Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Help A Newbie With Gluten Labeling?


aedixon

  

10 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

aedixon Newbie

On my 5th week gluten free, not officially diagnosed with Celiac, but feeling notably better and hoping it will help with my Anemia. The possibility was suggested by a doctor recently and I never knew anything about the disease before. I am 35.

I am confused about food labeling and wondering if there's a difference in items that specifically say they contain less than 20ppm and items that don't mention any gluten content at all?

I ask because I ate some boldly labeled GLUTEN FREE! Blue Diamond Nut Crisps. Thirty minutes after I started eating them, I had the tell-tale rumbley stomach and was a bit nauseated. That led me to pick up the box and look at the ingredients - thinking maybe I'd misunderstood the label. It said the crackers were processed in a facility with wheat but tested less than 20ppm for it. I even emailed the company who said their tests showed there's actually zero wheat in their product.

But, I can eat two bowls of Rice Chex, also labeled gluten-free, but with no disclaimer, and I feel fine.

Is there more to this story? I've tried to research a bit, but the forum here is hard to search, and I'm just not coming up with much in-depth commentary about this.

Thanks for any comments!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The tests for gluten in foods don't test for no gluten. Some are tolerated by folks who are not very sensitive and some folks won't tolerate them. I don't tolerate small amounts of gluten but for me the key part of the label is 'processed on a plant that processes gluten foods'. Those I personally stay away from.

cassP Contributor

im not sure if this is necessarily a question i can answer- because i am not one of those Celiacs who has to run to the bathroom with Nausea or "D" when crosscontaminated... i get more gas & constipation... the "D" comes with larger amounts or cumulative effects... so, i can tell you that i can eat those blue diamond cracker things just fine... but it still could be causing damage on the inside..????

idk.... and sometimes, regardless of abstaining from gluten, excess fructose & dairy, i still get annoying bloating & gas... maybe i am reacting?? or maybe i got SIBO, i think ??

i also feel better on NO carbs.

generally, i can eat those crackers fine.

psawyer Proficient

Some products are simply labeled "gluten-free." The manufacturer does not have to have a gluten-free facility, or do any testing.

If they have shared equipment, or a shared facility, they may choose to voluntarily disclose that, but they are under no obligation to do so.

If they test, they will have a disclaimer about "less than x ppm." That is because no test can ever test for zero content. Common tests are sensitive to 5 ppm or 20 ppm. The product may, in fact, contain zero gluten, but the test can not verify that.

Rowena Rising Star

So um, like many others said, it depends on HOW sensitive a person is. Some people may be able to tolerate the minuscule amounts of gluten that show up in the tests, up to the 20 ppm. But others, it completely may be different.

The thing is, companies, like has been aforementioned, arent required to do testin or even disclose information about the facility its produced in. I personally am really careful about this sort of thing, and I dont buy brands that sell wheat products unless they clearly state precautions are in place to maintain the purity of the gluten free products. Just because they place a label sayin its gluten free doesnt mean it is safe, especially for those who are EXTREMELY sensitive to gluten. For example, the other day, I bought some lemon merengues for eatin at like birthday parties and stuff, so I dont feel bad about not eatin cake. It had "gluten-free" all over the container. But I still got sick... Upon closer reading I realized they had mentioned about a risk of cross contamination... OOPS!!!!!!!!!!!!

aedixon Newbie

Oh, boy... Sounds like this is all a very ambiguous path.

And a food lover's worst nightmare.

Thanks for the replies. Look forward to hearing from more people.

mushroom Proficient

Each individual has their own tolerance level for trace amounts of gluten. Some can eat products "manufactured in the same facility as", others can eat products processed on shared lines as long as the company follows careful cleaning practices, some people claim they get glutened just smelling something containing gluten :o I am probably not the one to talk to because my sensitivities are not that high, and I can handle most shared line products. Some I am leary of based on what other posters have said of their experiences. Such as, I do not drink Rice Dream milk. For most of us we have to test for ourselves to see how sensitive we are. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

I avoid anything labeled "made on shared equipment" or "may contain wheat". I am very sensitive. I will react to something that has added gluten, but the amount of gluten or the processing makes the product test at levels that are considered "gluten free". One example of this is McDonald's fries--they actually use wheat in the processing, but when they test the finished product they test at below 20PPM and so they can call them gluten free. SOme people have no symptoms from eating McDonald's fries. I'm one that reacts.

I also wanted to point out, however, that those Blue Diamond crackers are made with soy flour and I would get sick eating them just from the soy. Some of us end up having addtional intolerances once we go gluten free. Soy is one of mine and anything with soy flour especially makes me ill. Just thoguht I would throw that out for your consideration in case you keep having problems with gluten-free products. You might want to keep a food diary for a while to see if you see a pattern. That way you can figure out if it's cc or an additional intolerance that's making you sick.

T.H. Community Regular

One thing that can help you make sure you get a very lose amount of gluten is to look for the CSA and GFCO gluten free certifications.

They will test products - that pay for this - and the CSA certifies the products to be 5ppm or less, I believe, and the GFCO certifies that the product has 10ppm or less.

The GFCO is a little black circle on a white background with a gluten-free in the middle. The CSA symbol I can't recall right now.

We're going through this with my daughter, because she started reacting to most 20ppm foods we tried, so now we've been calling companies and using products that test themselves as 10ppm or less. Pain in the petutie,I'll tell ya.

And don't forget - because it's not 'zero' gluten but 'really low' gluten, it's kind of like when we eat low calorie foods. We will still get fat if we eat a ton of low calorie foods. And we can still get too much gluten if we eat a ton of our 'really low' gluten products, ya know?

bincongo Contributor

Ok here's the thing. I don't have many symptoms at all so for me to be able to tell if I had an accidental gluten exposure is very hard to tell. I can't go by that, so my question to add to this discussion is that can we really base this on symptoms. If the intestines are being damaged on what the symptoms level is than we all have to avoid being exposed to any gluten. That becomes an issue of where we need to go to be active in getting gluten labeling standards.

glutenfreeinminnesota Contributor

I am pretty sensitive to gluten...but maybe not as bad as I think I am compared to others? I can tell you, I ate those Nut Thins like crazy in the beginning, and have never had a problem with them. When I went back to the doctor for a blood check 6 months into my gluten-free diet, there were hardly any traces of the anti body our bodies produce when gluten is consumed. Though, if they bother you, I would not eat them! I will say, I realize things NOW that I ate in the beginning and shouldn't have, just because I didn't know any better. It took a while to fully feel "better" and really know the things I can and cannot eat...which is still a problem somedays, I still have my bad days and it's almost been a year!

MelindaLee Contributor

On my 5th week gluten free, not officially diagnosed with Celiac, but feeling notably better and hoping it will help with my Anemia. The possibility was suggested by a doctor recently and I never knew anything about the disease before. I am 35.

I am confused about food labeling and wondering if there's a difference in items that specifically say they contain less than 20ppm and items that don't mention any gluten content at all?

I ask because I ate some boldly labeled GLUTEN FREE! Blue Diamond Nut Crisps. Thirty minutes after I started eating them, I had the tell-tale rumbley stomach and was a bit nauseated. That led me to pick up the box and look at the ingredients - thinking maybe I'd misunderstood the label. It said the crackers were processed in a facility with wheat but tested less than 20ppm for it. I even emailed the company who said their tests showed there's actually zero wheat in their product.

But, I can eat two bowls of Rice Chex, also labeled gluten-free, but with no disclaimer, and I feel fine.

Is there more to this story? I've tried to research a bit, but the forum here is hard to search, and I'm just not coming up with much in-depth commentary about this.

Thanks for any comments!!

I eat the crackers all the time with no issues. Maybe you have some nut allergies??? :unsure:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,002
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.