairy and grains so expecting them to understand what gluten is like asking them to speak Chinese. Unless you deal with food intolerances yourself I find very few people are educated about what they put in their mouths. I've always been someone who cooks and someone who enjoys trying different recipes, foods and cuisines so I feel like I was lucky in a way. I had a leg up when I had to give up gluten (and soy, and foods high in fructans and fructose) because I could adapt the foods I already knew how to cook.

My sister, who was recently diagnosed celiac, went to a restaurant and told her server she was gluten free. The server proudly boasted that everything in the restaurant was gluten free. My sister asked, even the bread? The server said yes. Knowing this was not true she asked the server to check. The server came back, apologized, and admitted she had no idea what gluten was.

So many restaurants are trying and yet there's still a long way to go.

ElseB Contributor

I was in France last summer and while I don't speak a lot of French, I was able to say "pas du ble" (no wheat). Unfortunately some waiters kept thinking I meant "pas du lait" (no milk)! I don't really think it was my French but rather that the idea of someone not being able to eat wheat was incredible to them!!!

You're so right about people having no idea what they're eating. I overheard a hilarious conversation on a train once in which a woman was telling her friend about how she was trying to eater better, and so she was eating whole wheat rice (who knew there was a wheat-rice blend!). She also talked about how someone she worked with had a wheat allergy which meant that she couldn't eat whole wheat bread, only white bread. Hmmmmm, what did she think the white bread was made with????

K-Dawg Explorer

Kayo - your post made me laugh so hard -- "yes, everything is gluten free, even the bread" O.M.G. That is usually my sign to run out the door because you KNOW that even if you order a gluten-free meal, somewhere down the line someone will gluten it via cross-contamination, etc.

I just can't get over it...even the bread is gluten free. awesome funny (and, of course, terrible)

KDawg

Oh yes, all the time. Well meaning friends will ask, can you have carrots? rice? I just look at them puzzled. People really don't seem to understand the differences between vegetables, fruits, dairy and grains so expecting them to understand what gluten is like asking them to speak Chinese. Unless you deal with food intolerances yourself I find very few people are educated about what they put in their mouths. I've always been someone who cooks and someone who enjoys trying different recipes, foods and cuisines so I feel like I was lucky in a way. I had a leg up when I had to give up gluten (and soy, and foods high in fructans and fructose) because I could adapt the foods I already knew how to cook.

My sister, who was recently diagnosed celiac, went to a restaurant and told her server she was gluten free. The server proudly boasted that everything in the restaurant was gluten free. My sister asked, even the bread? The server said yes. Knowing this was not true she asked the server to check. The server came back, apologized, and admitted she had no idea what gluten was.

So many restaurants are trying and yet there's still a long way to go.

GlutenFreeManna Rising Star

We had out of town guests this weekend, and consequently ate several meals out. Twice, after discussing gluten free with the servers, they came back and questioned me about cheese. :blink: "The chef says you can't have this item because there is cheese on it." "OMG, there's cheese on your salad! Is that ok???" I'm pleased they are asking and alert, but they are alerting to the wrong foods. What is this? I'm ok with dairy, fortunately. It's the gluten, people! Has anyone else experienced this strange phenomenon? :lol:

Is it possible the chef thought you couldn't have cheese on your salad because it was bleu cheese or a commercial shredded cheese with flour dusted on it? I have heard some shredded cheeses have wheat flour put on them, but I have never seen it in the store so I don't know if it is true. Or perhaps their cheese is cross comtaminated. I went to a pizza place with a gluten free pizza crust option and I asked if I could have one of the specialty cheeses other than mozarella. The server went to check and came back to tell me only the mozarella was gluten free. What that meant was they kept some moz out of the regular prep area to prevent cross contamination, but all the other cheeses were probably cc'd from being used on regular pizzas.

BethM55 Enthusiast

Is it possible the chef thought you couldn't have cheese on your salad because it was bleu cheese or a commercial shredded cheese with flour dusted on it? I have heard some shredded cheeses have wheat flour put on them, but I have never seen it in the store so I don't know if it is true. Or perhaps their cheese is cross comtaminated. I went to a pizza place with a gluten free pizza crust option and I asked if I could have one of the specialty cheeses other than mozarella. The server went to check and came back to tell me only the mozarella was gluten free. What that meant was they kept some moz out of the regular prep area to prevent cross contamination, but all the other cheeses were probably cc'd from being used on regular pizzas.

Good point. I'll keep that in mind and ask next time. I'm fortunate not to be as sensitive as some to CC, but I'd like to avoid it anyway. So far so good today...

I asked for and the server brought a plate of dipping oil, so I could dip the bread I brought with me. We left a nice tip for her. She was pleasant and helpful, worked to be sure my dinner was ok for me.

psawyer Proficient

I have heard some shredded cheeses have wheat flour put on them.

In the years I have been on this board nobody has ever been able to provide an actual case of this. I consider it to be one of those celiac urban myths.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BethM55 Enthusiast

In the years I have been on this board nobody has ever been able to provide an actual case of this. I consider it to be one of those celiac urban myths.

Commercial shredded cheese generally contains more than cheese, however. Anti-caking agents and other chemicals that, IMHO, do not belong on cheese. Ok, I'm a bit of a purist, and maybe a cheese snob... But I prefer to avoid extra chemicals in my food. Give me real cheese, please! :lol:

GlutenFreeManna Rising Star

In the years I have been on this board nobody has ever been able to provide an actual case of this. I consider it to be one of those celiac urban myths.

Hence the reason the rest of my sentence said "but I have never seen it in the store so I don't know if it is true."

Jestgar Rising Star

Hence the reason the rest of my sentence said "but I have never seen it in the store so I don't know if it is true."

Some people have difficulty staying focused through an entire paragraph, especially when newly diagnosed. The important parts are sometimes worth repeating. :)

MelindaLee Contributor

We had out of town guests this weekend, and consequently ate several meals out. Twice, after discussing gluten free with the servers, they came back and questioned me about cheese. :blink: "The chef says you can't have this item because there is cheese on it." "OMG, there's cheese on your salad! Is that ok???" I'm pleased they are asking and alert, but they are alerting to the wrong foods. What is this? I'm ok with dairy, fortunately. It's the gluten, people! Has anyone else experienced this strange phenomenon? :lol:

I had two similar experiences this week! 1. At the Grocery store, they had a marinated roast with sample. They were wonderful and checked the marinate (and I got a list of gluten free meats from the meat counter, so BONUS), then proceeded to offer me a sample, and stuck a pretzel in it! :lol: 2. I called ahead to a restaurant to see if they offered anything gluten-free. I was assured they did. When I arrived I told the server I need the gluten-free menu. He attempted to inform me what on their regular menu I could have. "How about the Ruben, though you will have to skip the cheese and the 1000 Island dressing...or...you could have the meatloaf". :huh: REALLY???? I did follow up with a call back to the manager of the restaurant to "educate" them. Gotta ove people, sometimes. :blink:

EDIT: uhm...that was "Gotta love people"

BethM55 Enthusiast

I had two similar experiences this week! 1. At the Grocery store, they had a marinated roast with sample. They were wonderful and checked the marinate (and I got a list of gluten free meats from the meat counter, so BONUS), then proceeded to offer me a sample, and stuck a pretzel in it! :lol: 2. I called ahead to a restaurant to see if they offered anything gluten-free. I was assured they did. When I arrived I told the server I need the gluten-free menu. He attempted to inform me what on their regular menu I could have. "How about the Ruben, though you will have to skip the cheese and the 1000 Island dressing...or...you could have the meatloaf". :huh: REALLY???? I did follow up with a call back to the manager of the restaurant to "educate" them. Gotta ove people, sometimes. :blink:

EDIT: uhm...that was "Gotta love people"

I'm SO glad it's not just me! :lol:

mbrookes Community Regular

After telling a server that I can't eat wheat, barley or rye, I have been asked if rice is OK. I have also been told in restaurants that the bread is gluten free.

Here is the one that bothers me. If I order prime rib, sometimes I'm told that I can't have the au jus. I thought that was the juice from the roast, which should be OK. What is au jus?

sandiz Apprentice

We had out of town guests this weekend, and consequently ate several meals out. Twice, after discussing gluten free with the servers, they came back and questioned me about cheese. :blink: "The chef says you can't have this item because there is cheese on it." "OMG, there's cheese on your salad! Is that ok???" I'm pleased they are asking and alert, but they are alerting to the wrong foods. What is this? I'm ok with dairy, fortunately. It's the gluten, people! Has anyone else experienced this strange phenomenon? :lol:

If you eat out and have salad with cheese on it I would say no to the cheese. Most restaurants have pre shredded cheese and they have a powder on them to stop the sticking, this has gluten in it. So please don't know the waitress or the chef for the question.

sandiz Apprentice

After telling a server that I can't eat wheat, barley or rye, I have been asked if rice is OK. I have also been told in restaurants that the bread is gluten free.

Here is the one that bothers me. If I order prime rib, sometimes I'm told that I can't have the au jus. I thought that was the juice from the roast, which should be OK. What is au jus?

From having a restaurant ourselves, yes the au jus should be the drippings from the roast but you will have so many people to feed that you make it bigger. Adding beef base which has gluten in it and maybe a little flour for a slightly thicker au jus.

psawyer Proficient

Most restaurants have pre shredded cheese and they have a powder on them to stop the sticking, this has gluten in it.

Again, in the years I have been on this board nobody has ever been able to provide an actual case of this.

Jestgar Rising Star

Again, in the years I have been on this board nobody has ever been able to provide an actual case of this.

And gluten/flour would be sticky anyway. It wouldn't be used to keep shredded cheese free flowing.

anabananakins Explorer

I had cheese last night that had an anti-caking agent, but the ingredients were specified (corn starch and something else) so it was gluten free. I'd heard mention of it here so it was interesting seeing it, especially since it made absolutely no difference to the stickiness of the cheese which was no more or less sticky than other grated cheeses. Seemed really unnecessary and annoying for anyone sensitive to corn starch.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.